Posted By Posting
Jul 30, 2009
Back with news question on feeding
My son Crockett just had his N/J tube removed. The problem is he now has issues with texture. There are very few things that we can get him to eat. If it's to thin then he pukes, if it's to thick then he pukes. I can't find a happy medium. The food clinic won't see him until he's 1 and we have to wait a month for an OT consult. It's been a battle and struggle. Any suggestions??
Jul 31, 2009
jan gambino burns
Jan Gambino, M.Ed
The Reflux Mom
P.O. Box 171
Arnold, Maryland
21012 USA
Mom to Rebecca: reflux and asthma, post nissen fundo, post g tube, post FTT and Jenna: reflux, asthma and POTS.
Author of Reflux 101: A Parent's Guide to Gastroesophageal Reflux.
Hello! Congratulations on getting the N/J removed. That is HUGE! It might be a good idea to go slow and steady on the feeding until he has had an evaluation. I am sure you are concerned about weight gain/calories. Is he vomiting thickened formula from a bottle or thickened baby food? My refluxers were very slow to catch on to eating from a spoon. In fact, they didn't ever start eating solids until 12 months. If Crockett had some early issues with eating by mouth, he may be a bit delayed in feeding too. Jan Gambino The Reflux Mom
Aug 03, 2009
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
A couple of ideas.... Have you checked out Beyond Play's website. They have lots of different textured teething type products that he can chew on that might help him get use to textures in his mouth. Also, not sure who you are going to see for OT, but have you looked into the Early Access program in your state. It is a free service, federally funded. Every states has one. They have OT, Speach, nutritionist, feeding specials, etc. Perhaps they can see him sooner.
Check with your
doctor first!