Posted By Posting
Jul 28, 2009
refluxqueen
Calling GI to update
Hi all, Ok, today is the day to call and update on the EES..... So should I mention to the nurse that he has complained of something feeling like it's stuck in mid throat? He's mentioned this like 4 times in the last 2 weeks at least...Is that important? Never complained of it before? So in addition to the above, I will have to tell them that the EES Didn't really show a noticeable effect in him having less reflux, not to mention it has started to cause diarrhea and we don't need Miralax anymore. Also I think it has caused him stomach pain because he has decreased interest in eating and is eating less and less yet still refluxing....... Do I need to tell him anything else?? Thinking, I know you all don't know :) what is going on with him here!!!

So I guess if this not working the nurse had mentioned there may be a barium swallow next...But given the feeling of something stuck in his throat, do you feel he should get scoped as well? He's been refluxing since at LEAST sept 08 and has a history of reflux undiagnosed til he was two as a baby.... Any thoughts, appreciated, I guess I am just trying to wind myself up for the next round....A bit disappointed. I had suck high hopes for first the miralax and then this EES. Thanks.

Jul 28, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
The sensation of a lump in the throat is call globus pharyngeus. Go to Marci-kids.com and click on Complications then on Effects of EER on the pharynx, sinuses and ears to learn more about it. Yes, tell the nurse and yes, I would definately push for a scope. You just as well get them both done and find out what you are dealing with. They will do tiny biopsies along the way done the scope to find out what is going. Dont ask them to scope him, TELL them you want him scoped, period. It is quick and painless.
Jul 28, 2009
refluxqueen
Thanks, vigilantmom, I had to speak to a machine, but I mentioned the globus pharyngeus, and all of the other issues as well. I didn't mention a scope or anything, but when the nurse calls back tomorrow, if they don't mention it, I will sureley start pushing for it to be done, and you're right if they could just do both at the same time, it will be for the best so we know hopefully what is going on....Thanks :)
Check with your
doctor first!