Posted By Posting
Jul 27, 2009
hawkeyelynn
HawkeyeLynn, mom to a baby boy with GERD
Medications and sleep
My almost 9-month-old son (20 pounds - he's only gained a pound in the last 3.5 months) has been on Axid (now 3.5 ml twice a day) for 2.5 months, and was put on Prevacid (7.5 mg a day) after his upper GI revealed "intermittent reflux." He has never been a good sleeper because he's always been in pain and had ear infections on top of it (he had the tubes put in last week to hopefully eliminate that problem), and he isn't spitting up or vomiting any more, but his sleeping is just getting worse and worse. His pediatrician thinks some of it is behavioral, which we are sure is the case since the poor kid has never been able to sleep comfortably, but we have been working on that, and things are getting worse instead of better. But my husband and I really think it's something more - he is just so darn awake in the middle of the night, and nothing we do will settle him back to sleep - it's like his brain is telling him he's not tired and should be awake. He doesn't feed during the night, and sometimes will thrash about in our arms like he's so uncomfortable, but the second we try to put him down, he wakes up and is upset. We are on a waiting list to see a pediatric GI, but we are at our wits' end here trying to figure out what to do. The poor thing has cried so much in his little life that it's really hard for us to consider letting him cry if it's not going to make any difference or teach him anything. Do any of you have any experience with these problems? We are just looking for some kind of explanation...his ENT said that it could take 2-4 weeks for him to be more comfortable again and for all of the fluid that was banging around in his head/ears to be gone, but we think we'd notice a positive trend instead of a negative one. He wakes up more now than he did as a newborn, so 2-4 weeks seems like an eternity to us. Thank goodness my 2-year-old is a champion sleeper!! Any advice anyone has would be appreciated! Thanks.
Jul 27, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
7.5 mg seems really low for a 20 pounder. You might ask your ped to increase the dose while you wait to see the GI. The ENT would likely do it too. Try to get at least another 7.5 and give that before his last bedtime bottle.
Jul 27, 2009
adelines mom
our nights are tough too!!! i got about 3 hours of sleep last night. adeline whimpers off and on all night long. i am doing the mylicon drops about every 3-4 hours in the night and it seems to help after i give it. i think most of the time it is gas. it is maddening. i try to pick her up as a last resort. she has a blocked nostril so breathing is really tricky. have had her in a pack and play in our room and she has been sleeping on the wedge since birth with the boppy around her bottom in a u shape. we moved her crib into our room last night. she is getting more active and starting to buck a little and moving that way. she had bucked out of the boppy and was upside down in the bottom of the crib this morning at 5 a.m. laughing at me. think we have got to say bye bye to her current sleeping situation tonight. anyway, my doctors say let her figure it out and leave her alone. NO WAY! she is in pain. i don't think she is hungry. we feed her at 6:45 p.m. it is not that she wants to wake up and play with mommy. most of the time she never even actually wakes up. i just give her the binky or reposition her. but it goes on all night long. just scheduled her endoscopy for aug 10. hope this will give us some answers as to what is going on in her throat.
Jul 27, 2009
nikkid
Hi, sorry to hear your son is having such a tough time with his pain. My son is 7 months and around 19 pounds and on prilosec (20mg) which we split twice a day (first thing in the morning on an empty stomach and wait 30 mins before feeding and 30 mins before bedtime and bedtime bottle). He's also on zantac twice a day. Sounds to me like your son is on a low dose for his weight, I would certainly be pushing to see whether it can be increased. If the pediatrician refuses, I would really push to get in to see a GI as soon as you can. You will find the GI pediatricians treat GERD a lot more aggressively than regular pediatricians. When my son has flare ups his sleeping goes off the scale and he too thrashes about in our arms and will not sleep, seems to me that your son is in pain rather than behavioural. Do you have his crib elevated? Has he been tested for any allergies of any kind?
Jul 27, 2009
mommy2k
I know exactly what you're going through. Our sons sound similar. My ds is almost 8 months old and he's been a terrible sleeper since birth too. We're so exhausted.

I'm so sorry to hear about the problems he's having. I would first do what vigilantmom said which is try to up the dose of prevacid. You could also try some mylanta or maalox to see if that helps settle him. Of course ask your doc about this or pharmacist can give you the correct dosing. My son does the same thing sometimes where he's uncomfortable and I have to have him sit up against me to fall asleep. The mylanta does help him though.

I know about the waiting for the gi. We had to wait a month and were counting down the days. We were so frustrated and tired. We now are currently going to go with a second opinion which is taking forever as well. The waiting game is the worst. Good luck!

Check with your
doctor first!