Posted By Posting
Jul 14, 2009
wali'smommy
Aspiration Pnumonia
Hello, I am new here, my son is 19 months old and last week he was diagnosed with aspiration pnumonia. He has had a swallow study done, and it was negative. We had that done about 3 months ago, the next day he had to be put on breathing treatments because he had aspirated barium. But the people performing the test said that he didn't have any problems with it. We ended up in the Hospital the next day though. We are on prevacid 2x per day right now. I am scared to sleep at night because I am afraid that my son will aspirate and die. Has anyone else gone through this and waht did you do? Is my son too old for the Angelcare movement sensor, or is there anything that anyone suggests. Please let me know ASAP!!! Thanks
Jul 14, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Are you seeing a Pulmo?? If not, I'd get in asap. They can more equipped to deal with asp. pneumonia than a GI is. they will work hand in hand with the GI on treatment, but the Pulmo will trump the GI as far as breathing issues and aspirations goes.
Jul 14, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
OH and they can get you set up with an at home Pulse Ox to use so you can make sure he is breathing properly at night. Some times you have to fight with ins. co. to get them covered but in the mean time you can still use an angle care I would think.
Jul 15, 2009
wali'smommy
We went to our pediatrician and she said that he had pnumonia and would be fine in a few weeks...we then went to our asthma and allergy specialist and he diagnosed it. He gave Wali a steroid shot, caugh meds, a nasal spray, breathing treatments, and continued prevacid. We don't see him again until 7/22. I am scared that this will happen again! Is death a possibility with GERD? Or do they always wake up?
Jul 15, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
With the asp. phen. you will need strong ABX or it won't get kicked. I'd PUSH hard for a referral. I am getting ready to feed Jedd breakfast, be back later.
Jul 15, 2009
susiegal
Mom to Charlie - cleft palate and reflux. Meds - zantac, prevacid, mylanta and reglan.
Does your son have a nebulizer and if so has anyone prescribed a low grade treatment to help prevent the pneumonia? My son had aspiration pneumonia last year and viral-induced asthma earlier this year so we started him on a low-grade steroid twice a day through the nebulizer. Agree with Jedd's mommy on the pulmo - that is who we see for aspiration/pneumonia issues.
Jul 20, 2009
johnniesnewmommy
My Johnnie aspirates all the time. Thankfully he has only had full blown Pneumonia 4 times and not for months now! Knock on wood! He to had the swallow study and it only showed a slight delay in swallow but no aspiration on swallow. We still have not been able to get in to see the pulmo either. He did need some heavy antibiotics for the full on pneumonia, so if they aren't giving him the antibiotics you will want to call them. He is on Pulmicort twice daily as a preventive and then albuterol nebulizer treatments as needed. If it's really bad we sometimes have to do back to back treatments of albuterol. The one thing that keeps it at bay is movement. As soon as he stops moving around, (naps, bedtime, sitting in car seat) his lungs fill up with fluid and he has to move around and cough to clear his lungs. We were on a long road trip yesterday, 17 hours in the car seat, and even though he is upright, he still had a horrible time clearing his lungs. He has not had an episode where he just stopped breathing in a very long time, but I remember how scary it was when he did. Hang in there and keep a daily journal so you will know when you look back what helped and what made things worse.
Check with your
doctor first!