Posted By Posting
Jul 14, 2009
refluxqueen
Still trying to figure out what it is...
Hi everyone, I am newly re registered here, I was here 5 years ago when my youngest was finally dxed with reflux at age two...Well, unfortunately, the reflux is back. He is now almost 8 and has been suffering with frequent regurg at lleast 10 times daily that he mostly reswallows. Zantac, Prilosec and Prevacid and diet changes have done nothing. He finally got to see a ped. GI back in June which led to an abd xray for suspected constipation which I really wasn't feeling but the film did show stool in his intestine. So did a miralax clean out and has continued on a quarter dose of miralax daily, now for two and a half weeks. Yet he still refluxes. It was the GI's suspicion that undetected constipation could cause reflux especially in a kid prone to reflux already due to his Hx. So, now I had a call on friday from his nurse who said he wants to try a low dose of Erythromycin for two to three weeks to get motility speeded up in his stomach. Ok, great, only she called back and said it was on backorder and she would call me back yesterday to see what the GI wanted to do, so I am still waiting to see. I know she had said he does not like Reglan so hopefully he won't go down that road. I guess I am just frustrated. He said if the erythromycin doesn't work that he would consider an upper GI. My son had one done when he was two and the pulmonary dr. suspected reflux and was proven with that study... Could a hiatus hernia develop in a kid who has a hx of upper resp infections and coughing, etc, bronchitis and RAD? Could it be EE? Agh, it just seems as though if the acid blocker havent' worked that it must be anatomical...but what do I know....slow motility... I just feel so bad for my guy, it's got to be nasty to have whatever you've eaten come back for visits over and over again, sometimes undigested and sometimes sour and more digested. Thanks for listening!
Jul 14, 2009
refluxqueen
Older kids with recurrent reflux
Also, how can it be possible for a kid to reflux stuff in the morning when he hasn't eaten anything since dinner last night at 5:00 pm? Anyone here with older kids that recurred reflux?
Jul 16, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
I can't speak from experience with a kid who had it, got it cleared, then came back. But my dh has had acid reflux since he was about your son's age. Now, in his 30's, we finally found what keeps the sx under control for him. Daily probiotic and prebiotic supplements, watching the caffeine, limiting carbonation, and making sure anything acidic is kept to before 8 pm (spaghetti, pizza, strawberries, etc.) I also just added a DGL (licorice-based supplement) and that also seems to help. He's been on a daily PPI for years, but doesn't stop everything.

I'd push for the scope - it sounds like his LES is still lazy. Better to check for damage and treat it than to let it keep getting worse. Have you ever been given Carafate or Caracreme? Good luck with the Erythro - sometimes works, sometimes doesn't. And as for Reglan, those warnings have ALWAYS been there, it's just now more prevalent. Some kids do fantastic on it and have so side effects.

Jul 18, 2009
refluxqueen
Thanks, I will look into the pre and pro biotics, I am giving him yogurt as a precaution with the EES to make sure it doesn't take him too far the other way....I will push for a scope when I talk to the nurse in another week and hope that they will do it, if for nothing else to set my mind at ease. I would also like to do a biopsy to make sure it's not EE or any changes in his tissue. As far as limiting caffeine, etc, he naturally has avoided tomatoes, spice and caffeine since he has been eating big people food. Either he was refluxing all along and I didn't know or the memorey stuck with him? Thanks!!
Check with your
doctor first!