Posted By Posting
Jul 13, 2009
Daughter Payton, Born 4/2/09, Diagnosed with Silent Reflux at 3 Weeks. Tried zantac, prevacid, axid, multiple formula changes. Presumed MSPI. On Elecare and Carafate.
MSPI, Elecare, Axid
This is my first post to the forum. I've read lots of them & appreciate all the info that has been shared! We took my dd, Payton, to the second ped GI last week (we absolutely hated the first guy!) & he suspects MSPI. The first ped GI suspected the same, but we disliked his approach & discounted everything he said. Now, with the second specialist saying the same, we are taking it more seriously. The second specialist recommeded taking her off the axid (6 mls/day), switching to elecare formula, elminating the rice we used to thicken formula, and using mylanta only to control her symptoms. We are 6 days into switching from soy to elecare....finally at 100% elecare today. She's been crying and fussy during the whole transition --- more than on soy/rice/axid. She didn't used to crying during feeding, but now does. Her reflux doesn't seem much worse without the axid (but not much better either), yet we are still very confused about what might be helping or hurting her with so many changes. I'm wondering if anyone had any similar experiences with elecare? How long will it likely take for her to feel better on elecare if she really is MSPI? Do axid or zantac really help MSPI babies?
Jul 13, 2009
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
axid and zantac don't do anything for MSPI, but if reflux is at issue then they do help. They block the acid in the tummy making reflux MUCH less painful. That said make sure you are apcing them properly form each other and meals. Lactose can take a while to get out of the system. My son has ben on Elecare since he was 9 mo. There was a pretty immediate change in him on the Elecare...the puking did not stop, but the refusal did ...for a while. I would give it a little while longer. Truthfully it sounds like there is reflux and that removing the axid is causing her some pain. Maybe ask about trying prevacid. Rice can definitely be hard on babies tummies and is a common allergen as well...I hope you see an improvement quickly, but if not, ask about dosing a PPI...I honestly think they suggested too many changes at once!
Jul 13, 2009
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
First off I LOVE your dd's name! My middle dd is Payton also! You don't see that name very often where we live. :) Now, I agree with Zack's mom, I would def ask to keep her on the Axid. I wouldn't change too many things at once. The rice def can cause a problem. My dd Abby was on Neocate which is similar to Elecare and it did take a week for more before she started getting better. Give it some more time. But I would def call the GI and tell them how she is acting and see if you can get back on the Axid or try a PPI. Prevacid (solutabs) worked great for Abby! She is still on 7.5mg at night but she started on 7.5mg 2x's per day at 6wks of age.
Jul 14, 2009
Daughter Payton, Born 4/2/09, Diagnosed with Silent Reflux at 3 Weeks. Tried zantac, prevacid, axid, multiple formula changes. Presumed MSPI. On Elecare and Carafate.
Follow-up with Doctor - And venting!
Thanks for the feedback ladies! In hindsight, I agree with all you guys are saying. Well after a week on elecare, Payton seems to be eating more each day and she seems to like the taste of the formula, thank God! However, her reflux and stomach cramps have persisted....along with green poops and worsening diaper rash. She crys through about 1/2 the feedings, but still eats, so that is good. The rest of the time, she sucks it down & seems so happy! Night time fussiness is the worst again. I'm convinced that she still needs axid/zantac or prevacid again, but when my DH called the ped GI office today, they prescribed carafate instead. Her ped GI is on vacation and the on-call doc prescribed this. Unfortunately my DH didn't ask questions --- and the DH doesn't agree with me on the axid/zantac etc. He wants to wait to see if she gets better on the formula alone, with mylanta as needed. Turns out "as needed " has now become every 3-4 hours! I'm back at work full time now & my DH is at home with her taking FMLA from his job....and we are going to run out of that before long & have to make some serious decisions about her care. We don't think our daycare facility can manage her right now. I'm so exhausted during the day now that I just might end up getting fired, so that would make the decision for us...yet we need my job/health insurance. Will the carafate help her? I know nothing about this drug. Should I call the ped GI back and rant & rave until they say I can start her back on Axid or Prevacid? How long should we give the carafate if we just go that route? Thanks so much!
Jul 14, 2009
Hi Paytonsmom, Carafate is a coating drug that will coat the esophagus and reduce the irritation stomach acid can cause. I don't know for sure that it will reduce any reflux, but it will coat. sorry I don't have any better info for you, I am sure other parents might,,, Good luck.
Jul 16, 2009
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Do you have any of the meds still available to you? Any leftover from a previous Rx? Carafate will help, but it won't stop the acid production like a PPI or even an H2 blocker. MSPI won't be helped by any of the meds - it's an intolerance to the protein. Digestive enzymes can help, but it's better to just avoid the foods with milk or soy.

If you're looking to still thicken the feeds, Beechnut makes a soy-free oatmeal cereal which we used. There's still casein (hard to get away from that)so you may need to use something like Thick It or Simply Thick to get the formula more viscous.

And that was a lot of changes at once. Give her system some time to settle and you may see a change in stool for the better (is there such thing??) The Elecare may keep it green though...the elementals don't have much to break down.

Jul 17, 2009
Daughter Payton, Born 4/2/09, Diagnosed with Silent Reflux at 3 Weeks. Tried zantac, prevacid, axid, multiple formula changes. Presumed MSPI. On Elecare and Carafate.
Yup, I still have a drawer full of meds. She's now on the 5th day of 100% elecare along with carafate. I almost hate to say how much better she is doing because I'm afraid to jinx it! She's less fussy and has began eating a little more at each feeding. She's still got a little evening reflux (it was always the worst just before bedtime), but not too bad --- I'm scared of trying the axid or prevacid again unless it gets worse. We're going to try to stay on the current regimen and be patient for now. The "try something different, pray, and wait" approach to babycare is so hard! Thanks for all info and support!
Check with your
doctor first!