Posted By Posting
Jul 08, 2009
storywriter
--
Marlana
(mar-lay-na)
that reglan debate...
I'm sure there has been talks of it on this board... but I'm relatively new... so humor me while I ask. :) haha (I even saw the post below about weaning off reglan). I'm curious what your child's doctors are saying about Reglan, and how you feel about it. It seems everybody you talk to has to give you their "input" on how horrible they've heard reglan is... just what I want to hear, right? I really trust our GI doctor, and our regular pediatrician. I know at our primary ped's office, when I took AJ in for his 9 month check up, the nurse practitioner said their office wasn't prescribing reglan anymore, but he didn't think AJ's dosage was much of a concern... but he did tell me to his GI doc. When I called the GI doctor to make an appt for a follow up, I asked about the whole reglan thing, and he said he thought it was fine, keep him on it (he is 10 months now, he's at 1 mL 4x a day... but he weighs about 23 lbs... big boy, I know, don't as me how he has severe gerd, spits up all the time, and still puts on masses amount of weight. He baffles his doctors EVERY time... lol), but he's been on it since he was about 4-5 weeks old. I'm just getting a little peeved when everyone I know is telling me how "concerned" they are over reglan/AJ being on reglan. I trust my kid's GI doc, if he is comfortable with it, I think I am too... but everyone is getting me all worried!! Sheesh! What are your doctor(s) saying?
Jul 09, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Many kids are on it with no side effects. Basically, I'd tell them that the benefits outweigh the risks and to mind their own business.
Jul 09, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
Look, it's simple...Relgan has NASTY side effects...if your kid doesnt' get them and it helps them then there's no worries. My son was on Reglan for months...he had no side effects at all and it worked wonders for a while...We upped the dose with some weight gain and began to see side effects, by then his body wasn't reacting to the smaller dose, so we couldn't go backward and we couldn't go forward...we had to drop the drug. It was sad and unfortunate as Z's motility suffered a blow without it. His intake has suffered...it realy helped him. My doc has no problem with Reglan closely watched. The side effects aren't subtle...they are easy to spot...that warning has been with Reglan all along..it's nothing new to us reglan moms...it's just been issued as a warning by the FDA now, so it's at the forefront of news..use your intuition...is it helping?
Jul 09, 2009
susiegal
Mom to Charlie - cleft palate and reflux. Meds - zantac, prevacid, mylanta and reglan.
Reglan has been really helpful for us. My son has been on it for almost a year. He is 20 months and weighs almost 21 lbs. Without reglan, I don't think he would have been able to gain what little weight he has put on. He is currently on 1ml/3x a day. A few weeks ago, I specifically asked the GI about it. While he always noted there could be side effects, in his view if there are none stick with it. And this guy is Dr Cautious! Agree with the other moms - stick with your gut.
Jul 09, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Here's my wonderful thoughts of the subject...LOL

There are sooo FEW motility meds on the market, I most certainly would NOT stay away from one even if there was a slight chance it could help. Right now, there are only 2 meds approved for FDA use in the US. Reglan and Erythromycin (EES for short).

The only other med used in the States now it Cisapride. It is only used in drug studies and you must be approved and pass certain physical tests (EKS echos) in order to participate. Most of the kids who get approved are trying to come off TPN dependency or J feeds though. So, we're talking kids with serious serious motility issues.

We did EES with not great results when Jedd was itty bitt tiny. We came of motility meds for a while and then gave Reglan a shot. Reglan worked fantastic for Jedd. I mean, it worked really REALLY well. His only side affect was extreme irritability. And I do mean extreme. He screamed, non stop all day long unless he was being held (soothed) or sleeping. Other than that, he was screaming at the top of his lungs. It only got worse the longer he was on it.

We made it a full 16 weeks on the drug and then stopped. We really did not want to stop it. If we could have figured out a way to make him more comfy while taking it, we would have done so in a heart beat.

Since he had the G tube we could drain him gastrically prior to and 30 mins after a dose. The results were nothing short of amazing!!!! He would have around 75CCs of a meal left and after we gave him his Reglan and then recheck 30mins later, he would drop to below 15. Truly amazing.

We then switched to EES. Yes, it helped, but nowhere near the extent that Reglan did.

We have since been able to take Jedd off of all motiltiy meds and we closely monitor his diet and have had good success so far. We also think some of Jedd's motilitly issues may have been "caused" by his need for a high dose on his PPI, Prilosec. If you google Prilosec and DGE you will find there have been case studies where PPIs can delay gastric emptying. That because the job of a PPI is to shut down those proton pumps. If you don't have enough acid to break down the food you are ingesting or being given via a feeding pump, well, then you will NOT digest the food.

This was all figured out after Jedd had extensive motility testing on his GI tract to see if his intestines were not contracting properly. He had to come off his PPI and EES for these tests. We saw almost NO vomiting during that time.We were amazed. His Impendance Probe showed enough reflux that we had to go back on both meds though. The PPI to combat the Acid and the EES to combat the PPI....and around and around we went.

Jul 09, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
One more thought....LOL
Most of the kids who react to Reglan are neuro impaired kids. Any child with seizure issues or neurological issues really shouldn't even try Reglan. Their rate of having a reaction to Reglan is soooo much higher than a "normal" child is.
Jul 10, 2009
storywriter
--
Marlana
(mar-lay-na)
Thanks!
Thanks everyone! Well we have a GI appt coming up on the 20th. I'll talk to him more aobut it then.. it's so much easier to discuss these things in PERSON with the Dr instead of the phone relaying through a nurse. I'm not even sure if it helps or not, since he started on his reflux meds at a few weeks old he went to Reglan 4x a day right away and (at that time) was coupled with Zantac. One thing I DO notice his stool can get VERY firm on Reglan... if not borderline constipation. I asked the nurse because once it took him 3 days to BM, and they didn't seem concerned. (Couldn't that contribute to the crankiness?!) Does anyone know what signs to look for if it is having an adverse effect on him?? As far as I know he seems fine on the medicine except for some pooping issues. He isn't crawling yet, but he just started pulling himself up on furniture and will cruise around! Not bad for a 10 month old who has usually been pretty miserable his whole life! hah!
Jul 13, 2009
yianni'smom
Yianni was born 09/08. He has MSPI. He was diagnosed with GERD at two weeks. He is currently taking Prevacid three times per day (7.5, 7.5, & 15). He was on Reglan for eight months and was doing much better. We took him off because of the hype. Now we are riding the reflux roller coaster again.
Your DS and mine are the same age and weight and have been on Reglan the same amount of time. My DS was only taking 1 ml three times per day. Due to all the hype, I took him off. What a disaster! My poor munchkin has been in so much pain. If it is working for you, stay with it. I tried to put DS back on it, but it is not the same. The docs think he has EE, and we are off to the hospital on Thursday to confirm with an endoscopy and a ph probe. Reglan is the only thing that helps DS sleep. Without it he is a cranky boy.
Check with your
doctor first!