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Jul 07, 2009
daburkevp
Any advice please...
Let me give a quick summary of what is going on in my house, and if anyone has any suggestions/input, I would appreciate it... I have a 10 week old. She started life choking and panicing on her spit up, esp. when it came up thru her nose.. poor baby!! To date, we have tried soy formula and are now on Nutragimen. She seems to tolerate it the best, but that could be a number of things. Her choking has subsided a little, I think mostly because of just getting older. She is gaining weight, I am not worried in that department. And I know she should eventually outgrow this, I just want to try to make as comfortable as possible in the meantime. We started with Zantac, which did not seem to help. I pushed for Prevacid, because that is what worked for my son who had reflux but not as severe, however it started it at a later age. She has been on Prevacid for almost two weeks. Just as all the other changes we have made... it is hard to tell if anything is really working. She seems a little more comfortable, but the spitting up is constant and smells terrible. She spits up hours after she eats and is clear at that point. Any suggestions as to what I can do to help my baby girl thru this? I do all the lifestyle changes recommended, ie, elevation, burping etc. She is on the compounded liquid form of prevacid .7ml twice daily. Anyone using a acid neutralizer? Thank you for your help.
Jul 07, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Sometimes both Zantac and Prevacid are required for a while. Any chance you can get the prevacid solutabs? They are more reliable than the compounded form. Mylanta can also help with the pain.
Jul 07, 2009
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Many have said that prevacid takes several weeks to take full effect. You might ask about doing both until the prevacid has enough time. It also takes a couple weeks for formula or milk to get out of their system. Hopefully it will work soon :)
Jul 07, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Unfortunately, not much will help the vomiting except time or motility meds. Once change at a time is often necessary to figure out what's working (and that is the hardest part when you're desperate.) The compounded prevacid is notoriously unstable, so you may see results for the first 2 weeks, then it goes back to square one (it's only good for 2 weeks, though ins often won't pay for it to be filled more than once a month.) The solutabs or capsules are usually the best bed if your little one is oral. They're stable and a heck of a lot easier to administer.

It took us about 6-8 weeks to get the full benefits of Prevacid, though we saw improvements along the way, but it took the 2 months to have a happy baby for the first time. My dd vomited quite a bit, up to 4 hours after last feed. It's amazing how some an thrive when they only seem to ingest half or less of what they intake. If she's choking, has your MD recommended thickening the formula? Some mom's have used Simply Thick, ThickIt or the like which adds no calories or nutrition, just makes the liquid thicker. We used oatmeal cereal (just a note on the cereal - rice seems to be VERY hard on gerdlings' tummies.)

We also used Maalox for breakthrough pain, though you'd have to ask your MD or pharmacist for dosage instructions or if they even recommend it. Some MD's are okay with it an others are adamantly against. Probiotics are something else you can look into. There have been some studies, though inconclusive or not statistically significant or something, that this helps GERD and related digestive dysfunction. My entire household is on them and we've seen a lot of benefits to them.

You'll get a lot of support and good advice on the forum. These are only a few things to consider.

Jul 08, 2009
daburkevp
Prevacid Dosage?
Thank you so much for your responses! A couple of you mentioned not liking the compounded Prevacid... I dont either! Anyone know what the usual dosage might be for her?? She is 10 weeks old and weighs about 9 1/2 lbs. Slimfast- funny you mentioned the probiotics, I just ordered some called BioGaia. What are you using?
Jul 08, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Some kids that age are taking as much as 15mg twice per day. I'd really push for a non compounded form and for it to be dosed twice per day. You can also call the pharmacy and give them her weight and get the dose for her to take of Mylanta. That way in between PPI doses you can give extra relief.

Just be careful NOT to give the PPI and Mylanta at the same time. They need to be given 30-60 mins apart from each other.

Jul 08, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
I'd looked at BioGaia, but it only says that it contains L. reuteri and nothing else. If I could have found a tear sheet with ingredients, I may have purcahsed it. Our ped steered us toward the Klaire Labs probiotics (from prothera). The one we use has 10 strains, but I've seen ones with 14 strains of different bacteria. The best ones require refrigeration. I was told that the more strains you can get, the better.
Check with your
doctor first!