|Jul 04, 2009|
Yianni was born 09/08. He has MSPI. He was diagnosed with GERD at two weeks. He is currently taking Prevacid three times per day (7.5, 7.5, & 15). He was on Reglan for eight months and was doing much better. We took him off because of the hype. Now we are riding the reflux roller coaster again.
Prevacid without Reglan=Madness!DS's GERD was never completely controlled, but we were at a place where he was happy, sleeping, and getting better. I took him off Reglan one month ago. He was taking 1ml three times per day. My neurologist (for migraines) scared me and advised me to take him off the drug immediately.
GI agreed (he is DS's second GI) and took him off cold turkey claiming that DS was on a small dose.
DS hasn't been the same since. He is irritable, cannot sleep longer than 3 hours at a time, is refluxing more than ever, banging his head, grabbing the back of his head, pulling his legs to his chest, is constipated, and seems to be sad.
My theory is Prevacid gives him headaches and abdominal pain. Reglan helped with those side effects. I think this because I used to take Reglan for the nausea and flu-like feeling that migraines can cause. It always made me feel so much better.
GI doesn't agree with me. I tried to wean DS off of Prevacid, but it was a nightmare. DS is MSPI and I thought maybe the medicinal grade lactose affects him. GI lectured me as to how this isn't so. DS is super sensitive and cannot eat anything (anything new we introduce causes GI upset). He is on Elecare with Earth's Best Oat cereal. GI wouldn't give DS another PPI (claiming Prevacid is the only one for infant use). Instead he gave DS Zantac. We ended up at the ER because DS was happy episodes where he seemed out of it and he was so irritable (along with vomiting, etc.) CT scan, u/s, and xray revealed he is fine.
Tonight I caved and gave him a bedtime dose of Reglan. I really felt for him. He is sleeping like he used to! Finally. I don't know what to do. Start giving him the Reglan again or find a new GI with experience and knowledge of other PPIs. His pedi has been on vacation and will return next week. We have an appointment, but I'd like to have some options in mind before we see him.
Any advice? Insights? Anyone else with Prevacid trouble? Reglan withdrawal?
|Jul 04, 2009|
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
|I would find another GI. I know about all the warnings about reglan but it can be a life saver for these kids. Besides, your little one was on a low dose. Many kids on here have to be on very high doses and do just fine.|
Bottom line is that you know your child and what is best for him. Stay with your gut and find a GI that will support your needs and your wisdom.
|Jul 04, 2009|
|Clearly the Reglan helps your child. So If your not seeing any adverse side effects and It makes his life better than by all means I would keep him on it. I have had a horrible time finding the right medication and combination of medication, but we seem to be doing ok for now- on Nexium and Miralax. We had been on Prevacid, Prilosec, and Protonix. It has taken almost a year of experimenting but we are finally leveling off to a manageable level. Don't give up, hold your ground and if you can't convince your GI that you KNOW what is working and what is not, then find a new one asap. I have a better relationship with my Ped so sometimes when I dont think the GI is being helpful I call the Ped and plead my case. Sometimes it works and sometimes it doesn't but at least I feel like im doing something. Good Luck!|
|Jul 04, 2009|
PAGER Volunteer Services Coordinator
Melina 7/24/02 now reflux free!!
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
|Did you wean him off of the reglan or just completely discontinue it? It may be that he needed to be weaned off since he had been on it so long. We found this to be true for our daughter. If he has constipation from coming off then that could be causing a lot of the problems too with regard to stomach pain and additional refluxing. We had to add Miralax to our daughter routine when we weaned her off of Reglan. |
From personal experience Prevacid does give ME headaches but only in the first ten days or so of taking it. Of course that doesn't mean it gives everyone headaches but it could def be causing your little one problems. I have also talked to many parents who believed their kids have also had problems with the fillers in the prevacid. Or it could be the prevacid itself causing the issue. I don't think you are wrong in considering that!!
It does take a while to find the right trial and error of meds. I think there are younger kids on Nexium on the forums so you may want to ask about that as an option. Most informational packets I have seen say for one year old and up.
I hope you find something that will help him to feel better soon!!
|Jul 06, 2009|
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
|I agree witht he other moms...Reglan is a great drug for some kids and they see NO side effects. My son was on it for 6 months and until we upped his dose he had no side effects and it REALLY helped. Unfortunately we did start to see side effects at a higher dose and the lower dose just wasn't working anymore, so we did discontinue it, but it was great for us or a while. I think it just needs to be carefully monitored, but it sounds like your son needs it.|
|Jul 08, 2009|
Mom to Matthew, 01/16/08, GERD baby, has been on Zantac since 2 mos. Aidan, his twin brother, no GERD. Max-ed out on Zantac at 1ml-3 times/day, and switched to Prevacid 15mg split tab 08/20/08. Switched again to 20mg Prilosec 09/18/08 due to Prevacid's restlessness/headache side effects. Reflux was out of control again and had to switch to 10mg Nexium 02/11/09. Good result so far.
|My son had horrible withdrawal side effects when we stopped Reglan cold turkey. We had to use Reglan, 1ml 3 times/day for about a month or so, when Prilosec seemed to stop working for him and before we got the ok to switch to Nexium. He definitely slept better with Reglan but I noticed he was drowsy during the day and not himself at all. Once we switched to Nexium, his GERD symptoms got much better and then we decided to stop Reglan. I wished I'd knew and weaned him off it slowly instead. He continues to do well on Nexium and probiotics so far. We had tried Prevacid but he was restless and couldn't fall asleep at night as well as nap time. My GI told me that Prevacid is great for many kids but some can have adverse side effects like headache. There're other PPIs to use. I would definitely look for a 2nd opinion or another GI or pedi who can help better.||Check with your