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Jun 30, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Reflux or Something Else
So you guys know that I have been battleing another drinking strike with Ryan. This has happened 4 times since Jan. Each time he has a red raw throat with a canker sore on the right tonsil and looses his voice. I have always assumed it was the reflux. His new doc isnt convinced. She thinks it might be a recurrent viral infection that keeps settling there. What do you guys think? Do your kids expirience red raw throats with canker sores when their reflux is out of control? I assumed this bout was because he was getting his molars so the acid level was higher and the Prevacid couldnt keep up. Maybe not? I dont know what to think anymore. I just know I want to fix this, get him drinking and stop the IV cycle. The gtube is starting to come up in conversation so I am getting really nervous.
Jun 30, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
This may sound crazy, but my hubby gets canker sores all the time. (he also has GERD) and I got him onto a supplement called deglycyrrhizinated licorice. He hasn't had one since (started about 3 months ago, and he used to get at least one big one that would has 3 weeks, have a week off, and get another one) Just a thought - it's not proven to help, but it may be worth a shot. The one he's using is from prothera called ViraThera CF
Jul 01, 2009
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
My experience has been that, while reflux is not always the direct cause of my little one's troubles, it seems to always be a contributing factor. In other words, the reflux seems to weaken or strain other systems. I can easily see where problematic reflux would create an environment in both the throat itself, and the immune system, that would allow a recurrent viral infection to take hold.

I don't know how available it is in you r area, but I just really want to urge you to explore the possibility of alternative therapies, if you're comfortable doing so. Chinese Medicine/Acupuncture, Craniosacral Therapy and Homeopathy have so much to offer little ones who suffer from the effects of reflux with very little risk, side effect or invasive methods. I know it isn't the path for everyone, but after the miracle we experienced when Lorenzo went from 2 years eating virtually no solids to eating like a normal toddler, I guess I just want to share that potential with others. He is still not reflux free, but most of the problems he was having that were exacerbated by reflux -- poor appetite, poor swallowing, weakened immune system, recurrent ear infections -- are completely gone.

It is so hard to know which way is up (no pun intended) when it comes to reflux. It's easy to get tunnel vision, assuming that everything comes back to reflux, because so often it does, but it is always wise to widen one's vision and explore other possibilities. ((HUGS)) I know you are going through an especially rough time right now, and you and Ryan will be in my thoughts and prayers.

Jul 01, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I would consult with an ENT. Does he get many ear infections? Katie had tubes, adenoids and tonsils out at 18 months and it made a huge difference.

Sometimes the adenoids and tonsils can be breeding grounds for bacteria. The reflux that comes up is full of bacteria which is why reflux kids have so many sinus, ear infections etc. Katie had constant sinus & ear infections before we took them out.

Last time I was at the GI they told me that there had been a study done regarding this. It proved that the refluxing caused bacteria to accumulate in the sinuses which causes many infections.

Jul 01, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Ryan had chronic ear infections from Nov through March. The tubes finally got put in in March and he has not had a single ear infection since. God bless the tubes. At least that is one less issue to deal with. I saw an ENT last week and then on Saturday when we were in the ER getting fluids. Both ENTs and the doc are very hesitant about taking his tonsils given he is only 13 months old. Min age they will consider it is 18m. Plus they are concerned that since he has such a strong mental association with fluids and pain that the pain from the surgery might turn him off of fluids for good. I pulled up Marci-kids website again this morning and they do talk about teething flaring things up and when it flairs it can cause tonsil issues. I just called the GI and left a message to see if I can add Zantac to the mix till he gets over the teething. I hope he agrees. I am considering packing him up and driving to Columbia to the Marci-kids doc if this doesnt turn quickly. I am very uneasy about the path we are on. He was a gaggy mess this morning. I know the 10:30 pm bottle it not helping the morning gagging but if I dont give it to him he would even further behind with his fluid and calorie in take. I dont know what is worse. I wonder if adding PreRelief to the milk would help?? I definately am open and willing to try alternative doctoring... Chinese Medicine but I dont know how to find one in Des Moines. I have looked in the yellow pages and the internet and I am not finding anyone. They have to be out there though. This is a decent size town. I am actually dreading the long holiday weekend because I wont have my daycare to give me a little mental break during the day plus my daughter is going to want to do all sorts of fun stuff, as she should, and I am so nervous about doing anything that will take him out of his routine. I wouldnt even let my husband take him to his great grandmas place for her birthday today. Trying desperately to stick to routine.
Jul 01, 2009
jgbennett
Ginger Bennett
Mom to Stanton, 6/12/2008
dx with GERD at 7 weeks. dx with EE at 21 months
Past Life - Early Intervention Specialist and Eval Team Member
Yes - my ENT is refusing to consider looking at adenoids/tonsils until 18 months too. My little man is 12 months and we finally got tubes this morning! I was so frustrated after waiting on this ENT with the "great" reputation to only find out he wouldn't listen to my whole story and how I feel the reflux does contribute to the infections and throat, etc. I completely know that feeling of walking a tight rope, as I'm on one also! I keep thinking that each doctor is a step in the right direction. Thinking of you!
Jul 01, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Isn't that the hardest part? The sticking to a routine is so key. I can guarantee a stomach ache if we do anything off the normal day. In the summer by boys want to be going going going - it has been hard on Katie. Hang in there.
Jul 01, 2009
mommato3
Hang in there momma. That is the hardest to me and most depressing is feeling so confined to our home. I have a 3 and 5 year old but anytime i have to feed Holden outside of our home or off our routine he doesn't eat. So we have to stay on our routine. It is hard on the whole family as EVERYTHING revolves around his feeds, etc. I do think reflux can play a part in all this stuff. I too tend to blame reflux for everything, but it realy does effect everything. Reflux can cause sinus infections, etc. and is so hard on their bodies. I am convinced Holden's tonsilitis was reflux related. It happened during a teething and reflux (choking on it) flare. Had to get the chest x-ray and do breathing treatments. I believe in some form or fashion this GERD flare up was related to the tonsillitis. Hang in there.Hugs!
Check with your
doctor first!