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Jun 27, 2009
sreece5316
Mom to William, 8/04 (perfectly healthy!) and Alexandru, 11/07, with laryngopharyngeal reflux and bronchomalacia
vigilantmom -- laryngopharyngeal reflux
Hi there, I still don't know how to get separate paragraphs here so I'll post a link at the end. My little guy was found to have NO evidence of any reflux or inflammation in his esophagus when his GI doc scoped him at 14 mos. He continued to have some mild problems with occasional stridor/gulping, a chronic horrible cough, and choking/coughing with liquids -- seriously though, fairly subtle symptoms, he's always *looked* like a happy little chunky monkey with a good appetite, no pneumonia or asthma. So we never went back to the GI doc but he referred us to a feeding specialist who thought he was still just a little uncoordinated. I decided to take him in to an ENT because he just didn't sound quite right to me (I'm an anesthesia resident so perhaps a bit hyper-aware of airway stuff) :) and she actually suspected that he had a laryngeal cleft -- did a complete airway eval under general anesthesia and found evidence of severe acid reflux in his larynx, trachea, and bronchi. So he basically has what's called "laryngopharyngeal reflux," where the acid is not affecting his esophagus, but it's doing a number on his airways. It seems like this is something that's fairly "new" in terms of diagnosis, and most people/kids with acid reflux problems have what's considered GERD, some have LPR, and some have problems with both. Treatment is the same but it can take longer to clear up the airway inflammation than the esophagus. Here's a good article I found, if you google the term "laryngopharyngeal reflux children" you can find a lot of other good info too but this is the first one to pop up. http://www.entnet.org/HealthInformation/laryngopharyngealReflux.cfm
Jun 27, 2009
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Thank you so much for this information. It continues to amaze me how essential it is as the parent of a child with health issues to become educated on all related medical topics. I wish had known to look for information on this years ago, because it fits Lorenzo to a tee. It also makes me realize that I probably suffered from this as a child, which helps me to understand the length of the road we may be on in dealing with it. Thank you for sharing the link.

And by the way, the simplest way I know to make paragraphs here it to type a < followed by a p followed by a > with no spaces... :)

Jun 27, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Awesome info!!! Thanks so much! Ryan goes hoarse then looses his voice when his reflux it ready to hit rock bottom. Thought maybe that would classify it as laryngopharyngeal reflux.
Jun 29, 2009
sreece5316
Mom to William, 8/04 (perfectly healthy!) and Alexandru, 11/07, with laryngopharyngeal reflux and bronchomalacia
Just have to try the paragraph formatting. :)

I hadn't really heard of the concept of LPR either, and apparently there is some amount of "head-butting" between the GI camp and the ENT docs about how to precisely diagnose it and how separate it really is from "regular" GERD. I'm still kicking myself for not asking to re-start Prevacid months ago (after I had taken him off it), but I was completely reassured by my little guy's normal EGD -- and so was the GI doc, who really didn't have anything else to offer us.

We're just hoping that the prevacid will allow the little man's larynx to heal up, so he can have more control over swallowing.

Jun 29, 2009
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
My 6yr olds last two scopes were clear of eos. in his esophagus, one had a little esophagits. After the 1st clear one, the GI doc said he had no more reflux, so we took him off meds...big mistake, it came back with a vengeance(sp), anyways, the next scope was done because he got so miserable, doc said it was worth taking a look...everything was clear, so the GI doc said to us then that a clear scope really doesn't mean anything in terms of if you have reflux or not, just means theres no damage which I took as good news. On another note, he said some people have a lot of damage, but don't present with much reflux symptoms, it seems to be a very sneaky disease. My 9yr old was just diagnosed, but only had the sinus issues up until last year, then got severe stomach and throat pain. I think I've had it my whole life, but finally through seeing my kids symptoms got to realize I had the same symptoms, and got myself an endoscopy which did show very bad esophagitis, but mostly I've always just had sinus problems and asthma, only occasional nausea that was dismissed by many doctors I've seen as post nasal drip until one ENT told me post nasal drip doesn't "cause" nausea, might irritate it but not be the cause...finally a diagnosis.
Check with your
doctor first!