Posted By Posting
Jun 18, 2009
mommy2k
changes happening
Well I posted a few days ago about Kody stridoring. I turns out that he has what we believe is croup but it took other docs telling us that not our ped. We were suppose to get an x-ray done to make sure nothing was wrong because we couldn't find a reason for it but now with the fever we clued in. It's been a rough week with him. Well the gi called me personally yesterday. I was crying on the phone to him and he was so compassionate and caring. He said that since Kody is still fussy and won't sleep at night that he wants to totally rule out the allergy thing. So he wants us to try neocate. We picked up a two week supply of it at his office today. He wants us to try one new thing at a time too. He also told me that prilosec can give tummy cramps and diarrhea which is what I was suspecting with Kody. I didn't give him his doses yesterday or today and just gave him axid and he's finally eating. He's also sick so we're not changing anything else yet until he feels better. I also think that if I have to stop breastfeeding anyway then we're going to try the nutramigen first for two weeks. Then if we don't see improvement then do the neocate. We don't see the gi for 2 1/2 months anyway. But I know that he's totally all about just making Kody feel better so he's okay with whatever we choose as long as we can get him take it. Which tonight he did drink the nutramigen but I was bad and put hersheys strawberry syrup in it. My hubby is bringing home some vanilla flavoring home from his work which is safer I believe. We weren't planning on giving the formula to him tonight but he kept getting frustrated bfing because there wasn't enough for him so I got that out put the syrup in and he sucked it down. A whole 4 ounces after he already breastfed a little off of me. I'm feeling pretty sad about having to abruptly stop bfing and hope that Kody won't get to stressed and me. It sucks but if it makes him feel better I'm all about doing it. I just know that it's a comfort thing for him but he didn't seem to mind tonight with that bottle. Maybe it's more of a comfor thing for me too. I just hope I'm doing the right thing. I guess I'll still be pumping if none of this works for us. We're crossing our fingers because we don't want to go through a bunch of testing with him. Do you think that flavoring the nutramigen would be a bad idea? My thinking is that if that's how we can get him to take it.
Jun 19, 2009
adelines mom
be careful with the strawberries! gave adeline a #2 fruit mixture with strawberries in it and she refluxed like crazy! read later not to introduce strawberries until a year old. thank you gerber! we tried karo syrup and then later prune juice in her bottle to help with contipation and they both made the reflux worse! just thought I would pass this along.
Jun 19, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Pretty much most kids will take the elemental or hypoallergenic formula without flavoring eventually. I'd be careful with flavors as you're not sure exactly what's going on yet (there are so many hidden allergens, and a lot of the flavorings are high fructose corn syrup, so if there's a corn allergy, it's off the list to eat). It's so frustrating. I still say mix BM and formula - most kids do fine with the switch and their taste buds aren't going to be affronted by what we consider nasty. Sounds goofy, but my dd never wanted the formula heated up - she wanted it ice cold. Made it easy for us, but we couldn't figure out why she woud;nt drink the warmed bottles. So it could be a temperature thing to try instead of flavorings. HUGS mama - you're doing everything you can. Keep trying, and just keep the chin up - it will get better.
Jun 19, 2009
mommy2k
thank you for those tips. I don't want to do the strawberry syrup it was just a desperate attempt last night because he was hungry and tired and fussy. So we tried that. My hubby and I don't want that to be a regular thing. We're going to try other safer methods to flavor it. Clue me in if anyone thinks this is a bad idea to flavor it? He's 6 months now so we're having a hard time getting hiim to like formula and especially this nasty formula. :( I can say that the nutramigen tastes and smells a tad bit better then the alimentum if that's possible (lol). thanks everyone!
Jun 19, 2009
mommato3
I've told you before we have to flavor Holden's. His nutritionist suggested this as he was not taking in enough otherwise. He won't take his bottle anyway awake but while he was asleep he would just push it out of his mouth after a few sips. We were getting worried about dehydration. We tried mixing in breastmilk with it but my milk supply was drying up (He had b-feeding issues b/c of his jaw as well as allergies) so I didn't have much to mix in there and then he would get really agitated I guess b/c he loved breastmilk taste and this was just a really "off" tasting breastmilk. Anyhow, he did like the syrup. Ours doesn't have corn in it. The down side is that you are adding stuff that you prob. wouldn't want him to have (sugar, maybe corn syrup depending on the brand used, or if you use sugar free-which we do b/c Holden can't tolerate the extra calories-splenda) I agree eventually most kids will take it eventually-mine took alimentum straight eventually. It was the elecare that was the problem even the vanilla flavored. He would rather starve than take it. He will take it though with the coffee vanilla flavoring added though. So what we are now doing is slowly adding less flavoring. Our nutritionist says it is fine if you have too and some of these averse kids would rather starve to death than eat anyway much less if it something that tastes bad. Anyhow, that is what we're doing. I would just say watch for allergies.
Jun 19, 2009
adelines mom
funny, Adeline will only take a very warm bottle! if it is the slightest bit cold, she will NOT touch it!
Jun 19, 2009
mommy2k
mommato3- That's pretty much what Kody was doing with the alimentum and breastmilk mixed. He would get really ticked and eventually he just decided to all out refuse it. So I don't want him to not get in enough during the day. My thinking was the same way as gradually putting less of the flavoring in it. But everytime he tastes the breasmilk he's going to want the real thing. I also can't ever tell if the new formula is working because he's still getting the breastmilk. It's good to know that nutrionist said that it was okay for Holden to take it flavored. I will be careful about the allergies. The gi also gave us the option of getting the flavorings the add in at CVS pharmacy. So we might try that as well. I'm going for the most natural flavoring I can get. He's pretty stubborn about formula anyway. He just likes his breastmilk. I don't blame him. This formula is nasty. If it doesn't work flaoring it then we'll go straight to neocate which hopefully he'll take better. I'll keep everyone updated on this. I don't know when we'll be starting it because he's still not feeling great. But he's definitely gettting better. He's a lot happier today and more content.
Jun 19, 2009
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.

Nutramigen has milk proteins in it; am I remembering correctly that he can't have milk?

Katie was on Alimentum and switched to EleCare which tastes MUCH better (not great mind you) and immediately drank more of it for taste. She also when her reflux was at its worst would only take a bottle that was hot, I mean HOT! I think it felt better on her throat.

Nestle Quick in powder does not have strawberries or corn syrup in it and we did use it for Katie when she wanted to switch from unflavored to vanilla EleCare. It is full of artificial stuff likes dyes though. Have you considered the vanilla neocate or elecare not made to 30 cal an ounce?

Jun 20, 2009
mommy2k
We suspect that yes he has a milk protein intolerance. The gi only said to do the neocate because he said since he won't drink the hypoallergenic formulas. I don't think the neocate is any better. It's all trial and error for us. I don't work and my hubby by no means makes a great deal. So that's pretty expensive stuff for us and if we could find a way to get him to drink either hypoallergenic formula then so be it. I don't know. I think that my hubby is just going to have to take a few days off of work and we need to tag team giving it to him straight up. It was hell last time. The only reason that we didn't get the vanilla elecare is because the gi didn't have it and he gave us two weeks worth so we didn't spend money on it.
Check with your
doctor first!