Posted By Posting
Jun 18, 2009
jean9
too old to outgrow reflux?
My dd Libby is 2, FTT with reflux and suspected DGE, taking prevacid, reglan, miralax--no other health probs.

Have avoided gtube placement, fundo, etc for 8 months now. Last GI appt report was "good" since she's gained a lil over 1.5 lbs in two months, so he says keep waiting...

FOR WHAT? Can she actually get better without gtube or other surgeries?

GI says sometimes kids will reach an age when thet decide they want to eat like their 'peers'--when? 3? 4? 8? 16?

currently she drinks pedisure BULKED with duocal and corn oil, and only tastes solids-swallows little. Her pediasure volume is bad---like 15 oz/day--and still somehow gaining weight!

Still, is it possible to outgrow reflux after age 2? 3? 4? I can't see her being 3 yrs old and trading in her bottle to scarf down a slice of pizza!

I've just been keeping her head above water waiting for her to sink or swim... Sink: we're forced to surgeries or Swim: Praise God! She gets better!

Are we praying for a rare miracle?

Jun 18, 2009
rissaroo
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
(((hugs))) It's totally possible to outgrow reflux and feeding issues! There are a lot of mommies on this board who, like you, have been through feeding issues and FTT and their kiddos are now doing great. They are so helpful and I'm sure you'll get a lot of good advice from them! I have a son who seemed to outgrow reflux, only to have it flare back up again at age 10 and 11. He's now 12 and back off meds and doing great. My middle child had reflux at 2 and 3 but outgrew it and has had no sign of it since! From what I've seen, it seems much more likely that your child will outgrow it than that she'll continue to have problems. It just *seems* like it will never end when you're in the middle of it! It's so up and down and it seems so unpredictable and it really feels like things are never going to improve...I remember feeling that way myself! It's a nasty disease because of how up and down it can be, but it really seems like most children outgrow it. It's great that the last GI appt. was good, and that she's gaining weight! Maybe this is the beginning of the end of the reflux for you...expect it to be up and down but know that the chances are excellent your child *will* be scarfing down pizza before too long. I know you'll be getting a ton of excellent advice from parents with kids who have been there, done that (or are doing it now) but I wanted to say...hang in there, it will get better! I'm sure when she's all better it will feel like a miracle (it felt like that for us!) but it's not at all rare for the reflux monster to pack its bags and finally bugger off!
Jun 18, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
have you ever tried any OT or feeding therapies? that might be something you can look into. all states have a program like early steps or early intervention and it is free for evaluation. i think she might benefit from something like that BEFORE doing surgery. talk to the dr about the pros and cons of doing a program like that *hugs*
Jun 18, 2009
jean9
reply re:tx
Yes, she' sbeen evaled. through our New york state/county EI program, but doesn't qualify since she has no other probs. or dev delays severe enough. we've tried some OT/feeding therapy here and there... some helped, some backfired---there's still a physical/medical piece we can't push too hard against... i.e. insisting she eat more when she's refusing/reached her volume limit and then inducing vomiting, behavior probs, etc... we're so afraid of ending up in surgeries, so we're trying the reglan, but are afraid of that too-- with regard to possible permanent side effects that can show up later after withdrawing it... true? fortunatley we see none now and her dose is high... 1.5 ml 3x/day for her lil 20 lb. body.
Jun 19, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Jedd was taking way more reglan than that at that size. He was taking around (it's been a while LOL) 2cc 5x's a day.

I would look into some type of feeding clinic that deals with multi disciplinary issues. Meaning, they are trained to work with feeding issues with kids with medical issues. You are only going to be able to push he feeds orally soo far, I mean, the food has NO where to go KWIM You can't make it go any faster.

Sadly, if you do under up doing a G tube, you will probably end up on continuous feeds due to that DGE. Most kids with DGE end up feeding for 16+ hours per day. They just can't tolerate the rates any faster, they puke it all up.

JMHO here but I would never consent to a nissen on a kid with DGE issues. At all. We didn't on Jedd. No way was I gonna do that. It leads to all sorts of other issues.

There are other things you can do. I know some who have had success with Botox injections into the Pylorus. As well as some that have had a Pylorplasty done to surgically open the pylorus. So, there are other medical ways to deal with DGE. BTW I *think* both the injections and pylorplasty have to be done again, they are not a permanent solution. :-(

I would seriously look at getting in to a clinic of some type. They can do wonders.

Have you tried to get a consult out of your area at a major children's hospital that specializes in motility issues? I'd also start there as well. Ins. Co. will normally approve those if you don't have that service available in your area.

FWIW Jedd is 2.5 and he hasn't outgrown his GERD. It has gotten TONS better but he still needs his meds. We have no plan to wean him any time soon, not with his past history.

Also, have you had a scope done???? You could be dealing with something other than GERD. There are disorders that mimic GERD but are NOT GERD. KWIM. If you get a scope done, you will be able to know lots of things. One of the easiest tests that will give you lots of answers too.

Jun 21, 2009
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
I know that not everyone feels comfortable trying alternative therapies, and most are only effective if you are fortunate enough to find the right practitioner, but I will share my own experience in case you are interested.

My son has GERD and, we believe, some muscle tone issues in his throat that contribute to problems swallowing and obstructive sleep apnea. He was still not eating solids as he approached his second birthday -- like yours, interested at times in tasting, but rarely swallowing anything, and often gagging and choking when he tried. We had already tried going to two Chinese Medicine Practitioners, and were doing craniosacral therapy, but had only seen limited improvement. Then we found a CMP who specializes in pediatrics, and we got our miracle. Literally after one treatment (which did not include any acupuncture) DS began eating. She taught us some things we could do at home (mostly massage/acupressure) and he takes an herbal compound and sees her once per month. That was three months ago, and he has been eating like a normal toddler ever since. He still has reflux, but his feeding issues have evaporated.

Obviously every child's circumstances are different, and every practitioner is different, but there are alternative treatments out there that can work for some kids, and since most are far less invasive than surgery, they may be worth a try.

Jun 22, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
((HUGS)) to you!!! My daughter outgrew her GERD at 3 years old. Yes, later than the statistics suggest but definitely possible. My youngest (she is four) still has GERD and her GI also believes that it is possible for her to outgrow it as well.

I agree with pp's regarding feeding clinics. It might be a good next step.
Check with your
doctor first!