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Jun 15, 2009
jandjmommy
4 month old son please help
My son was born 2/7/09 at first we had issues with him eating every 45 mins for 5 mins at atime. thyen 15 mins after he would gag choke and stop breathing. they dx acid reflux but he never spit up or burped... they put him on zantac 1 ml 2x daily he stopped choking but would scream in pain he also would moan all night fidgit cry eat every 45 mins until he was 7 weeks then i was told to get off dairy. it worked for a little he started eating longer and sleeping longer. then at 9 weeks he stopped pooping he went 15 days with no bowel movement we were sent to a pediatric gi he ended up doing an enena xray said there is nothing he sees put him on lactulose daily to keep him going regularly. since then he's been screming in pain ripping his head off my nipple arching his back. dr put him on prevacid for 18 days he did well but would choke again while eating went to a speech therapist said he has no swallowing problem it's something internal. prevacid ran out dr said back on zantac screaming in pain again now. now the last 2 days he will barely eat. he ate for 7 mins at 8 am then 4 pm then 11 pm. he nurses at night while sleeping ok though. but if it was the reflux wouldn't it hurt to eat laying down? i'm so confused. gi says if he doesn't gain 3.5 oz in 1 weeks we will go for an endoscopy. does anyone have any ideas what is wrong with him/. b/c the dr's can't figure it out. and the gi keeps blowing me off please help me!!
Jun 15, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
Sounds like both drugs are beneficial to your child...There are several kids on the board who do Prevacid and Zantac..they just have to be administered a few hours apart. I would ask the GI about trialing that. If the GI is blowing you off, find another one.
Jun 15, 2009
jandjmommy
We were on both however he's still screaming in pain it's been over 2 weeks now gi says it's pointless to be on both and took him off of zantac. now just on prevacid and lactulose to help him poop. but it doesn't seem to be working. gi thinks i'm over reacting pediatrian says i'm reacting appropriate for whats going on. i live 4 hours from any other gi. i drive an hour to get to his current one. he hates the car screams bloody murder the whole ride i feel so bad!!
Jun 15, 2009
mommato3
50% of kids that are allergic to dairy are allergic to soy as well. Remember -there are hidden proteins everywhere. so I would try to eliminate soy and dairy proteins. It will take a couple of weeks on this diet before things get totally cleared out of his system to know if it is going to work. Could the lactulose be causing him a problem? There are other things they can do? Have they done anymore testing? I would want an Upper GI, swallow study, and the endoscopy. The upper GI and swallow study are non invasive tests that are relatively simple and can give some good ideas of what is going on internally. I wouldn't take anyone's word about a swallowing problem. The swallow study will tell for sure. If they do a scope make sure they take biopsies. This will give you an idea about food allergies. What is his weight and what is his dose of Prevacid? Maybe the meds weren't dosed high enough. My son chokes and it is reflux and he has had 2 swallow studies and another type of swallow exam (FEES study) to make sure about his swallow. This last swallow study showed dysphangia of the pharangeal phase which means that he can swallow fine but that getting the food from the mouth to the back of the throat is a problem. They told me b/c of his aversion he pockets the milk under his tongue and then has a big amount to swallow at the end and that chokes him as well as the reflux. They could see all this on his swallow study. I would make your GI order some more tests to find out what is going. They may need to check more into motility as well since he is having trouble with his bowels.
Jun 15, 2009
jandjmommy
he weighs 16 lbs 10 oz. he's big however he used to nurse every 45 mins for a long time. then every 2-3 hours but likie i said then started screaming in pain so he'd eat more often for less time now he's not wanting to eat at all. i can't stand the pedi gi we are seeing i'm trying to get one in miami which is a hell of a drive but worth it. he has had no other tests. i am off both soy and dairy. and i look on every single ingrediant i can't eat out b/c i dont trust anyone. he has a horrible allergy to dairy. his eyes swell up and he gets a rash all over his eye brows turn red and his skin flakes off it's so sad!! i am very careful with what i eat. alot of meat and veggies and fruit. white rice etc..
Jun 15, 2009
mommato3
That is awesome that you are so careful! I know it is so hard to find anything to eat. There is another mom on here (mommy2k) with a 6 month old breastfeeding who has to be on that elimination diet. What were his doses of medicines? We have to drive a couple of hours to the GI b/c the ones here in town are horrible. It is worth it though in the long run to find some relief for our little ones.
Jun 15, 2009
jandjmommy
he started at 2 weeks on zantac 1 ml 2x a day then he went to 1.4 ml 2x a day then off zantac on prevacid 7.5 1x day then off back on zantac 1.4 2 x day then back on prevacid with zantac same dosage then to prevacid 7.5 1 x day and zantac 1.4 1x a day now just precaid 1x a day
Jun 15, 2009
mommato3
Wow-lots of going back and forth. Well 7.5 mg is a VERY low dose of Prevacid. 15 mg seems to be the norm dose but some kids need higher than that. My son has been on 15 mg twice a day (AM and PM) for a total of 30mg since he was 4 months old-this is a high dose though. I don't know about the zantac dose although others on here have taken it but I know that dose of Prevacid is extemely low. I would see if you could do 15 mg. Also the Prevacid has to be given on an empty stomach (2 hours after a meal) and 20-30 minutes before eating or it loses its affectiveness.
Jun 15, 2009
mommato3
Another thought-Prevacid solutabs do have lactose in them which does bother some kids but most kiddos even the ones allergic to dairy (like mine) do fine on them but there are lots of other drugs. I would fight to get different doses of meds and if that doesn't work change drugs (Axid is in the same class H2 blockers as Zantac and Nexium is in the same class as Prevacid).
Jun 15, 2009
mommy2k
It does sound like you may need more testing done. I just wanted to let you know we're struggling with the same issues. My son is 6 months old and I still breastfeed. He did very well when I was off dairy for about a week and then back to the same old stuff. We haven't been able to find any relief for him. He's a bad sleeper and he is starting to eat less now. I'm going to insist on some testing be done at this point as well. My son is a big comfort feeder. Your story sounds so much like mine it's scary. You definitely are on the right site for help. These ladies have helped me through the worst and darkest times. I think I would've went insane a long time ago if not for them. I can't wait for the day of relief for my son and for us to get some sleep around here. Hang in there.
Jun 15, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
I agree with pushing for some more testing. This may sound crazy, but this is from our genius of a pediatrician (I wish she was my doc!!!) Magnesium and probiotics. Mg is essential to about a million or so enzymatic processes and helps to regulate the central nervous system (IE - less irritability!) AND increases intenstinal motility. My dd has chronic constipation (even before meds) and the combo iof Mg and probiotics was a lifesaver. We were on lactulose for months to no avail at all, I was about to buy stock in Babylax. I never changed a poopy diaper until 6 months old (I never thought I'd want to until I never had to). Unfortunately, constipation is a side effect of just about every H2 blocker and PPI out there. Go figure, right?

Ask your doc about adding these - it's at least worth a shot, right? It takes some time to work (just like meds do) but after a few weeks, I think you'll see a difference.

Jun 15, 2009
jandjmommy
all good advice thank you. i found a pedi gi that specialices in infants we have an appt monday it's 3 hour drive but worth the 2nd opinion!! go for his weight check tomorrow
Jun 15, 2009
jandjmommy
another thought... someone said lactose in prevacid.. he has a major cow milk allergy. i wonder if thats the problem...
Jun 15, 2009
mommy2k
My son did horribly on prevacid for whatever reason but I swear it was from the lactose in it. I would suggest switching to a different ppi. It's worth a shot. We switched over to compounded prilosec but now having trouble with it working. I think it's the instability of it. You could try nexium or I think that other drugs are out there as well. It's so hard finding the right combo. We still are searching for that combo for my son. We still give him mylanta at night mostly. Keep searching for that answer. It's hard to get a good gi and then when you do every one of them is so busy that they are booked up for months. Every time I call my gi he's not there and I get some other doctor helping us that doesn't know Kody at all. Good luck and lots of hugs coming your way.
Jun 15, 2009
jandjmommy
Can i give my son mylanta?? what does it do?
Jun 15, 2009
jandjmommy
After researching i think it is silent reflux and they need to up medicine. do you think any tests are necessary? or should they just up meds?? i'm going to pedi tomorrow and definetly going to a new gi!!
Jun 15, 2009
mommy2k
Mylanta is an antiacid and antigas otc medicine. It helps relieve tummy issues from reflux pain. I just called my pharmacist to see the dose to give him. My gi had told me not to use it for very long because of the magnesium or something else. So you should talk to doc about it too. I told the gi when they put my son on a drug that is stronger and better then I will stop using the mylanta but I won't let him suffer. I think the one test that should be done is the upper gi which shows the anatomy but we're in the process of looking into more testing. When you find a new gi they will suggest what testing is needed if they're a good one. It makes a world of difference when you find the right gi.
Jun 15, 2009
johnniesnewmommy
I feel for you. We are still struggling but it's a lot easier now than it was when my LO was younger. Now its almost 2nd nature. He to couldn't stand to be in the car and would scream like you were beating him the entire time. It is so hard to not go insane when they scream like that. In my case the Zantac was a lot of our problem. It caused him to just scream and scratch his skin off and pull out his hair. Never figured out why, whether it was from a migraine or just an allergic reaction, I'll never know. We switched to Axid and it was just as bad. So you may experiment a little to see if its med related or reflux. My baby chokes all the time too and his swallow study only showed a slight delay in swallowing- but nothing horrible, so I still have no real answer for that one. I would definitely ask for a higher dose of prevacid- especially since you said your baby was not small. Mine is really tiny and they had him on double the dose yours is on. We started using Mylanta when he was in real pain and it really helps to coat the stomach and makes him a much happier baby. Life is really hard enough when you have a child with reflux and good doctors, but it really stinks when your doctors are worthless. Hang in there and things WILL get better.
Jun 16, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Maalox and Mylanta are fine for the kids. My GI actually suggested using the one with Mg in it because of the constipation problem. It's used for what's known as "breakthrough pain." The reflux meds inhibit the absorption of many minerals, so the added aluminum and magnesium in them is fine. I was told by our ped, GE, and pharmacist that if constipation is an issue, use the mg/aluminum one and if diarrhea is a problem to use the one with bismuth. The reason you don't want to use it for long term (IE - years, not months) is that the antacid can eventually make the reflux worse, though short term use is okay if the benefits outweigh the risks. It's better to stop the damage now than try to heal it later. Carafate is often prescribed instead of the OTC antacids (known here as "super Maalox or Mylanta).

The lactose in the prevacid solutabs is very minimal, but there was at least one other mom on here that had trouble with it, so her son was put on the Prevacid capsules. There are other meds out there - Nexium, Prilosec are the other 2 PPI's most often prescribed, Zegerid is Prilosec mixed with an antacid, and the major H2 blockers are Axid, Zantac, and Pepcid. Unfortunately, the side effects of the H2 blockers cn be increased irritability, just and FYI. They may work, but we pulled the Zantac because in managed to increase the screaming. Our magic combo was Pepcid in the mornings and the Prevacid at night (and my dd's case was dx'd as mild, but she still needed both). HTH!!!!!

Jun 16, 2009
jandjmommy
wow, ok. I'm going to his pedi in a few minutes!! I'm so glad i found this site thank you so much everyone
Jun 16, 2009
jandjmommy
well he didn't lose much but he lost 1 oz and he was supposed to gain 3.5 this week so the endoscopy is scheduled for monday... why must they make me wait another week of pain!!! his pedi said i can up prevacid to 15 mg
Jun 16, 2009
mommato3
big hugs! Keep us updated. Remember you want see a difference in the med increase for a couple of weeks (maybe 2). We had to wait a couple of weeks for my son's scope. I know this is going to be a long week of anticipation for you.
Jun 16, 2009
jandjmommy
Thank you!! I am so glad I found you guys!! this has been so hard on my own even my husband thought i was crazy but what does he know at wqork all day and sleeping at night i'm the one up all day and night with him. Finally I'm not alone anymore!!
Check with your
doctor first!