Posted By Posting
Jun 12, 2009
markasmom
Failure To Thrive maybe due to reflux?
Hi, I am new to the forum and I hope to find some advice and share my situation. My 9 month old son (my second son) Markas was not gaining weight, arching his back and neck when sleeping, since he was 2 months old. Also he was crying when feeding, not eating much - therefore not gaining enough weight. Our pediatritian thought it could be reflux and a month ago we were sent to the GI doc. There we found (after symptom description) that he probably has silent reflux, he was put on Prevacid 15mg solutabs, twice a day. it did seem to work for 3 weeks, Markas had much better appetite and gained 1 pound during that time (which is the most he ever gained). but after few weeks it went down the hill again, he wakes up often at night, does not have any appetite, it is a struggle to feed him every time. He also seems to be allergic to many things (I am breastfeeding, I find out by mucus in his diaper). We know so far that he is allergic to dairy, soy. We are waiting for blood work to see if he is allergic to other basic stuff. He would not talke any formula. i tried one day for 24 hours - he was rather starving, than taking Neocate or Nutramigen. I have read that allergies and reflux are related, also, that they could be triggered by vaccines. I am fairly new at this subject. I am still not 100% convinced, that he has reflux, but we did blood, stool, urine work and everything else seems to be ok with him. I am going out of my mind as he has not gained 1 ounce for the last three weeks. Does anyone have similar situation, where Prevacid did not work? What else can we try? I gave him Mylanta couple times - and it seem to have worked better. thank you.
Jun 12, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
How much does your son weigh? It is possible that his dosage of Prevacid is not high enough. Everything you descibed regarding the arching, screaming, not sleeping, not wanting to eat definately sounds like reflux. May not be the only thing going on though.
Jun 12, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Welcome mama. I also was unconvinced my dd had reflux at first. First things first - if he has a dairy allergy, the tabs may not be the way to go. There's a trace of lactose in the tabs which can trigger problems. It's also possible that the dose is TOO high instead of too low. It takes a little trial and error. 30 mg per day for a 9 month old can be a lot. WE did Pepcid in the mornings and 15 mg of Prevacid at night.

Did the MD or pharmacist tell you how to administer it? If not (and I apologize if you already know this) the dose must be given completely empty - preferably 2 hours after last feed and at least 15 min before the next. It doesn't work well if that's not followed as closely as possible.

Reflux isn't triggered by vaccines, though the vaccination process (injection followed by pain and perhaps fever) and trigger a reflux flare up. Allergies are closely related since they can cuase reflux-like symptoms. What you describe sounds like typical GERD behavior though.

If he's refusing to eat, it may be time to consult a feeding specialist (usually a SLP) since he may associate eating with pain.

I'm sorry this is so slip-shod...I'm clicking back and forth of the Stanley Cup game and losing my focus!

Has your son been scoped yet? It could be that there is damage in the esophagus that needs healing before you see any more improvement. HTH - HUGS!

Jun 12, 2009
markasmom
Thank you for the reply. My son weghs 16 lb 8oz as of today (9 1/2 months old). our pediatritian said, that it is the top dose for him. I hope to speak to the GI doc in couple days - maybe he will want to do a scope. Yes, after I read some of the comments - it sounds a lot like our problem. Just I am a strong believer, that it has to be a reason for it. And therefore I am interested in finding that reason and fixing it, not only managing the symptoms. Has there been any reaseach to see why some kids have that problem? I gave Mylanta tonight and it seems to be working better, I am not sure how often I can give it to a baby. It has been so refreshing to find this forum. I dont feel entirely isolated with my problem. I wish I looked earlier..
Jun 13, 2009
markasmom
To the point about administering Prevacid: you could be right. I might have not done it very accurately. I will have to do it more accurately and see if symptoms improve. I am trying to make an appointment with SLP - I wander does the therapy help eating habits?
Jun 13, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
It's late and I work tomorrow but...
here's a couple things and I check back late tomorrow.

I wouldn't take the Peds word on the dosing. See the GI and get them to dose it, they went to extra schooling to take care of kiddos with GI issues so they should be the ones handling the dosages. The GI was always way more willing to go higher than our Ped. I love our Ped and she was very willing to say that Jedd's GI issues were way outta her realm.

As far as Mylanta, when and how much are you giving it and where dose the Mylanta does and your prevacaid lie together in time frame?? You can't give those two meds too close together.

You can also call the pharmacists and tell them the OTC med and your child's current weight and they can give you a dose over the phone.

One quick thing about an SLP, YES it works and OT can also work for feeding issues BUT....I'll tell you what we were always told:

A child with unresolved medical issues will not eat properly until said medical issues are resolved.

Translated to English, a child is PAIN will just NOT eat. You need to aggressively address the pain issue from the GERD in order to get the child to eat properly. It is best to get this done asap in order to have a better chance at "normal" eating.

Jedd's pain was allowed to linger WAY too long, and we ended up 100% dependent on a feeding tube. Now, you're not headed that way, Jedd had other issues as well. He was also WAY smaller. At 6 months he was only 12 lbs even. The least he could weigh and still go on the heart lung by pass machine. That was our number one goal, getting to 12 lbs. :-)

Jun 13, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Wanted to add that Jedd's first feeding tube was placed at 9 weeks old. He had barely gain like 1.5 lbs in that amount of time. SOOO not enough to live. We were dropper feeding him by that point because his heart just did not have the energy to allow him to eat AND breath. It was working way to hard just to breath. :(
Jun 13, 2009
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
At 5 months old, joslyn was diagnosed with "poor weight gain"by her GI Doc. She also suffered from Moderate Silent Reflux (found by a barium swallow and every other test came back normal). She also had breath apnea... so you may want to keep an eye on him for that.

Joslyn was having trouble breastfeeding as well... but we found a system that worked. I pumped for her most painful feedings and gave her the bm in a bottle. That seemed to help her weight gain. At 9 months Joslyn weighed 17 lbs 1 ounce. But a month before that she only weighed 15 lbs 9 ounces.

Hang in there mommy!

Jacky

Jun 13, 2009
mommato3
Hang in there! I just wanted to say that is how much Prevacid my little one takes and has been taking it since he was almost 4 months old and they told me that was an extremely high dose. We started at 7.5 mg and worked our way up. My son is not in any pain anymore. He has had scopes done on this high dose and no damage and we even had a probe that showed severe reflux but no breakthrough acid so to speek of. My son will still not eat however. He is totally slept feed and that takes at least one hour to give him a bottle. Sometimes two hours b/c I have to go slow. He gets choked on all his bottles, has sleep apnea, gags, and coughs all the time. We did find out he has some motility issues (stomach slow to empty). All that to say though is that while he isn't having pain from it, he is still very averse b/c who would want all that stuff coming up the back of your throat all the time. You lose your appetite. Also if he was just put on Prevacid a month ago he went for a very long time having pain so he prob. associated real quick eating with pain. I would ask for a few basic tests especially since he is on that high of a dose of Prevacid (yes, he prob. is maxed out on it but if needed a GI could throw in some other stuff-I know this b/c that is the dose my son is on at about that same weight). Tests needed-a swallow study (make sure things are going down right), an Upper GI, a scope (to check for damage), and the first thing our GI at Cincy does when a child doesn't want to eat is to do some bloodwork as well (looks like they may have done that though). You need to find out what is going on with your little guy and while our GI didn't even think twice about having to give our little guy that dose of Prevacid he also said that it warrants much further investigation to make sure we have a full picture of what is going on. I would check into early intervention through your state. They are wonderful. My son receives speech (feeding) therapy, physical therapy, and a nutritionist comes to our home. Our nutritionist is wonderful and has all kinds of good ways to sneak extra calories in these little guys. It is worth checking into.
Jun 13, 2009
mommato3
Just wanted to add that a scope with biopsies is what needs to be done. The biopsies are used to check for food allergies and hidden damage. Another mom on here has lots of experience of reflux mimicking food allergies as her son was diagnosed finally with EE. Maybe she will chime in. Also my son's scope showed his LES muscle was wide open. If your GI isn't being proactive enough in finding out exactly what's going on I would find another one. Most of us here have had to go to different docs until we found one to take things seriously. Some of us even have to drive to a couple of hours to get to a good doc. You have come to a great place for support.
Jun 13, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
I agree that you may want to discuss further GI testing like a scope with biopsy with the GI. I know my daughter was on what the pedi considered to be a high dose of prevacid and when she was seen by the GI and scoped they, in fact, had to double her prevacid to an adult dose to get rid of the damage. Some children break down these medication components faster than adults so may need higher doses than they are initially started on. You are right to seek the advice of a pedi GI.

Mine were both FTT, one was severe (almost requiring tube feeding) and one was borderline. They both responded well when they finally got on the right dose of medicine and were given a supplemental higher calorie formula to make up for the calories they had lost by refusing to eat. Obviously that wouldn't have worked until their pain was under control.

If it is allergies or something like Eosinophillic Esophagitis the scope with biospy should be able to tell them that. The treatment is different so it is important to know what is going on. especially once "standard" GERD treatments have not worked and your child is havign problems gaining weight.

Please let us know what they say and how he is doing. ((HUGS)) to you!! I know this is hard but you are doing a great job advocating for your child and getting him the help he needs to feel better!!
Jun 13, 2009
markasmom
Thanks for everybody's support. My heart goes out to all of you as it is very hard to see your little one suffer. I am happy, that some of you have been succesful with the treatments. I am now kicking myself for not taking the reflux problem seriously... GERD was suggested by our pediatritian early on, but the medicine they prescribed (I think too low of a dose) did not work, so I kept searching for other answers for Markas lack of apetite. He had 1 ml of Mylanta last night (did not give Prevacid) - and he slept very well till maybe 4am, then he started tossing and turning again - so he had one more ml of Mylanta. I don't remember when we all had such a good night sleep. I might not been administering Previcid very acurately (maybe too soon after the feedings) - maybe that's why it did not work. But Prevacid seemed to have worked the first three weeks. I will call our GI again on monday and request the scope with biopsy. I am also very interested what the allergy blood test will show. I also might have to consider changing our GI doc - he does not call me back. It is always his nurse. And our pediatritian tried to reach him all week long with no luck to suggest Periactin to stimulate Markas' appetiteI am not sure about that- it can cause liver inflamation. BTW our Pedi keeps suggesting, that Markas might need that tube. So far Markas is bottle fed with my breast milk, but because he seems to be alergic to many things - I try not to eat dairy, eggs, soy, even wheat, but this morning he had mucus in his stool again, and I am not sure what triggered it this time. As I said before - he does not take hipoalergenic formua. Did anyone had problem like that? Now that I found this forum I have clearer idea of what is going on with my son.
Jun 13, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I'd try to go a bit longer without getting a tube. They will use an NG (nasogastric) feeding tube at first and by doing so, yes, you will get in the nutrition But, it will make the aversion worse. The tube must go in the nose and down the back of the throat and into the tummy.

I'd focus on trying to get that pain under control, keep using the mylanta esp. since you have seen positive results with it so far.

I don't have many suggestions of getting them to take a hypoallergenic formula s they pretty much smell and taste like vomit. Sorry, but they do. I really don't blame our Jedd for not wanting to take it, I wouldn't touch that stuff with a ten foot pole. The smell alone is enough to make you want to puke, let alone the taste. Yes, I tasted it, it's disgusting. Really disgusting.

Jun 13, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
If you want to see what an NG tube looks like, check my siggy under Jedd's picture and go to his CaringBridge site. I have some pictures uploaded there and a few have NG tubes.
Jun 13, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Can you pump breastmilk and gradually mix the formula in until he gets used to the new smell and taste? I had to do that when we switched one of ours from soy to nutramigen.
Jun 13, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
I don't know if you mentioned whether you were seeing a reg GI with your son or a pedi GI but I highly recommend seeing one that specializes in pediatric GI issues. Our local children's hospital was a good place to look. If you have one in the area you may want to start there. I don't think there is anything wrong with searching for a new DR if you are not comfortable with the communication (or lack there of) you are getting right now.

Prevacid worked best for my daughter when we split the dose, half in the am and half at night and made sure to give it to her 30 minutes before she eats. Hope that helps. It does take up to two weeks of consistently giving the med to get results. If you still aren't seeing them then I would ask about a new med or an adjustment. You may want to discuss a breakthrough pain med like Carafate to coat the esophagus while you are waiting for the full effect of the PPI.

I know there are some parents who have used the Periactin, you may want to post a new topic on it and see what they think. I have heard mixed reviews regarding whether it helped.

I totally agree with Jessica on the NG tube issues... that having been said if he needs it, he needs it. I personally chose to exhaust all other options first with our daughter. Thankfully they worked. You may want to ask your DR about other options and at what weight (or %tile) they will determine that he requires a NG tube.
Jun 13, 2009
mommato3
Before Periactin or feeding tube I would insist on having these tests done to see what the problem is--UGI, swallow study, scope with biopsies. I am very surprised the pedi is suggesting periactin and tube feeding without having ordered these tests. Your pedi could order your Upper GI and swallow study-my pedi did this as the very first thing.
Jun 14, 2009
markasmom
I am learning so much from all of you! I did not know about EE or about swallow tests, etc. Now I can talk to GI and my pedi armed with information. Cannot wait till tomorrow to call both my GI and pediatrician. I agree - I want to wait as long as possible for NG tube to be put in, although Markas is probably less than 0% (if there can be less) for his weight in the growth charts. He did have better bottle feedings yesterday, maybe because of Mylanta. I did not add any formula to my breast milk yet - I am afraid that he will not want to eat it and every ounce he eats is so precious! He ate 1/3rd of avocado today - I am ecstatic! Also, can anyone explain to me how is this swallow study done? Is it under anesthesia?
Jun 14, 2009
mommato3
The swallow study is done in radiology dept. They have him drink 3 different consistencies (thin, nectar, and honeyconsistencies) of formula with a little bit of barium in it. It will show what happens when he swallows. You can actually see the formula and where it goes when he swallows, if he aspirates, is his suck swallow pattern normal, etc. Reflux can sometimes mimick a swallowing disorder too and that can be why some kids don't want to eat. The upper GI is done the same way. They drink barium mixed with formula and instead of looking at the swallow portion of it they are looking more at the esophagus, stomach, and upper portion of intestines for structural abnormalities, etc. Reflux can also show up on these tests although not always since they are just a snapshot in time. These are very non invasive tests. That is why I'm shocked they haven't done them. My son had them both done at 6 weeks and has had another swallow study since then. Also there is something called Duocal that you can mix in with your breastmilk it will add extra calories to it. It is not formula just a calorie booster. I would also check into your state's early intervention services. With your son's failure to thrive status and feeding issues you should qualify. They can provide speech, occupational, and nutritionist to help you with feeding. If he has to get a tube he has to b/c failure to thrive left unresolved for too long is nothing to play around with but I would just make sure the docs went down every avenue first to get to the bottom of why he didn;t want to eat and all treatments possible. Let us know what your doc says!! Good luck!
Jun 14, 2009
markasmom
I would love all these tests to be done, but the issue is - he will not be drinking any supplied formula. Even if I give him my breast milk - he probably would not have it in a strange enviroment, with strangers around him, etc. But I will still try to schedule these tests and will see what I learn. Great advice regarding Duocal! I just read about it, looks like it could be a great thing for us. We do see a pedi GI, but after next conversation with him I will decide if we have to find a new one... I am also very surprised that none of GI or pedi mentioned all these tests and options.
Jun 14, 2009
mommato3
Well, I thought so to but they have to go a while before the test before eating. They were very patient with me to get him to eat. In fact, they turned down the lights, etc. You can use your breastmilk in the bottle. For our last swallow study however my son refused to drink so they used a syringe to feed him which was not ideal but at least they got to see him swallow. So I wouldn't worry about it, I would go ahead and get your tests scheduled. The people doing my son's last swallow study said they were use to it. That's why kids are there after all b/c they are having feeding issues. That made me feel better. Also there is a speech language therapist in there while they do the swallow study. After it is over she types up a written report for you and your pedi and even gave us feeding instructions. Also for the swallow study you can try to feed him a little baby food if you want to . It doesn't take much but they will work with you and you may be surprised. My son is the same way, will only eat for me (when he is asleep) and only in a dark, quiet room. I am excited for you that you now have some new ideas and a new plan of action. Keep us posted.
Jun 14, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Ryan refused to drink the barium. Strange people, place, just came out of anestia from the scope. They were going to cancel the test but I made them give me a big 2 ounce syringe. I was able to get enough in him for them to see what was going on. Not ideal and not fun to do it that way but I was not turning back after we had gotten that far. I felt like a horrible person at the time but I am glad I did it. I finally got the prevacid to the level it needed to be. Oh and sorry, I read your first post wrong. I thought you said he was on 15 mg... didn't see the twice a day part. I too used DuoCal and still do on occasion. It was a life saver for us. I hate to think how far he would have slipped backward if I hadn't. I too am utalizing the help of Early Intervention. It is a free government program. All states have it. I am kicking myself not reaching out to them sooner. They have all been great to work with. Ryan has a real adversion to milk. I still have to give it to him in his sleep through a bottle. It use to be all liquids but I am finally getting him to a point where he will accept water and apple juice out of a cup. He is still 15 oz behind his recommended fluid intake a day but I am resigned to the fact that this is a marathon and we will get there eventually. I cant keep pushing him. He is going to have to come to terms with his on his own. His pain was so severe that he would go days on end with out drinking so I guess I can say we have made progress?? Hang in there. You have come to the right place.
Jun 15, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
My son has food allergies and eosinophilic esophagitis and maybe reflux as well. It is hard to sort them out, after the first two dignoses. We did not get things under control until we knew exactly what we were dealing with. Even the EE dx was hard to come by as the first scope did not show it. This was because he was not eating a lot of foods at that time (was about 10 mths. old). It wasn't until he was 2 1/2, avoiding the foods he was allergic to (milk, nuts, eggs), on reflux meds, but still choking too much, that we pushed for a 2nd scope & found the EE. I hope you can find your son's dx faster than we did - it will save you a lot of grief. Good Luck, El
Jun 15, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
16lbs at 9 months and someone is suggesting a feeding tube?? seriously?? My son was at 16 lbs at 12 months and was there for three months and STILL no one suggested one...it hung over my head, but no one mentioned it..that sounds a little quick draw to me. Good luck with your GI...and my suggestion is to be SUPER nice to the GI's nurse...they can be your best friend (or your worst enemy)...I honestly think I get better faster care because I am really friendly with the nurse.
Jun 15, 2009
markasmom
Good advice regarding the nurse :), I guess I will have to be super nice, just they did not call me back today :). I left the message at the GI's office in the morning - but no response. Our pediatrician called me in the afternoon and said she tried to reach the GI and he is out of the office today. Markas blood work came back - it seems everything is fine, except his urine culture grew 2 bacteria. They think it might be a mistake (contamination), so we need to do the culture again. Weird thing is, that I noticed (and informed docs a while ago), that Markas' appetite improved after he was taking antibiotics (he had an ear infection once and once pneumonia). I also asked regarding Duocal and she had never heard about it. I ordered Duocal in the pharmacy today and will get it tomorrow. I don't know how much of it to mix per bottle, doc said maybe about couple tablespoons a day? What surprised me the most, that his allergy tests came back negative. I am not sure what to think, because I saw mucus in his stool all along if I ate milk/soy/eggs etc. Maybe we should try to go to allergy doc for more accurate results. Pedi doc said she will discuss the GI scope and other tests with the GI doc tomorrow. I plan to enroll Markas in Early intervention program, but probably only in September. We are traveling in 3 weeks and will be gone from US for the rest of the summer. That’s why it is sooo frustrating, that I don’t have any answers regarding Markas feeding... We planned the trip long time ago and I was sure that by now we will have situation under control. I hope we can still go because it would break my older son's (3 1/2) heart not to see his grandma and grandpa this year... There are many doctors in our pediatrician's practice and I have seen all of them by now. Not one of them mentioned any tests to be done (just bloodwork) or Duocal! I learned more during this weekend from all of you, than from all the docs in 9 months...
Jun 16, 2009
mommato3
I think go to Duocal's website and go to Frequently asked questions It tells you on there how many calories are per scoop, etc. Don't do too much at first. Work his tummy up to the extra calories. My son is on 26 calorie per oz (regular is 20 cal per oz). So at first, I would add enough Duocal to add an extra 2 calories per oz (so if a 4 oz bottle it would add 8 calories) Do this for a couple of days then increase it to an extra 4 calories per oz or 16 calories per 4 oz bottle. Like I said Duocal's website tells how much is equal to however many calories. Anyway, start off small and work your way up. If he doesn't tolerate it then go back down My son can't tolerate over 26 calorie/oz. It is amazing though just how much a difference a few extra calories can make. Sprinkle some in any food you can get him to take (babyfood, etc.).
Jun 16, 2009
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Hi, I don't usually post anymore, but I know the anguish of failure to thrive and bottle aversion ALL to well. It is a very frustrating and worrisome situation to be in. I just wanted to give you some reassurance. My daughter was an almost 9lb baby....and she refused to eat most of the time. The most she ever took in per day was 16oz up until she was probably 6 to 8 months old. I know she was 8 months old when she drank her first 6oz bottle. It was the day after we took her off prevacid. Prevacid helped her, no doubt. It protected her from the acid damage that might have been caused from the chronic projectile vomiting....but it didn't stop the vomiting and I strongly believe it was responsible for her appetite loss. We ended up putting her back on it after a couple months because she stopped sleeping. :( And then we lost the few solids she had been willing to take. Prevacid can potentially slow motility, because it stops the stomach pumps from producing acid. Your son may not be hungry, or may satiate early, thus the bottle fighting. That being said, prevacid is a wonder drug for many, many babies. But NOT all babies. Rory tends to take spurts in her growth. VERY small spurts, but she does grow, and your son will too, I promise. I think just as important as his nutrition and growth is YOUR mental health and well-being. I would suggest you find someone, such as a feeding specialist, who can provide you with some tips and support while you go through this very difficult process. It was so nice to have someone who understood my concerns and acknowledged I was not crazy. I literally fed Rory on the clock, every 2 hrs when it was the worst, because she would only take an oz or two. We could not burp. It meant the end of the feeding....AND a big vomit. Right now, Rory is 27 months old, and is 21.6lbs. Granted, she is a girl, and I am not a big woman, nor is her father, BUT we still worry every day. And Rory eats. And has been eating pretty good since about 18 months. IT WILL GET BETTER. In the meantime, do everything you can to ensure nothing is being missed. Solids are coming, and that is equally stressful. You have to try to make eating as pleasurable as you can for little man. I probably have a thousand tips and tricks, but honestly, you will find your own way, and be that much closer to Markas in the end. Don't worry TOO much about the weight gain. He WILL grow. We tried Rory on hypoallergenic and she just would not take it. Now a year later, we suspect she IS milk protein intolerant, but we're still not seeing a gain after removing milk....that stuff is really nasty, but if you can stick with it, it might save you heartache in the end, and answer that question, kwim? Anyway, I wish you all the best. It's a tough road when kiddies don't wanna eat. But I think you should avoid the tube for as long as possible. Look at Rory. She's SMALL. And she talks, and runs, and is a smart little cookie who is very compassionate and loving. She's a joy, but I just wish the lil' stinker wouldn't have given us such a hard time in the beginning, lol. Enjoy your little guy. ((((HUGS))))
Jun 17, 2009
markasmom
Thank you for sharing your story, michelle&aurora. I too hope that everything will be ok. Markas is still the same - it seems that he eats even less. I started him on Duocal yesterday. I took mammto3 guidance, so gfar I did not notice any intolerance and I hope those few extra calories will amount to weight gain. We also scheduled the scope next Thursday. Actually I am not even sure what procedure will be done: it seems like our GI is on witness protection program, only his nurse calls if she calls at all. She was not sure what procedure will be performed. I hope to find out till next week. Now I am very anxious about the procedure: will Markas be sedated or under general anesthesia? I am dreading the moment when they take him from me... Can I at least be in a room while he is sedated? We are also waiting on urine culture to come back. I am wondering if he actually has UTI and that's why he is not eating. Or it could be EE - he is allergic to many things. He is not vomiting or spitting up. He seems happy during the day, rarely cries. Markas is fussier at night or during naps, often wakes up crying, that's how I know he is in pain. AND he is not eating. Lately solids have been a little better, but he barely takes a bottle. YES, it can be very stressful, but he is a lot of joy too. I just hope to get some answers soon. I am worried out of my mind!
Jun 17, 2009
mommato3
I'm glad they scheduled the procedure for you. Why don't you post a new thread about the anesthesia. Most of the moms on here have had to go through that and it is quite scary but hearing everyone's stories will make you feel good.
Check with your
doctor first!