Posted By Posting
Jun 11, 2009
helen lai
Mom to Matthew, 01/16/08, GERD baby, has been on Zantac since 2 mos. Aidan, his twin brother, no GERD. Max-ed out on Zantac at 1ml-3 times/day, and switched to Prevacid 15mg split tab 08/20/08. Switched again to 20mg Prilosec 09/18/08 due to Prevacid's restlessness/headache side effects. Reflux was out of control again and had to switch to 10mg Nexium 02/11/09. Good result so far.
Questions on Med wean off or step-down
I would like to ask bib3mama, Meghann, and other moms, who have successfully weaned the babies off/down med some questions regarding weaning. At what point that you think your baby was ready for a med wean, like how many months of reflux free? How long did it take for the baby's system to adjust to med-free condition? After weaning, is there any symptom that you notice, especially during the time of sickness, teething, etc. and how do you treat the baby (Mallox or Mylanta, etc.)? Was there a time that reflux comes back and gets worse than before? My son is almost 17 months and he is doing very good on Nexium 10mg and probiotics. Like Jedd's mom put it before, it's just like the reflux "switch turns off" magically about 1 month ago. He got so much better and I don't even hear the goggling sound of silent reflux that he used to have after eating or drinking. So we have a good month of reflux symptom/vomit free EVER; then he had a low grade fever and 2 days of 2-3 times vomiting and then the past couple days are good again. In my gut, I think it's still early to do a med wean, but may be in a couple of months, if he continues to be reflux free like this, it's possible to do either med wean or step down to a H2 blocker. My GI doctor keeps pressuring me to wean him off or step-down and I resist it till now. I'm very concerned about reflux pain during the times of sickness and teething. Whenever my son gets sick, even with a low grade fever, he throws up everything. The last time he had a cold in May, he had horrible reflux. Teething is very tough for him right now. His molars still take for ever to come out. Your experiences would help me a lot in making the decision. Thank you very much for your advice.
Jun 11, 2009
helen lai
Mom to Matthew, 01/16/08, GERD baby, has been on Zantac since 2 mos. Aidan, his twin brother, no GERD. Max-ed out on Zantac at 1ml-3 times/day, and switched to Prevacid 15mg split tab 08/20/08. Switched again to 20mg Prilosec 09/18/08 due to Prevacid's restlessness/headache side effects. Reflux was out of control again and had to switch to 10mg Nexium 02/11/09. Good result so far.
Oh, I forgot to ask 1 more question: was there any food (citric fruits, berries, tomato, juices, oily food, etc.) that triggered your baby's reflux even after going med free? Thanks a lot.
Jun 11, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
My own opinion is to not rush a med wean. If he is just starting to do well that means that the medicine is working. I am not sure that the reflux switch was turned off but that the medicine has finally started to work.

My GI is in no hurry to rock the boat with Katie. She is finally starting to feel better and we want to keep it that way. JMHO

Even on meds tomato juice is a no no, so is any citric fruits, no strawberries, no high fructose corn syrup (like lots in Gatorade), no fried foods, no tomato sauces, no chocolate, no foods high in fat.

Jun 11, 2009
bib3mama
I have 3 boys, youngest has gerd, 18 months of no sleep. Prevacid 2x/7.5 mg thinking of switching to prilosec.
Hello Mama Helen. I agree, "Don't rush the med wean." For David I would not have been able to wean him at 17 months. There is a big difference between 17 mo and 24 mo. I still will not say he is "done with reflux". It could come back. Today at the pool he swallowed a good amount of pool water and afterwards (in the car) he was gurgling/refluxing. I thought I'd have to do a step down to H2 blocker but my feeling there is the prevacid is much better tolerated and easier so I kept him on that until I thought he was at a point we could stop. It took almost a month to wean. With teething going on I'd stay on the meds if I were you. David can eat anything.I read about himalayan salt being helpful for GERD folks. I put it on his food.( Dr Mercola) Got it at the local health food store. I hope that helps. My heart goes out to you & your little one. Take good care.-Kim
Jun 11, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
I've weaned Allie without an MD's say-so, mainly because I hadn't seen any reflux-related activity for 2 months. She was eating (or at least tasting) everything I put in front of her, most of the teeth were in, and she's hardly ever ill. So I tried unsuccessfully at 14 months (she was fine for a few weeks on a low dose, so I cut it out, but went into a flare. It wasn't bad, but the meds helped within a day.) Then at 16 months we had the successful wean (at least I think it was then.) We cut the Pepcid off completely for 2 weeks, then cut the Prevacid from 15 to 11.25 for 2 weeks, and so on. Had to use Mallox at night for a few weeks because of teeth, but no longer use it at all now.

Honestly, I say you wait for the teeth to fully come in and have at least 3 weeks reflux-free. Weaning can be tough, but it's so nice not having to time meds and food now! I'm so glad the probiotics are helping too - I still won't take Allie off, and probably won's as long as I can get them in her. Good luck with the doc, Helen. I think if you tell him the reflux flares very badly with teething, he'll agree to the meds as needed.

Jun 11, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Oh, the foods that trigger (forgot - sorry!) Allie doesn't seem to have any issues with anything yet, but she's still on a lot of baby food/purees due to the tough teething process. The only thing I can think of that triggers any reflux problems with her is tomato products, so we have those earlier in the day (if we have spaghetti for dinner, it's before 7:30 pm.) And even that's one audible reflux and she's done.
Jun 11, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I hate to ride the same wave...LOL but yeah, I'd be in NO rush to do a med wean.at.all. You just got out of pain and you want to keep it that way.

Alot of people think oh wow, things are going great, we must have outgrown the reflux when in reality, it's the meds doing their jobs. KWIM.

We waited until Jedd was about almost 2 I think. We went from a PPI full time with Jedd to once a day a PPI and once a day an H2blocker. We stayed there for a while and then was finally able to go to an H2 full time now.

Our GI is also not in any rush to wean Jedd at all. Not with his history. I would be leary of a GI who wants to wean just based on age as well. All kids are different and not all kids outgrow reflux at that magic number of 1. Jedd still has flairs as it is, he's in one right now.

Also, we noticed that even within H2 lockers, Jedd does better on some verses others. So even it you try to go down in med classes you may still have some issues.

Case in point:

We went from Prilosec to Axid during our med wean. Jedd did fantastic, but, it cost us a fortune in copays each month. We discussed with the GI about trying a month trial of Zantac since both Zantac and Axid are very close in their chemical make up, or so we are told..LOL

Hands down, within the month, we saw a drastic increase in vomiting and reflux issue. We have NO idea why this is the case for Jedd, but it is, we just take it at face value. He needs the Axid and does the best on it, so we switched back. Within a month, he was back to himself, no issues at all. I do believe he needs a med increase right now though because of weight gain. I'm trying to wait it out to see how he does, but we fully expect to call the GI on Monday for a new dose.

Sorry, if this is really long, I guess I just have running fingers tonight..LMAO

Jun 12, 2009
helen lai
Mom to Matthew, 01/16/08, GERD baby, has been on Zantac since 2 mos. Aidan, his twin brother, no GERD. Max-ed out on Zantac at 1ml-3 times/day, and switched to Prevacid 15mg split tab 08/20/08. Switched again to 20mg Prilosec 09/18/08 due to Prevacid's restlessness/headache side effects. Reflux was out of control again and had to switch to 10mg Nexium 02/11/09. Good result so far.
Thank you so much for all of your advice. I will definitely not rush med wean and wait until at least all his molars are in and we have a good 2 ~ 3 months of reflux free.
Check with your
doctor first!