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Jun 09, 2009
heather13
upper EGD ??s
We had an upper EGD this morning (DD is 10 months). It was very helpful to search here and see what other experiences were to prepare myself for the worst. Overall it wasn't too bad from my perspective, but it left me with more questions than answers. Everything including the esophagus lining looked normal. There was a small area that the Dr said looked like it might have been irritated at one point, but seems to have healed (DD has been taking zantac or prevacid for almost three months now). We won't have the results from the biopsy for three weeks, so I'm feeling pretty nervous. The major reasons for the EGD was failure to thrive and horrible sleep patterns - she awakens arching her back sometimes for hours during the night. Has anyone else had a relatively normal EGD only to have abnormal biopsy? Or even a normal biopsy but with all the other symptoms of silent reflux?
Jun 09, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Yes, you can have a normal looking (to the naked eye) and have abnormal results from the biopsies. Hopefully the results will come back fast.
Jun 09, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
we had a pretty normal EGD for emily the same thing, places looked like they were healing. when the biopsies came back we were told she had mild chronic inflammation. but even that was not very helpful- she was already on prevacid. But it was a last minuet test the dr decided to add to the EGD 2 days before. He did an enzyme biopsy panel. it helped us find the trigger for many of her reflux episodes, which was she was not able to digest sucrose very well. we later found that she may have IBD which is another reason for her reflux.

have you ever discussed with the GI about conditions that may mimic or cause reflux and not reflux as a primary diagnosis? does your dd throw up a lot? or not at all? does she have diarrhea or constipation? do you have a history of allergies or food intolerance in your family? what kinds of things does she eat? I am sorry you have more questions then answers but when the nurse calls back with the results i would ask to schedule an apt. with the Dr. write down all your questions and ask them.
Jun 09, 2009
heather13
Thanks! That definitely helps a lot. The Dr suggested that there may be some food intolerances but didn't elaborate. DD doesn't throw up at all. She has no bowel issues, but both of my girls had MSPI around 2 months (based on bowel blood testing they've both outgrown it). DD doesn't eat much - she loves avocado and will tolerate chicken & rice, but that's about it. Really refuses to eat anything else. they've requested that we meet with a dietitian when we get the results which is a little humbling - like I don't know how to feed my child - but I guess if there's a food intolerance it's going to be the fastest way to figure out how to incorporate that into our meal plans and still allow both kids to gain weight healthily.
Jun 09, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Meeting with a dietician shouldn't be humbling - they're trained very specifically to help with diseases and conditions. There are so many hidden nutrients in some of the simplest foods (think barley!) And some foods that are dangerous but wouldn't seem so. Think of it as just another resource and support member!!!
Jun 10, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
my suggestion would be not to choose one on your own- but go with a dietitian/ nutritionist that your GI chooses. I wish i had done that with emily and instead of waiting 2 months for an appointment i went out and found one on my own. She had no idea about any of the issues emily had. i even went to a dietician that was at a respected local children's hospital. how she got the job i will never know... but if there is a way to research or ask around i would!
Jun 10, 2009
heather13
That's great advice about the dietitian, and actually we're supposed to meet with the one specified by the GI doc. Makes sense that they would be attune to specific needs. I met with one through the pediatrician's office when my firstborn was dx with MSPI and she kept trying to add dairy into my diet when I was nursing ("what about a few pats of butter on some croissants for a snack?" ummm, because those both have dairy?). So I need to free my mind from that bad experience and let them do their job, and assume they are trained professionals this time!
Check with your
doctor first!