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Jun 01, 2009
mommato3
Allegra-Congestion
I took Holden to the pedi today. Last week he was choking on all his bottles and vomiting so much. This weekend his nose became very congested and started doing some funky breathing stuff Sunday. The pedi said his right lobe sounded junky and he could tell their was some inflamation there. He thinks Holden does have some aspiration but also thinks he has allergies which drainage is causing a lot of this upset. Anyway, he told me to put him back on the Reglan, get off Erythromycin, and give him Alegra twice a day to dry things up. He didn't think we needed an antibiotic yet and said his next step will be some breathing treatment but doesn't think that it is needed yet. What are your thought? Anyone know anything about Alegra?
Jun 01, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
I can't help you with this, but I'm very interested. How old is Holden? We have tried Singulair, Claritin, Periactin and Zyrtec...nothing dries up my kid. I'm looking for that perfect drug for the mucous and juicy congestion...
Jun 01, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
The only thing that stopped Ryan's choking, vomiting and constantly runny snotty nose, was finding the right dose of Prevacid for him. He gets 30 mg a day, 15 in the morning and 15 mg at night. He was on 15 mg in the morning and 7.5 mg at night. 2 weeks after he started the higher does it was like a switch was flipped in him. Cough and choking gone, runny nose and congestion gone, throwing of bottles and cups gone. He was at the 8th percentile at the middle of March for his weight and today at his check up he was at 20%. I know that 20% does sound like a big thing but coming from where we did, it is huge for me especially considering how extremely active he is. (He might be part monkey. : ) I have never seen a child climb like he does. eeks!) The bigger thing for me though is that he gets great sleep now because he is not coughing and congested all night long. More importantly he is eating, willingly on his own, because he doesn't choke on everything and his fear is subsiding.
Jun 01, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I should have specified 8th percentile for weight and now 20th percentile for weight. Length has never been an issue... 87th percentile. So.. he is a long and skinny green bean. Pants were definately an issue. It's getting better though.
Jun 01, 2009
mommato3
Holden is just 6 months 17.8 pounds. My pedi said they don't like to prescribe things for kids so young but there are exceptions. We shall see. As for his Prevacid he is on 30 mg at 6 months 15 am amd 15 pm. He is maxed out. Reglan really does help him with his coughing, choking, etc. so hopefully the two of these together will work. We were trying not to have to go back on it but with possible aspiration my pedi and I feel like we should continue it. I will let you all know! I don't want to do breathing treatments.
Jun 01, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Personally, as soon as only one (dr) says they think aspiration is occurring, they should refer you to a Pulmonologist. It's there specialty. I'd ask to see one. There are all sorts of tests they can order to "see" if it is actually occurring or not. I love my Ped, but she is the first to say if something is over her head and she has been practicing for over 25 years. We have "learned" alot together about GERD I pass on to her what I have learned from the GIs.

Jun 01, 2009
mommy2k
I don't have any advice or ideas about this. I just wanted to let you know that we're dealing with the congestion and choking while eating since we took Kody off of his erythromycin. I hope that the alegra works for him. I know how awful it is when they're so congested. I'm glad to hear that some can get relief with higher doses of ppi's. We just started a ppi but we'll see what will happen. I may be looking for some input from you if it doesn't work for my little guy. Good luck!
Jun 01, 2009
mommato3
Jeddsmommy-Holden does have a pulmo. He did a bronch and lungwash and x-ray which looked real good the pulm says. Holden also has sleep apnea so the pulmo has to see him for that. The lung wash showed very minimal growth. Our new GI appointment is July 9th so we'll see what he says. My pulmo says some things are black and white as to what to do and some things are grey. Holden is in the grey. I pray the reflux will get better before we have to make some tough decisions.
Jun 02, 2009
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
Both my son's dried up a lot once they got on a high enough dosage of the PPI's...but they both also have seasonal allergies compounding things. I tried allegra with both of them, it made them sleepy and didn't help enough, claritin did nothing. Finally I ended up doing zyrtec at night(sleepy too), but I did 1/2 the dose the allergist said to do. My 6yr old gets 1/2 tsp. at night(he's 50lbs.) and my 9yr old gets 1tsp. at night, he's 95lbs. My 9yr old also does Rhinocort nose spray daily for congestion. It's such a trial and error thing with these kids, unfortunately. Until I got my 8yr old on allergy meds, every spring and fall he would get diagnosed with sinus infections and put on antibiotics, until we got the reflux diagnosed, then the allergies, now he doesn't need the antibiotics...maybe he never did, who knows. Good luck.
Jun 02, 2009
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
By the way, both my kids have asthma also. They are both on daily inhalers, so if you try all the allergy meds and still no relief, I guess you do the inhaler treatments. See an allerigist for that, though.
Jun 02, 2009
mommato3
Well, Holden woke up with 101.7 fever this morning. I took him back to the pedi who said his lungs were clear and his right lobe sounded much much better. He wants to wait and see for 24 hours. I am suppose to call him tomorrow with an update. I am a little surprised he didn't rush into an antibiotic but like he says, his chest sounds good and the runny nose has only been going on for 3 days so if it is viral an antibiotic won't work and will hurt his tummy more. We'll see what happens. I just can't shake the fact that he choked all last week on his bottles. Stated being congested and cough this weekend and now a fever. Aspirate pneumonia is always on my mind. My pulmo is an hour and a half away so he likes for me to go to my local pedi first. I could call him but when I tell him the pedi says his lungs sound clear he prob. won't be worried about it either. Also if it was aspirate pneumonia you wouldn't think he would be sneezing and have so much nasal congestion. I would think it would all be in his chest. What are your thoughts?
Jun 03, 2009
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
I will tell you my son sounded congested from the day he was born until the day he had his Nissen. No amount of PPI's or allergy meds took that congestion sound away. The Reglan did decrease the congestion though. If there is any chance aspiration pneumonia is occuring you should consider Flovent as a preventative med to protect the lungs. Aidan stayed on it until he had his surgery as he constantly had junky lungs from aspiration. I think Allegra is in the same family as Zyrtec and both my older son and I take it in the evening as it makes us drowsy but it seems to work well for our seasonal allergies. I hope Holden feels better soon. Nothing worse then a sick refluxer.
Jun 03, 2009
mommato3
Thank you molson1525! I think you're right no amount of PPI is going to help Holden's congestion either. Like you said with that LES open stuff is constantly going up and down. I am interested in seeing what the GI says July 9th. I will ask about Flovent.
Check with your
doctor first!