Posted By Posting
May 30, 2009
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Jazzy stuff
Hello all,

It's been a while for me and I'll update soon. In the meantime, Jazzy has broken a bone in her foot and is in a cast...NOT a walking cast!! Not fun! I have no idea how she did it. But the first x-ray revealed nothing, and so she walked on it for 2 weeks before I took her in for a repeat x-ray, only to find out it was broken!!!! So this for 3 weeks!

Also, Jazz is being tested for a bunch of resessive gentic dis. such as Tyroseniemia, porpheria, Fabry's etc... all protein related. So we'll see. Her B/W indictaed a possible metabolic dis. so we're testing for pancreatitis and organic acedemia!! A mouthful I know. Until then we wait!!!

Hope you are all well!!!

May 30, 2009
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
So sorry to hear about her foot! Sarah broke a bone when she was 2...her lower leg. They didn't see the break in the x-ray at first, either (long story there) and she walked on it (or more accurately refused to walk on it) for nearly a week before we got a dr. who figured it out. She was 3 weeks in a non-walking cast and 3 in a walking one...the time passed more quickly than I expected. We did a whole lot of videos, coloring, playing with blocks, computer learning games, and reading books. Sticker activity books, paint with water (the kind where you paint water over the page and color appears), and little dolls were also good. I hope she's better soon, and that you get some answers soon too! (((big hugs)))
Jun 01, 2009
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
Hi, I hope you don't mind, but have you tried a higher dose of the nexium? I believe according to the higher dosing some docs do and Marci Kids, she could be on more. Wonder is that would clear up some of the issues?
Check with your
doctor first!