Posted By Posting
May 28, 2009
faithmotherof2
HELP
My daughter is really suffering for the past 2 months she has had a horrible cough, and stuffy nose. she is not sleeping and is constatnly throwing up. The doctor who I have visited 4 times in the past month and the ER twice keep switiching her antibotics and now have put her on a breathing treatment. Nothing is working. She was diagnosed with acid reflux at 2 months old I am not sure what to do next. she is just unhappy and crying all of the time.
May 28, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
is she on medications for reflux?
May 28, 2009
faithmotherof2
medication
yes the doctor put her on zantac when she was 2 months old then took her off it. This week she decided to put her back on 1ml of zantac.
May 28, 2009
mommato3
Ok-this could all be caused by reflux and unless it has turned into an infection antibiotics won't work. First, I would try a probiotic. With all that throwing up and being on antibiotics, a probiotic will help get her system back on track. There have been some good posts on here lately about different brands to choose. Second, get more reflux medicine. How old is your daughter now. That sounds like a low dose of zantac. Zantac doesn't work for a lot of kids, others it works great. Most (not all) of the moms on here have had great success with Prevacid. If you do try it, it takes a couple of weeks to work. If you don't see a difference in a couple of weeks you may need to up the dosage and try giving some in am and some in pm. In the meantime, while you are waiting for the PPI to work you can continue with your zantac. Just space them. I forget how long-I want to say at least 2 hours apart. Thirdly, what formula is she on?? This could all be allegy related. If you are breast feeding, you will need to try an elimination diet. Has she had any testing done? I would keep pushing your pedi to be proactive in checking into reflux and trying to get that under control. You have come to the right spot for advice.
May 28, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
research supports the fact that untreated reflux can lead to many ENT issues like sinus infections, ear infections ect. Definitely would try to get the reflux under control. You can start on probiotics right away and talk to your doc about PPIs.

good luck.

May 28, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I'll come back later I promise. I am getting ready to make dinner. I do want to say one thing.....I would move to a PPI as.soon.as.possible.

As the ladies can tell you,....I have LOTS more to say...LOL really I do esp. when breathing issues are involved.

I won't leave you hanging, I just have to make dinner and feed Jedd. It may be after DS goes to bed since y response will take some time. HUGS GERD stinks!!!!

May 28, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Mommato3 asked some questions I would have asked as well.

Also along with the coughing and congestion.....It is probably caused my the reflux. Jedd always sounded junky for a while. this wasn't the case with him but...it can be a sign that the reflux is coming up and going into the lungs. I'd just make sure the lungs always sound good when whichever DR is checking them out.

On top of that you may want to do a swallow study and make sure that the suck swallow pattern is working properly. Some kids don't suck and swallow properly and in stead of the liquid going into the stomach, some of it goes into the lungs. This is called aspiration and can be serious. That's why I mentioned that you want to make sure they are checked over quite often.

for us, the junky sound was due to the reflux coming UP and going into his ears and out his nose. This cause horrible recurrent ear infections. His swallowing pattern was always fine we never needed a swallow study. We did place ear tubes to stop the ear infections and it worked wonderfully. BEST thing we ever did.

You mention ABX (antibiotics) what kind are you using and why were they RXed??? I ask because ABXs are really hard on a GERD kids belly. That in and of itself can cause vomiting.

Also, why are you on the breathing treatments??

I'm just trying to figure out what could be causing the coughing and congestion.

May 28, 2009
mommato3
I second the swallow study. This is a very important test and this along with an Upper GI to rule out anything anatomically were the first two tests my son had. They are very easy, non invasive tests (the barium is pretty gross though). The swallow study, they will have her drink formula with a little barium in it mixed with 3 consistencies (thin, nectar, and honey). The camera will show what happens when she swallows (if she aspirated and just in general how the swallow functioning is). . If that pedi isn't being agressive enough find someone who is. On this board, we have all for the most part had to fight to get action taken. Keep us updated and feel free to ask questions or just vent (which I've been doing a lot lately!).
May 28, 2009
johnniesnewmommy
My baby coughs so much people around him think he has bird flu or something horribly contagious (how dare she bring him out in public) and antibiotics rarely work. He to is on breathing treatments but they don't really help a lot. He also sounds like Darth Vader ALL THE TIME- well except when a doctor walks in the room then he is CRYSTAL clear- I think he holds his breath on purpose. My point is I now know that his breathing problems are a direct relation to his reflux. Zantac did nothing for him at all- and we tried it twice- save yourself some money and dont let them just switch to Axid either- if the Zantac's not helping it probably wont be your miracle cure either. Beg and plead with your doctor for Prevacid- mine turned out to be allergic to it- but while he was on it- he was so much better and I know it works great for a lot of the kids on here. The key for me to keep him out of the hospital and from having pneumonia all the time is to NEVER let him lay down flat. Sounds crazy but sure enough 5 minutes of someone trying to give him tummy time and he cant breathe or stop coughing. When he was your daughters age he would just turn blue and stop breathing- scared me silly! He still sounds like Darth Vader but if we thicken his formula (oh and if your still on a milk based one- switch asap) and keep him elevated then he is so much better. I use nutramigen- works great for us- smells horrible- and we have to thicken it with equal amounts of baby cereal and formula. Then make sure she is upright for at LEAST 30 minutes after she drinks. Hang in there- It will get better- its mostly trial and error though so it may take a little bit but we are all here for you!
May 28, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
When we were at our lowest point with Ryans reflux he too had a horrible cough that kept him up at night, terrible nose, vommitting and ear issues. I would push for the Prevacid. It will take a week or two but stick with it. It took us a long time to get the dosage right but we finally need and he is doing so awesome now. He hasnt had that nasty cought or runny nose since. Someone once told me that yellow snot is a cold, green is an infection, clear is the acid from the reflux. I dont know if that is true for everyone but it is for Ryan.
May 29, 2009
mommy2k
We're currently on zantac with our little guy and I don't think it's working for him either. I can also tell when his reflux is worse because he starts coughing and gets very congested. I'll just ditto what others have said. vigilantmom-I haven't heard of the snot thing before but that would make sense. I've been suspecting that Kody's reflux is worse right now and he started having some clear snot come out of his nose today after screaming yesterday and tody. I would believe that theory.
May 30, 2009
faithmotherof2
Thanks
I went to a specialist on Friday I just couldn't handle the constant it is just a cold answer. They did do a chest x-ray and that was clear...they are going to perform a scope in 2 weeks. the specialist does not want ot change anything until her looks further...which I am fine with. she is currently on a combination of enfamil AR and enfamil Lipil...which she seems to do okay on ...the major throwing up only occurs when she coughs really hard....the antibotic is for the ear infection and the breathing treatments are for what the ER doc called labored breathing....I really apperciate all of the advice...the support is great!!!
Check with your
doctor first!