Posted By Posting
May 25, 2009
mommy2k
Does this sound like food allergy problem or reflux?
Well we have been erythromycin for about 2 weeks now and have had to change the dosing around a few times. We are now currently on 7.5 ml 3 times a day. It seems to be working for him pretty well except that he gets tummy cramps from it which sucks but the doc said that it'll get better over time. The only thing is since we've started it his nights have become worse now. He also seems to be refluxing more lately and crying about it. He's on 1.17 ml 2x's a day. We did just get back from Chicago and his nights were awful there ( up every hour). I think that I probably did get some dairy in my diet over the weekend from eating out for dinners but he's always a terrible sleeper at night. I'm trying to figure out if I should give the meds a few more weeks to even out and then see how his nights are or should I try to push for a ppi or could it be another food allergy? I don't know what to do now. His poops are normal looking but he just seems to have a lot of tummy aches during sleep. So what do you all think could be going on? He seems to be doing fairly good during the day it's just those crummy nights of sleep.
May 25, 2009
mommy2k
Forgot to mention that Kody has a mpi. He also is 5 1/2 months now and weighs almost 16 lbs. He's been eating solids for us and gi said it was fine but told us what to start with. Did anyones little ones get better at nighttime sleep with the right meds or are we looking at a while of us being sleep deprived? I did find that him sleeping on his tummy recently has helped a lot and he likes it. Thanks for reading the book I wrote. I know I'm all over the place. Just trying to figure things out for him so he and us can get some sleep at night. Thanks everyone. You're all awesome!!
May 25, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Well, I hate to say it, but even on the right meds with reflux controlled, we had crappy sleep - period. Until about 19 months old. I asked our ped about this and she said that sometimes with reflux and pain, they never really LEARN to sleep well since all they know about laying down is it hurts. You can try some sleep training or CIO, but none ever worked for us and I don't recommend CIO until you are POSITIVE the reflux is very well controlled.

What finally worked for us was keep the EXACT same bedtime routine for about 2 months, allowing for some moderate CIO and distinguishing between pain, distress, and ticked off crying. Belly sleeping is what my dd likes, but I didn't allow her to do it at night unless she positioned herself that way. One stuffed animal in the bed and she got to choose it every night.

As for the allergy I just don't know. I'd say the reflux flare is probably due to teething, which makes life hell on wheels for us. If he can take it, maybe try some Tylenol or Motrin right before bed??? HUGS!!!

May 25, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
JMHO here but that dose is REALLY high. Jedd takes that amount for an ABX for infections. So, that could be why you are having cramping issues. If you are going to continue taking a dose that high I would really add in a probiotic. You are chancing killing off good bacteria as well as the bad. Just be careful. I'm not a DR so call whoever RX is and talk to them unless you are really comfortable with that dose.

EES is normally given in LOW doses to aid in gastric emptying.

If you think food allergies may be involved you can get testing done or even go to the OR for an EDG so they GI can take a look at what going on and send out biopsies.

May 25, 2009
mommato3
Is the only thing he's on right now for reflux erythromycin? If I remember correctly the GI was trialing you off meds and just elim. diet. If you aren't on any other reflux meds I would get back on a PPI but keep on with the erythromicin. I ditto about teething and reflux. My son just cut his first two teeth (6 months old) and he has been refluxing like crazy. I would also say any hidden dairy could also have caused a flare. Are you currently taking .75 ml 3 times a day or 1.17 ml twice a day of Ery. My 6 month old takes .75ml 3 times a day.
May 25, 2009
mommato3
I see now you put 7.5 ml 3 times a day. Did you mean .75 ml??? I am with Jessica that would be a huge dose! Like I said we do .75ml.
May 26, 2009
mommy2k
oops I didn't mean to type 7.5ml I meant to type .75 ml. That is a big diff.
May 26, 2009
mommy2k
Boy let me try this again. I meant to say he's on .75ml 3 x's a day of erythromycin and 1.17 ml of zantac 2 x's a day. I don't know if his zantac is too low or what but now he's acting like his salivia in his mouth is hurting him. He's spittting it out and crying when it comes up. I don't know what to do with him anymore. I think that I'll try to take soy out of my diet but his stool isn't yucky it's just he's acting like he's getting a bunch of tummy aches and he's fussy. Nights just keep getting worse for him too. SO I hope that makes more sense to everyone. Sorry about being all over the place.
May 26, 2009
mommato3
Ha! I know what you mean about being all over the place. Now the post makes more sense! I don't know much about whether that is a low dose of zantac or not as Holden has never been on zantac. I do know that zantac is very weight sensitive and my doctor told me when he put him on prevacid that zantac can sometimes work for a couple of weeks and then stop working on some kids. I don't know if that's true or not just what he said but it could just be that it is so weight sensitive. I would check into the dosing on the zantac. I would also just "try" to eliminate soy. It can really cause some kiddos to have tummy issues even if the stool isn't mucousy. 50% of kids who are allergic to milk are allergic to soy. I know it will be very hard for you to find foods to eat. I would give it a couple of weeks though soy and dairy free and see if you don't see a difference. If not, add soy back in again. Good luck!
May 26, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I completely understand typing the wrong dose, not sure why that didn't pop into my head when I posted last night...LOL it was late.

As far as your Zantac dose, that one is LOW...ROFLOL....you can get RXed much more than that. Honestly though, the vast majority of kids who have GERD need a PPI. I'd just ask for one of those like Prevacaid. Most kids do really well on that.

Jedd was on a PPI for about 20 months. Then we started transitioning to a H2blocker. WE di done dose of the PPI a day and one of the H2. It went well and after a few months we took the plunge and went to a H2 full time. He takes Axid now. We did try a month trial with Zantac, and it did NOT go well. We had to go back to Axid. And there we stay.

May 26, 2009
mommy2k
Thanks for the input. Kody has been spitting his salivia out all day today. He just seems to be miserable right now. I keep having a gut that his meds aren't working for him. We tried prevacid before and it didn't do well with him. Of course at the time I was still eating dairy and I don't know if that's what it was. My gi seems to be just prescribing the H2 blockers for him but it seemed to be working for a while on the axid and then that stopped working as well. The zantac was working and now not so well. So I'm wondering if it is because he's outgrowing it. I decided to try to go ahead and take soy out eventhough he was doing so well on just the dairy elimination. I don't know but I'm so frustrated about him going downhill again. I find myself giving him more mylanta again to calm his little tummy down. Anyway, I'll let you all know how it goes with the soy elimination.
Check with your
doctor first!