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May 24, 2009
momtochubmuffin
Hi! I'm new here...some questions
Hi! I just discovered this website not long ago and I'm thrilled. I have an 18 month old son who was diagnosed with GERD at 3 weeks old. We started on Zantac and the doctors we saw refused to do Prevacid until he was 10 months old so we are on that now. Jake also has eating issues (only eats puree'd foods and is still on bottles) and has trouble with textures. He also seems to bloat a lot and we've had some issues with pancreatitis and elevated liver enzymes. I guess what I'd first like to ask is...is anyone familiar with the www.marci-kids.com website? It's a really interesting site with current research information from the Midwest Acid Reflux Institute. As I said Jake is on 2-15 mg Solutabs of Prevacid every day and we still struggle with reflux, especially at night. Based on the dosage calculator on the Marci-Kids site he is way underdosed. Comments?
May 24, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Are you giving the solutabs one in morning one in evening? This timing seems to work best for most. The first dose should be given as soon as he wakes up and no food until an hour after the medicine. The second dose is usually given an hour before dinner although some do it at bedtime - whenever you can get an empty stomach.

The dose seems to be about right but if it doesn't help you may want to have a scope to see if there is inflammation in his tummy or espoph.

I would be giving the Zantac in addition to the prevacid. Say a dose at lunch time maybe? ALso, Mylanta or Maalox may be used for breakthrough pain.

It will take a while for the prevacid to start making a difference - maybe 2 weeks to a month or so.

Sorry your doc took so long to get your son on prevacid. I hope it starts to help soon.

When Katie was struggling with the reflux she had a lactose intolerance which made her tummy very bloated. You may want to consider removing dairy for a while to see if that helps.

May 25, 2009
jan gambino burns
Jan Gambino, M.Ed
The Reflux Mom
P.O. Box 171
Arnold, Maryland
21012 USA
Mom to Rebecca: reflux and asthma, post nissen fundo, post g tube, post FTT and Jenna: reflux, asthma and POTS.
Author of Reflux 101: A Parent's Guide to Gastroesophageal Reflux.
http://www.lulu.com/content/4999931
Blog: www.healthcentral.com/acid-reflux/c/96
Hello! It sounds like your little guy has some symptoms that could be related to reflux and some that are not. Certainly some toddlers with reflux have significant feeding issues as you are describing. I often think of bloating as a lower GI tract issue related to the inability to absorb foods gracefully. This could be lactose, fructose or something else. My daughter once had elevated liver enzymes while she was in the hospital for dehydration. One doctor thought it was due to taking her PPI while dehydrated and her liver could not absorb the PPI properly.Pancreatitis? Not sure what to make of that. I think it makes sense to get a good diagnosis and figure out exactly what is going on. Is this all about reflux? reflux and something else? Maybe your primary care doctor can help you sort out all of the symptoms and develop a plan of action. Jan Gambino The Reflux Mom www.refluxmom.com
May 25, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
On the texture front and not to repeat another post I just made but, I'd contact your local school district and get a free Early Intervention eval done at your home. If you qualify an OT can come out and work on oral motor control which in turn will improve that gagging. We've been there with Jedd, and it's no picnic. The earlier you start with EI the better your chances of getting that oral aversion better.
May 26, 2009
momtochubmuffin
Thanks everyone! We're seeing a new dr. tomorrow at the University of Minnesota so I'm hoping we're going to get a better plan in place for Jake. I'll keep you posted!
Check with your
doctor first!