Posted By Posting
May 23, 2009
johnniesnewmommy
help with 1 yr transition
Ok- So im starting to worry. Johnnie will be a year old soon and normally I would take away his bottle and stop his formula and switch to milk, but I have never had a baby with severe reflux either. So what did you do when your LO's turned a year old. I'm afraid to stop giving him the bottle because im afraid he won't get enough nutrition- same goes with the formula. He can only eat very limited baby foods and hasn't taken to the sippy cup. I keep trying but he doesn't want it. He is still less than 5% on the weight chart for his age so I don't want him losing any weight if I stop the nutramigen. Suggestions Please!
May 24, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Hi there. I don't think that you need to fret about making the transition at exactly one year. I know the other moms will weigh in with specific advice but I am pretty sure that the rules are a bit different for refluxers. In fact I am pretty sure that there are no rules :)

The most important thing is that he is happy, growing and pain free. I wouldn't sweat the small stuff.

I am pretty sure that Katie was well over a year before she made the switch.

May 25, 2009
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Our Katie is 19 months old and still on EleCare and will only take it from a bottle. If he is at the 5th percentile I wouldn't take it away from him; Katie is up to the 8th over the last few weeks from the 3rd so no need to rush it, IMO.
May 25, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
We did a very slow transition with milk over a period of about 2-3 months. 1/2 oz of milk to 7 1/2 formula, then the next week or so try 1 oz milk to 7 oz formula, etc... Thus, she remained on some formula until about 15 months. As for bottles, we still do one at night even though she gets milk in the sippy in the mornings (and that was a struggle - didn't get to that until 18 months)

I've been given very little grief about her still having a bottle at 20 months, though I'll be cutting it out soon enough.

May 25, 2009
johnniesnewmommy
Thanks- that's pretty much what I thought but I wasn't sure if there was a better formula for over a year old. He has been eating a few of the stage 2 foods but recently has started gagging on them and then projectile vomiting everything. So I feel like we are moving backwards instead of forwards, and I can completely forget about anything with texture- he got a hold of a cheerio and it was disaster! LOL Does anyone know of a step 2 formula that has more calories in it than the Nutramigen to help him put on some weight? I have a friend who is a nutritionist and she keeps telling me I need to put him on non pasteurized goats milk because it is a miracle cure for Everything- but I'm afraid to try it. I have had other children that needed to go on soy milk after their 1st birthday too- has anyone had any experience with this and whether their lo's had weight loss from it?
May 25, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
You won't need to go to a next step formula right away. A change in formula for a stable GERD baby is not fun. I'd just call the Ped or GI and get the directions to mix your infant formula to 30 cals and see how it goes. They may also want to add in a multivitamin of some kind as well to make it even more nutritious.

Jedd went at 11 months from Alimentum to Pediasure, that was a horrible nightmare. We ended up on Peptamen JR (VERY costly) and he did great on that for a while. We didn't start milk until around age 18months.

Just re-read your post, I'd stay on the Nutramingen for sure. Just concentrate it to more cals for a more active child. Jedd was on 27 cal Alimentum from about 9 weeks old for FTT and his heart defect.

The thing is this, Nutram. is a broken down formula, if you go to a next step that is NOT as broken down, you're gonna have GI issues for sure. JMHO but I wouldn't switch to milk or soy. I'd ride the Nutram for longer even up to 18 months if needed.

Also, if you are still on the bottle and the %tile is that low, I'd keep doing what is working. Again, you don't want to rock the boat. It could cause other feeding aversion issues, which to me, it sound like you are having already with the gagging and chocking on foods.

Have you called Early Intervention to get them to come out and do a free eval at your home??? they can have an OT come out and work with you on oral motor skills that can decrease that gagging.

May 25, 2009
johnniesnewmommy
We did have an initial eval but they havent scheduled the appointment yet for the full work up. Here in Oklahoma they do a complete eval for everything from speech, hearing,vision, motor skills and nutrition etc etc... So as soon as that is completed we will be able to start working with a therapist and a nutritionist. It's just his doctors keep saying "He only has another month on the formula so we should start trying him on milk" and I'm thinking "Your Nuts" but then again I'm not the doctor!
May 25, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
You may not be the Dr but this is YOUR child. You do have the say so in what you FEED your child. It's not like every other Mother has to get approval from their GI or PEd to feed certain foods....KWIM??? LOL

But this is coming from a Mother who stared down a surgeon and told him NO. So, I have a tendency to be VERY outspoken about our DS medical care. I learned the hard way to grow a strong spine. Jedd suffered with a horrible GI for a very long time. After switching, I learned that as our child's Mother and BEST advocate, you have ALL the power. What a DR wants is not always what they get.

The Drs should be willing to work with you on what will work BEST for YOUR child, not what is appropriate for all children. Each child is an individual and should be treated as such.

I would remind them of the oral aversion thing (esp since you don't have a tube to put it through in case these changes go full blown aversion wise).

You don't want to attempt a switch and completely upset the apple cart. If things are going so so with what your doing right now, I'd stay the course. It really will NOT hurt.

Since you have already qualified for EI I'd call the nutritionist there and get her opinion on this as well as whoever will be doing your in home therapy. I'd venture to bet, they will agree with me *grins from ear to ear* ROFLOL.

It's just that we have BTDT got the T-Shirt. Changing things for feeding aversion kiddos is NO joke, it needs to be taken seriously. KWIM?

May 26, 2009
lindy wyatt
I am in the same boat. Adeline will be one year on Friday. She is still taking a bottle five times a day, every three hours, almost 5 ounces. On Nestle Good Start "Purple", their basic. 24 cal per bottle. Can't do more than that. Some 2 and 3 stages of solids twice a day. Just started with the Happy Baby puffs and she choked. We have been working with the early intervention group since the beginning. An OT comes to the house twice a month. Has been a BIG help. She told me ANY time I introduce a new food or something solid put it in the SIDE of her mouth. Made all the difference. She has six teeth that are halfway in. I thought put it in the center and let her chew. The tongue goes over to the side of the mouth and then moves it to the center and down the throat. Saw our feeding specialist/ speech therapist last week she said ditto. I am going to keep going with the bottles/formula. Introducing new food has been so scary for us!!! These emails have been so helpful and make me feel like I am doing the right thing. Our nights are still dreadful. It is that whimpering that keeps me up all night and think that she is in pain. Give her the binky and she goes silent. She doesn't really wake up. We started on Miralax a couple of weeks ago and it is really helping with her reflux and making pooping easier. Started probiotics too. Still on prilosec. Please keep me posted on your transition with foods. Anxious to see how you do it!!!!!!
Check with your
doctor first!