Posted By Posting
May 21, 2009
shyannsmommy09
New here, needing help, support, and even hugs
Hi everyone, my name is Faye Im a new mom to a 3 1/2 month old baby girl named Shyann. She was born February 5th and I knew right away she had some form of reflux. We finally got her on medication around 1 1/2 months of age for what my doctor called Silent Reflux. She was put on Zantac 1.2ml dose every 12 hours along with Maylox at 1ml every 4 hours but I just give that to her as needed. She was an all together unhappy baby from the time she was born. For the first few months she slept in a Boppy because she hated laying down flat and wouldnt sleep if we tried it that way. She would scream in her sleep and still does at times, you could always hear her getting "stuff" up and swallowing it back down and that would make her scream, she arches her back when she eats, and just recently its gotten worse. We have gone through changing formulas a million times. She was on Enfamil Lipil and then was tried on Enfamil Gentlease then Similac Allimentum, and then we finally put her on Similac Isomil (Soy) and she did so well on that and for the past 2 weeks was the most happy baby I have ever seen. I couldnt even believe she was my child thats how big of a change it was. But for the past 2 days she has been misserable again. Now its to the point where she doesnt want to even eat. Yesterday durring the day she only had about 120z of formula and she usually eats 6oz per feeding. She wasnt spitting up or anything but I called the doctors office just in case and they just told me to syringe feed her and give her pedialite for dehydration. Once nightime hit she took her nightime bottles just fine. Now today she is eating but spitting it all back up. Sometimes just dribbling leftovers down her face and sometimes projectiling it. I just dont understand why she will get better for a short period of time and then go right back to being misserable. Im at my wits end and I dont know what else to do. She wont see her pedi again until the 8th of next month and she has never lost any weight with her reflux so everyone just says to wait it out but I dont know how much more I can take. We even spent time in the ER for them to just have me feed her, rock her, and then send me home with them looking at me like I was crazy and that there was nothing wrong with my little girl when I know there is. She is in pain and for some reason Im the only one who wants answers. So I figured I would come here looking for help, even just hugs and knowing other moms who have been through the same thing helps. Sorry this is such a novel lol, I hope to get to know you all!
May 22, 2009
prayer
hugs:)
Congrats on your baby! My daughter had very similar symptoms at 3 1/2 mo. Plus, she had problems with choking on "nothing" and I was taking her to doctors and the ER left and right. In the ER, they kept telling me "all kids choke", "it must have been a piece of lint", "it's nothing" I think most ER Doctors know how to treat a heart attack, but they are behind in the GERD information department. I spent over a year freaking out about my daughter's symptoms. You have to just accept it....stomach acid is not something easily controllable. It can take a long time to find the right treatment. Most GERD disappears by their first or second year. They survive it, go to college, and forget they ever had GERD. As Moms it's hard not to be able to "fix" everything for our kids. So just take a deep breath and focus on staying calm. You might just have to "hold her hand" through it for now.
May 22, 2009
johnniesnewmommy
First off welcome- I was so excited to find this site myself- so I'm sure you will get all the support you need and the information everyone has to share is amazing. First let me start with the formula- It took us trying every formula under the sun until we found one that he could tolerate. We use nutramigin, it is more expensive but so worth it. We tried allimentum but he hated it. You said that she was doing really well and is now miserable again- that happens to us about every week. The doctors always blame it on a virus, but at this rate he must have had every virus known to man. There were so many months when the only time my baby wasnt screaming was when we were outside walking. Sometimes he was happy on the front porch swing as well. The outside always seemed to calm him and I thought I would have legs of steel from all the walking but if it helps by all means do it. He also went through a stage when he was only taking 1/2 an ounce at a time and refused to eat. I found that he would drink the pedialite so I gave him that as often as I could for hydration and just kept trying the formula- even if he only took 1/2 an ounce at a time. I knew he was staying hydrated and getting some nutrients in the formula. Eventually he started eating a little more with each feeding and then it didn't scare me as much. You might also need to change her medications. The Zantac didnt work for us much. A little at first but then he got much worse. So I would call your doctor and ask if they can change the medicine to something stronger because clearly the Zantac in itself is not enough. I know its a pain to change formula but that is where I would start along with trying to get her on a stronger medicine like prevacid or prilosec. I know it is so difficult but if you just hang in there it will get better. I dont know if you have a baby swing- but that saved my life- it was the only place he could sleep for more than a few minutes at a time. I loved the rainforest one because you could plug it in and you didnt have to buy a million batteries. Hang in there!
May 22, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Welcome to a safe haven! This place saved me...literally and figuratively. Some thoughts that came to mind - teething? Teething can cause nasty reflux flare ups, even on the correct meds. Teething also causes ear pain, jaw pain, drooling, unwillingness to eat, etc.

Another thought - MSPI or MPI (the protein intolerances) How is the stool? If you notice mucous or blood, it could be the milk or soy protein cansing a lot of the GI issues. Many of these kids do the best on hypoallergenic formulas (Nutramigen or Alimentum) or elemental formulas (Neocate or Elecare) even if they're not actually allergic. My dd did better on Nutramigen (and that was also after 8 other formula changes) and then we settled on Good Start Natural Cultures - the probiotics help rebalance the GI tract.

Meds - may be that Zantac and Maalox aren't enough. Most of these kids need a PPI like Prilosec, Prevacid, or Nexium. Some even need both the PPI and the H2 blocker (we did, and my dd's case was mild)

Bottles - some kids are very particular to the bottle/nipple they use. A lot of the moms here use Dr. Browns - we used Playtex Drop ins with much success.

Feeding, sleeping - elevation is key. Upright as much as possible (gravity helps keep the acid where it belongs). We never sould elevate my dd for sleeping, but we got permission at 4 months to prop her on the left side, which worked much better. Swaddling helps keep them calm, and you may need to modify the swaddle (we had to leave my dd's hands free or it was a no go. She was fine with everything else contained.) Have you been given the go ahead to perhaps thicken the formula? There are many forms out there. Many use Simply Thick or ThickIt; we used oatmeal cereal. Beware of rice - it can be very tough on our refluxers. The Simply Thick and Thick it add really no calories, but the cereal will, so if you go that route, perpare to have a little chunker for a while ;-) Hope all this helps - vent away here, mama. We've been there, drenched in vomit, sleep deprived, angry, frustrated, and ignored by the medical community. Don't be shy about fighting for what you think is right - many of us have gone toe-to-toe with a doctor!!!

May 22, 2009
shyannsmommy09
Thanks everyone! I ended up taking her in to the doctors today because she wasnt getting any better. They found that she has an ear infection in her right ear, this is the second one she has had since she was born. So he put her on meds for that and he also agreed with me that the Zantac wasnt working so he perscribed us Prevacid. Im currious for you who have had babies on Prevacid how you gave it to them? They gave us soluable tabs and my pedi told me to quarter them and put the pieces inbetween her cheek and tounge till it disolves but the pharmacist looked at me like I was crazy and that there was no way I was going to be able to do that without her choking. She is due to have her medication around now so it wil be interesting to see how it goes. Hopefully this helps and she will start to feel better.
May 23, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
You will be able to administer just like the MD said and that's what many of us did, but if it doesn't work, you have 2 other options.

Get a syringe (at least a 3 ml), put the cut tabs in, and draw in enough water to dissolve them. Shoot it into her cheek. You will have some granules left, but I just kept drawing in water to get as many as possible. Prevacid does actually make their own syringe - you can ask the pharmacy or you MD for it.

Make a paste with water and the tabs, use a spoon and scrape it onto her upper gums.

Just a warning, you will probably be in for at least another 2 weeks of all symptoms before you'll see much improvement, possible longer (It took us about 4 weeks before we saw my new kid emerging.) Make certain that tummy is EMPTY - recommendation is 2 hours after last meal and at LEAST 15 min before next one. Many times you don't have that window, so an hour usually works well enough. And no other meds for at least 2 hours on either side of the Prevacid dose, especialy Maalox. You can still give Maalox as prescribed for breakthrough pain, but definitely make sure that it's nowhere near the Prevacid - it blocks the absorption. HUGS - good luck. Bear in mind it DOES get better with time, and that you will slide backward at times too.

Check with your
doctor first!