Posted By Posting
May 15, 2009
lma4au01
Silent Reflux Concerns
I am a first time user to this site -- I joined because my 7 week old daughter is suffering from silent reflux. My doctor has prescribed Zantac and Reglan to her, but I'm wondering if Prilosec or Prevacid would work better for her? My husband and I can't stand to see her in so much pain. We have switched formulas probably 5 times -- we've recently been on Nutramigen, but switched to Similac Sensative RS because the added rice starch is supposed to be a thicker consistancy than other formulas. She cries hysterically multiple times throughout the day. She is also wanting to eat every 2 1/2 to 3 hours. She takes her bottle and gulps for several minutes before spitting out her bottle to scream. She makes her entire body stiff as a board and you can't do anything to calm her down. This may last anywhere between 15 minutes to over an hour. She doesn't do it at every single feeding -- it occurs randomly. Any help or advice would be greatly appreciated! Thanks so much!
May 15, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
Zantac is a "starter drug" sometimes it helps the kids a lot, but it's not as potent as Prevacid. If you have been on the Zantac for a couple of weeks and are still seeing this then you need to ask for a PPI like Prevacid or Prolisec. We have been on Prevacid since Zack was tiny. The solutabs dissolve nicely in water and you can syringe it in..you can't feed it througha nipple well as the time release beads get stuck...you'll aslo have to wait a half hour after to feed. Good luck...tell your doc that the episodes haven't been helped by the Zantac and you'd like to try Prevacid. We sampled it before we got a full prescription...it was obvious that it worked for us within a week...some people need two weeks to see the change. We all know how frustrating this is...welcome to the group!
May 15, 2009
mommy2k
How long has she been on the zantac? It sounds like the zantac isn't covering the pain for her. We had to make several med changes for my 5 month old son. He's also got silent reflux. I've heard that you need to give formulas a good two weeks before switching unless it's obvious that it's causing a lot of problems. Also it helped my little guy to give him maalox or mylanta to help with the pain as well. Have you had any tests done? Usually an upper gi is the first one to rule out any anatomical problems. Welcome to the group! This group has a lot of wonderful support and advice. Everyone is so knowledgeable and caring. It's definitely a roller coaster with reflux. And a lot of sleepless nights and screaming. We can all relate to how frustrating it can be. I cried and still do somedays right along with my little man. It has gotten better for us but we have gone through alot of different meds. We found a wonderful GI too. I wish you all the best and don't be afraid to ask lots of questions.
May 16, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
As a former user of Prilosec, I'd go with Prevacaid. Prilosec would need to be compounded (not a good idea) or you would have to split pills, also not a good idea...LOL

ALOT of kids do really well on Prevacaid. We just couldn't use it with Jedd because we needed a liquid so it could fit down his feeding tube.

As far as which formula is better....that's a hard call. Nutramigen is def. a better formula than S.S. when it comes to being broken down. Each kid does different. I will say, don't change too much at once or you won't know which change helped...make sense.

I would really really push to get a PPI on board. Also, once you get an RX for it, if you don't see results or you feel the dose it too low, PUSH to get a higher dose. Some kids just need that higher dose to get relied. Jedd always did and so don't many kids here.

May 16, 2009
mommato3
I'm with the other moms about PPI-Prevacid. It is sometimes more expensive but so worth it. Don't get it compounded either. Use the solutabs first. Jeddsmommy is right. If you don't see a HUGE change in about 4-6 weeks keep fighting to up the dose. I pushed and got my son on a high dose of Prevacid and it spelled RELIEF. Babies metabolize things 3 times quicker than children so they sometimes need the same dose as a child for things to heal. Research shows that if a PPI isn't working then it most likely isn't dosed high enough. Some babies though don't need a very high dose. Just keep that in mind.
May 19, 2009
lma4au01
Thanks!
I appreciate all of your wonderful input. We have been back to see her ped since my first post -- she completely took her off of Zantac and Reglan and prescribed her Prilosec. We've only been on it a few days, but after reading your posts -- Prevacid may have been the route to take. We are also giving her Mylanta and adding oatmeal cereal to her bottles (doctor recommendations!) She did great for a couple of days, but now she's having trouble again. It's so frustrating! Her ped told us to come back if things are working and we'll try something else. She also mentioned sending her to see a GI specialist if nothing else works.
May 19, 2009
mommato3
GI specialists are the way to go. They are the best at working with you on the right combo and are most of the time willing to up the dose as needed. Most of the time you will have to wait for a GI appointment so I might ask for a referral now if you have to go back in. Usually it will still take a couple of months to get into the GI after the referral has been made.
Check with your
doctor first!