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May 13, 2009
nithya
Could this be oral aversion?
Hi All, my 4 month old dd has been on a total strike from drinking since yesterday. I thought maybe the constipation and gas made her feel bloated and she was not hungry yday... After a 12 hr strike she started drinking at 7 PM yesterday. Today morning she did poop very well, and is def. feeling hungry today. She is cranky as she is hungry, still she is crying at the site of the bottle... This morning I was able to spoon feed the thickened formula... And I am pretty confident her reflux is well under control. Because once she started sucking last nite she did not show any discomfort. Please share your experiences if you faced a bit of oral aversion at some point with your LO and how did you overcome it ? Your inputs have always helped me , thanks in advance. Nithya
May 13, 2009
lchang4
My dd seems to be the same except she never looks hungry. She's 5 months adjusted and I think she's teething or bottle aversion. She likes to put her hand and toys in her mouth but cries when I try to feed her. We are being referred to a feeding specialist and the GI allows me to take probiotics to have it pass it along though breastmilk to stimulate her appetite. Hopefully that's the trick. Maybe your baby is teething too.
May 13, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Yes, I have definatetly been there. Ryan went 7 consecutive days in Jan, 9 consecutive days in March and another 6 in April. I can definately share his story with you, how I got him through it and what I would do differently. However, before I do that I want to ask you some questions. (I think one of the rules is to not scare the new people. :) ) 4 months feels young to have an adversion. Does she wince when she trys to take the bottle? What meds is she on and how much? Have you had her in to the doc to check her ears and throat? An ear infection or a sore throat (from uncontrolled reflux) might well be your culprit. I know she is drinking for you at night, but Ryan did too. Ears and throat were always at the root of the problem for us. His reflux was totally out of control only we didnt know it because he was so happy... until you tried to feed him. If she doesnt start drinking for you during the day tomorrow I would call you doc and have him/her take a look at those things. If you dont find anything there, let me know and I will tell you more about Ryan.
May 14, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
That's such a loaded question. It really is. It is hard to answer because every child is different.

FWIW by 16 weeks old Jedd had a full blown oral aversion and refused to eat anything. period. NOTHING NADA, completely tube dependent from that point until around 18 months old. NOTHING was going down the hatch. So, it IS possible :-(

We have been told that the high IQ kids tend to catch on faster. Jedd seems to be pretty bright now that he's old. He figures things out I never thought a kid his age could. At 18 months he could unlock both the inner and outer front door and get onto the front lawn. I had to install child locks on all the doors for his safety. He could also figure out how to get on top of the kitchen counters at that age as well too. He's a trouble maker for sure.

The number one thing for deciding if it's a full blown aversion and not real PAIN still is......do you think the pain is under control??? Ours was a combination of feeling crappy from his heart defect with pain from the GERD which we just couldn't seen to get under control no matter what we did.

What kind of meds are you using and do you think they are working????

All that aside, even if the child is IN pain, it could still be an aversion. Can you get Early Intervention involved. But I can tell you what our private ST told us, NO child will eat until their medical issues have been resolved. Just about ALL feeding clinics will tell you the same thing.

Deal with the GERD first, get it under control, then work on the aversion. Unfortunately, in some cases that means placing a feeding tube. I'm not saying it does for you. If you can continue to "sleep" feed, then you will be able to get weight to keep improving.

May 14, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Here are Jedd's signs of an aversion (also pain association) These were all exhibited by about 16 weeks old:

Screaming, yelling, swatting at spoons and bottles.

Bouncing the bouncy seat up and down on the counter top to get away from the food. (we fed him in a bouncy seat. It would quite literally, shake up and down on the counter top. Enough to just break your heart.

Shaking head back and forth.

Clamping lips completely. shut. tight.

Vomiting at the sight of food, or the smell of food whether it be on a spoon or the bottle or while walking around some where. We could literally see Jedd turn "green" while walking the food court at our local mall.

Doing anything to avoid eating....like......pretending to be asleep, playing with the straps of the high chair, asking for toys to be given to them, and whining until you cave.

Eating only from ONE person, in a special way, off of certain spoons, utensils, or plates, and only in a certain setting.

I'm sure there are more that I am not mentioning. These are just some of the ones that Jedd has exhibited.

Some kids also have textural and temperature issues with foods. As well, as some kids have to eat certain colors of foods. My sisters SS has an affinity to eat "white" colored foods. She has a M.R. DX due to a Chromosome disorder.

Those kids have sensory disorders involved with their feeding patterns.

Like I said in the beginning, alot goes into a feeding aversion. ALOT. What can work for one kids may or may not work for another kids. that is the most frustrating part of feeding a child with an aversion.

I will tell you it does get better. Jedd eats now. Not like a normal child, but he does eat and will often ask for a cookie. *grins form ear to ear*

Let us know what is going on during the feedings and we can help better.

May 14, 2009
nithya
vigilantmom - answers to qns
She has no throat / ear infections, we took her to the doc and confirmed those. Also her reflux seems to be well under control to me. She is just unhappy and doesnt seem to act hungry at all and lets out an irritated cry when I put the bottle in her mouth. It is not even a cry in pain. Why I think it seems to be less appetite is she was drinking in the nights - but for the past 3 days her total intake durinf nights is just 4/5 oz. She takes at the max. of 2 oz even during night feedings. She is on 7.5 mg 2x daily Prevacid Solutabs. And carafate as needed.
May 14, 2009
nithya
During a feeding
During a feeding - she sucks a little bit and spits out, plays with the nipple pushing it from side to side, looks around the room and appear distracted.If I am too persistant, she lets out an irritated short cry. I feel so helpless. I am thinking of putting her in a day care - maybe she will have a change in environment and look at other kids her age drinking. Does it sound like a crappy idea?
May 14, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I'd be careful about putting her in a day care unless they are willing to work on getting her to eat. They will just "give up" and assume she is not hungry and won't try to feed her no matter how little she's taken. Right now, I can't find a day care to take Jedd. We've tried. they won't spend the time feeding him since he has NO age appropriate feeding patterns.

I'd say that it sounds like an aversion. Without being there to witness things it's hard to say, but if it's not a pain cry, then I'd say it's an I don't wanna eat thing (aversion)

Have you had any Gastric emptying Studies done??? I know with us we wanted to rule everything out before approaching Jedd's issue as behavioral (aversion) in stead of medical.

I mention that because kids who's bellies empty slower don't get hungry like normal kids. Not always the case, some of them will eat and eat and eat until they puke a TON!!!! Like bucket fulls.

It may not be an emptying issue. It just may be she's learned not to eat. Or her belly has learned not to stretch to take a full meal.

May 15, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Hey, just checking in on you. Has your dd started drinking yet? I do have Ryan in daycare and I was very lucky that they worked really hard with him. Most importantly it gave me the mental break I needed to tackle the issue as calmly as I could in the evenings. We would drop him off late and pick him up early but that few hours was good. The ladies in the infant room are all grandmothers so I figured that between the three of them they had seen it all. Those days were really hard, scarely and stressful but we got through it. Will your daughter take her formula if you give it to her through a medicine syringe or will she spit it out. I wouldnt morally suggest that but I had to do it with Ryan. It was that or the hospital so I did what I had to do.
May 17, 2009
nithya
hi vigilantmom,
thanks for checking in... yes after 3 consecutive days of 10 oz a day she has increased her intake to 17-19 oz now... she absolutely refuses force feeding through a syringe although she does sip 1 or 2 oz through a soup spoon at a time.... I figured out prevacid had made her lose her appetite , so I cut down her dosage by half for 2 days to trigger her appetite a bit.. Not sure if it worked or Nyah simply moved back into the positive curve of feeding...
May 18, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I am so glad to hear she is drinking again and that you didnt have to resort to a medicine syring. I hate that I had to do that and it caused it's own problems that we had to work through. You made it through a tough one. Way to go!!!
Check with your
doctor first!