Posted By Posting
May 06, 2009
bellakelsey
-Kelsey, mom to Drew (born 3/26/09)
New mom looking for sage advice :)
My son Drew is six weeks old and we have been battling reflux for about a month now. After advocating for Drew to our pediatrician (explaining that this is NOT just normal spitting up, that our baby was clearly in lots of pain), we are now beginning to medicate. Our brief stint on Zantac brought no improvement so just yesterday we started Prilosec. My question: Is there anything we can do to help Drew with his pain while we wait to see if the Prilosec helps? I've read some about Mylanta or Maalox--anyone have experiences to share regarding that option? Last night he screamed for five hours straight (even screaming through two feedings!), collapsed into exhausted sleep for about 40 minutes and then was back up and at it. The poor child is so tired today--puffy eyes, scratched up face, hoarse throat. I am crying with pity for him! Thank you in advance for any advice!
May 06, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
I'm sorry that you are going thru this. It sounds all too familiar. It is so hard to see your baby in pain, but you are a good Mom for advocating in what you beleive.

We did Maalox for both my Jazz and now my 3 1/2 month old is on Zantac and has Maalox for breakthrought pain. Our pharmacist and Dr said to give 2.5-5mg every 4 hours or as needed. I would definately give it a try, since your poor little one is in so much pain. You can ask your pharmacist for the correct dose of whatever you choose.

What is Drew currently drinking? Some babies do really well on Nutram or Alimentum. Or if you are BFing, maybe try eliminating all dairy and soy from your diet? That helped Jazz a little bit. Welcome to the boards!

May 06, 2009
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
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Since you are using a compounded medication (Prilosec) please read this link and make sure that your pharmacist is making it correctly.

http://www.infantreflux.org/forum/forum_posts.asp?TID=4505

The screaming for hours is exactly what my Abby did for most of her first 4 months. How often is he getting the Prilosec? Abby did best on taking Prevacid am & pm. We kept Abby on Zantac for 2months after we started Prevacid since it takes a few weeks for the Prevacid or any PPI to take full effect. Just had to make sure that they were hours apart. Abby also used to scream through her feeding. She didn't start to eat better until we switched her from Nutramigen to Neocate. She had MSPI (milk soy protein intolerance).

I would also suggest you see a pedi GI. They have more expertise in the area and usually are better at helping you find the right combo of meds and formula or diet if bfeeding.

May 06, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Welcome, though it's tough to have to be here. Unfortunately, most of us have gone through the soaked-in-vomit-all day and night, with the kid screaming incessantly for hours with no sleep. All too familiar.

It does get better.

We did do maalox for breakthrough pain, but I can't recall the dosage right now. We still do it occasionally at 4.5 ml (she's 20 months and 21 lbs - the pharmacist can help you with dosage.) Just a thought to keep in mind - if you kid tends toward diarrhea or constipation, it matters which formulation of Maalox or Mylanta you try. If your son tends toward constipation, go for the formulation with aluminum/magnesium. If he leans toward diarrhea, go for one containing bismuth. I can tell you from experience that it is NOT a good outcome of you take the wrong one!!!!

I echo the call on the compounded meds and formula. I found that even though my kid's not MPI or MSPI, she sis much better on the hypoallergenic formula (Nutramigen) when she was at her worst. It's easier to digest, and even the pukers can usually absorb some of it.

Prevacid is also a consideration - many kids seem to do the best on it. We did Zantac, then Axid and Prilosec, then Axid and Prevacid, then Pepcid and Prevacid (our miracle!). I'd also ask your MD about adding back an H2 blocker like Axid, Zantac, or Pepcid in addition to the PPI (either Prevacid, Prilosec, or Nexium) HTH - HUGS mama - vent your frustrations and joys here - we're all here to help and we've been there and persevered!!!

May 06, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
These days are so hard but we can promise that it will get better.

In addition to the great advice that you have received above I would suggest a baby carrier like baby bjorn. Won't help at night, but during the day it was a life saver. It kept Katie upright and she could rest while I got some things done.

Nighttime is tuff because it is hard for them to be laying down. Katie mostly slept in a bouncy seat. Wish I knew about the amby beds/tucker slings back then.

ALso, she just couldn't sleep on her back. You may want to talk with your doctor about this. There are monitors that you can get for babies that sleep on their bellies. For some reason Katie was much much more comfortable this way.

Don't know why but white noise was a life saver. Maybe it drowns out their pain but I discovered it with my stove fan and then later bought a noise machine.

I have always found Mylanta (others use Maalox) to be the most help of anything. It soothes their little bellies temporarily and gives them a respit from the pain.

It is so hard for these little ones but once you get the formula and meds just right you will be on your way.

May 06, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
prilosec can take up to 2 weeks to work so if you do give mylanta or maloxx (we used walmart brand mylanta b/c it has anti-gas med in it too!) make sure you give any antacids (mylanta/maloxx) at least an hour before OR after the dose of prilosec.

small (2-4 oz) frequent feeds are always better for refluxers.(talk to a dr about the right feeding amounts and requirements for your son)

being upright is best. bouncey seats are alright but sleeping in car seats and swings, not so good. look into the tucker sling and wedge combo OR the cheaper method elevate the head of his crib or mattress to a 30 degree angle with books. You can also put a pillow under the mattress and put a U-shaped towel under the crib sheet, under his butt to stop him from sliding down.

emily was/is a tummy sleeper and even still elevation worked well. that and sleeping on my shoulder! lol good luck!
May 07, 2009
lindy wyatt
mylanta
we used mylanta early on with Adeline in the evenings. she liked the cvs cherry flavor. i worried about the aluminum. know they make one without. two great books that helped me, actually saved our lives was colic solved, bryan vartabedian and the reflux book, beth pulsifer-anderson. my sister found both of these and they were so helpful. she also picked up the book child of mine, feeding with love and good sense, ellyn satter. this was a good one too.
May 07, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Just look out for the possibility that is an allergy/intolerance. We were told "reflux" & given Prevacid for a very long time before figuring out that it was food allergy (well dairy & soy in the beginning). El
Check with your
doctor first!