Posted By Posting
May 06, 2009
rileysmomma
Daughter diagnosed with severe GERD at 2 1/2 months had it since birth, tried reglan, settled on prevacid 2times a day for 4 months...had Upper GI's,ultrasounds,labeled failure to thrive, but finally found a solution with doubling formula calorie intake. We tried formula after formula and Nutramigen was the only solution. With time, and wieght gain and feedings every two hrs she finally got to where she needed to be. She still has occasional reflux moments but no where near as bad as what they were months before.
Switching from Nutramigen to soy milk/ or step two
I ahvent posted in awhile, and needed some advice so bear with me on this long post..lol... Riley has been reflux free fro awhile now, thankfully. But lately Ive notcied what I think is silent relfux... she looks like shes going to 'burp' or 'throw up' but nothing then goes on her way. She turns one in less then a wk and so far has been a VERY picky eater. She has maintained the 40% for her height and wieght, but the dr is always watching b/c she has a tendancy to not gain for periods at a time. she is otherwise a healthy lil girl. Well I had asked her ped. about step two formulas and she dismissed them as being a waste of money and not needed... so I thought that we would just slowly transission her to soy milk then. She has been allergy testes twice and has no known allgeries but still doesnt tolerate large amounts of dairy well, so they think she has what I ahve which is an enxyme deficency so soy would be the best bet.. however I have tried giving her an once in her bottle with the Nutramigen and she refuses after a few sips! We have two cans left from a large shipment we ordered awhile back of nutramigen and I was hoping to not have to order more and have her transitioned but at this rate I dont know if she will ever.. did any of you have better luck with step two soy formulas or have any advice? and is it normal for a child to develop silent reflux after having had 'normal' reflux her entire life and it going away? thanks ladies soo much!
May 06, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Silent reflux can develop - my dd did this as well at around one year. We very gradually weaned to milk (1/2 oz at a time over a 9 week period.) Once it was half and half, she took full milk no problem. I did do the toddler formula for about 4 months since all of a sudden my dd's growth plateaued (just to keep the extra nutrients in her).

It can take a while to wean, and if she's still doing well on formula, I see no reason to rush to change it. We did formula until about 15 months or so with no problems.

Just a thought, could you try lacose-free milk? it's sweeter than milk since the lactose has already been broken down, so she may like it more.

May 06, 2009
rileysmomma
Daughter diagnosed with severe GERD at 2 1/2 months had it since birth, tried reglan, settled on prevacid 2times a day for 4 months...had Upper GI's,ultrasounds,labeled failure to thrive, but finally found a solution with doubling formula calorie intake. We tried formula after formula and Nutramigen was the only solution. With time, and wieght gain and feedings every two hrs she finally got to where she needed to be. She still has occasional reflux moments but no where near as bad as what they were months before.
I had never heard of lactose free, I just assumed it was soy or nothing b/c of her enzyme inbalence. I talked with my husbadn tonight and we tried her again with an ounce in her bottle, and she took most of it ok... thankfully. But I dont think Im ready to let her go off formula.. the dr is kinda pushy, and we're first time parents so I kinda follow her lead on some things but I see no reason if Riley is a picky eater as is to take that from her right now. I had just heard from her GI dr that long term use of NUtramigen can hinde their bodies ability to digest food since its a broken down protein the body isnt used to breaking things down and working to digest.... so we may just try the step two and see how that goes at least I wont have to worry about her not getting enough nutrition throughout the day. So what do I do about the silent reflux? and I have noticed she gets hiccups several times a day now, sounds funny but It started around the same time..
May 07, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
emily switched from "regular" reflux to silent reflux but did it around 5 months. it took us a loooong time to switch from nutramigen to milk; i'd say maybe 2 months. one month was complete refusal and that was mostly b/c i put it in a sippy. she hated sippies and when i realized i should keep it in the bottle then worry about switching to the sippy later she did much better. i would try lactose free milk too it's next to soy in the fridge at most every store. you can get her on vitamins that would be okay in place of step 2 formula. good luck!
May 08, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
If she is refluxing still (even if it is "silent") then she still needs the meds. It is treated the same way as reg reflux it just makes it harder to identify sometimes.

I agree with keeping her on the step 2 lactose free, IMHO I would not want to take away too many nutrients from a picky eater.

That having been said, if you don't allow her to try new foods when she is hungry then you are setting yourself up for a "fight". You may want to try to introduce the real foods when you know she generally acts the hungriest. Then you can "top her off" with the step 2 formula, if that makes sense.

My girls would have drank all of their calories and refused regular foods if I didn't do things that way with them. I have stubborn girlies though. ;) HTH!
Check with your
doctor first!