Posted By Posting
May 04, 2009
fiddle1
Fiddle1
DD 10 mos.
15 mg prevacid solutab/day
dx GERD at 4 weeks
had relatively peaceful 5 months-9.5 months
now regressing, waking 10+ times/night,
not sleeping longer than 1-2 hours,
waiting for bronchitis to go away
docs say secondary reflux b/c of chest infection
Wedge or Amby Bed?
Hi. Thanks in advance for any advice you might be able to share. Quick summary: My DD is 4 months old. When she was 1 month she was diagnosed with GERD based on symptoms and weight loss. She is exclusively breastfed, and would come off the breast crying, along with vomiting. She was started on Zantac and Levosin. Within 24 hours she began feeding much better and regained her weight in a week. I was also able to feed her upright on my lap as she was in a Pavlik harness and this was the only comfortable way to nurse her. We trucked along great until 2.5 months. She began crying in pain randomly during the day and waking more at night. She went from sleeping 7-8 hours without waking us to waking every 2. Most of the time she awoke fussing. It got so bad that only I could comfort her back to sleep. The Ped increased her zantac dose. By now she was out of her pavlik harness and I was nursing her in the cradle hold, but still elevated. I saw no effect from the increased dose and requested something different. The ped put her on prevacid, 7.5 mg, once per day. She also made us stop the zantac. We went thru 2.5 weeks of SHEER HELL as dd woke every 1-2 hours. Finally, the prevacid must have kicked in b/c she was less irratable..and for about 3 nights she slept for 5 or 6 hours without waking. Meanwhile, the ped referred us to a GI specialist to be sure we were on the right track since night waking was still occuring. She put dd on prilosec (instead of prevacid)1mg/kg/day in two doses. It is now day 5 since we switched, and I noticed an immediate increase of irritability and night waking as soon as we stopped prevacid 5 days ago. I MIGHT see an improvement just this morning, but saturday she woke every hour and squrimed and refluxed all night. The GI doc said this might occurr during the switch. I tried elevating her crib, but that seemed to have no effect and she seemed to awake more often. I may not have it high enough? I'm afraid she won't like the Amby bed since she is already 4 months. Do any of you recommend the wedges or amby beds? We go for an upper GI xray on Wednesday to be sure there isn't anything structurally wrong. DD's weight is good now, but she is still in pain and is always so tired during the day. We are too, obviously. Any advice? I'm gathering it may take a mix of meds/doses that works best for her..it seems different for each baby. But what about the sleeping devices?
May 04, 2009
mommato3
I use the Tucker Sling for my son. He has severe GERD and just found out sleep apnea from it as well. We didn't start the Tucker until about a month ago when he was 41/2 months old and he loves it and I love it! I guess he realized it helps him and he feels better so he sleep better. We had his bed inclined but he just kept sliding down. We tried towels to keep him from sliding but they didn't work as he got too big. I guess all babies are different but our little man LOVES his Tucker sling. As for meds, I don't think 7.5 mg of Prevacid is very much. How big is she? I don't know much about the prilosec. My little man is on Prevacid 15 mg twice a day (which is a big dose). Different doses and meds work for different kids. Everyones different. Why did the GI doc switch you off the Prevacid and not just increase it?
May 04, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
I have to be brief but..... I echo the med questions above- 7.5 seems light, did the GI say why he switched to Prilosec? Has anyone mentioned MSPI to you? Might be worth checking out as it can exacerbate and even immitate reflux.

We have an Amby we got when she was 5 weeks- she refused to sleep in it until she was almost 5 months and we had her meds pretty much dialed in at the time. She's 7 months now and just starting to get too big for it. She's closing in on 18 lbs and her face seems really close to the fabric- plus she keeps trying to roll over in it, not good. For the 2 months she slept in it it did give us through-the-night sleep, which is no small thing. If I had to do it again I'd probably buy one used off Craigslist or Ebay if at all possible, barring that I would have had it shipped standard instead of the spendy next day(ouch!).

May 05, 2009
fiddle1
Fiddle1
DD 10 mos.
15 mg prevacid solutab/day
dx GERD at 4 weeks
had relatively peaceful 5 months-9.5 months
now regressing, waking 10+ times/night,
not sleeping longer than 1-2 hours,
waiting for bronchitis to go away
docs say secondary reflux b/c of chest infection
Such insightful comments! Thank you. Very good question..now that I think back the only reasoning the GI doc gave for switching was that the prilosec was "easier to give." I may have instigated this by complaining about how I was unsure if I was giving exactly half of the 15 mg solutab of prevacid b/c it didn't dissolve completely in the water. However, after 6 days on the prilosec (which I checked..and we are dosed on the low end of the prilosec also at 1mg/kg of body weight), I'm certain she did better on the prevacid, even at the lower 7.5 mg dose(at the time she weighed a little over 12 lbs..now she's 13 lbs 2 oz). That may have been why it took so long to see an improvement on the prevacid..too low a dose and only once a day. I have a feeling the doc will want to up the prilosec dose b/f trying anything else. Also, my local pharmacist told me he thought most babies did better on prilosec. But I checked my bottle (which was not flavored..and she hates the taste), and there is no expiration date..from what I read it looses effectiveness. Makes me wonder if the pharmacist has a lot of experience with it? The GI doc said give the current dose until tomorrow (1 week) and see, so when I call back I'll question her about the switch and see what she thinks about going back to prevacid..but a larger dose. And, what in the heck to do about the "in between" time b/c I'm done giving Mylanta. I cringe to think how much aluminum my baby has in her system. I found an amby bed on craigslist. i'm still torn over it or the tucker wedge/sling. the gi doc recommended against the wedge for fear of putting anything in the crib..which lets me know she is only open to "book" recommendations and will probably never stray. The wedge seems perfectly safe to me. Any other moms/dads out there try these devices? Thanks again so much to all of you.
May 05, 2009
mommato3
The wedge is very safe. Some insurance companies even pay for it. They are velcroed in the sling which is on the wedge. My little guy doesn't even wake up. You can call Tucker sling number and ask them all the questions you want. I actually talked several times to the lady that invented the sling so of course she knows everything and was very nice. I think someone on here actually had their hospital give them one. I wish I knew more about the Amby to help you. I always heard Prevacid usually worked better and Prilosec suspension could be unstable especially flavored. I would push for upped dose of Prevacid first since it did work better.
May 05, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I have the sling too. While I really like the fact that it keep Ryans head up where it should be not turned upside down he gets a bit miffed in the morning because he cant get out of it to sit up to play or stand in his crib. I try to sneak him out of it when I get up for work in the morning, before he wakes up but the velcro is loud and wakes him up anyway. I still think it is worth it though. It doesn't do you any good to elevate their beds if they slide to the bottom or worse yet end up with their head at the bottom of the bed and their feet elevated. I use my Fisher Price Soothing Motion Glider a lot. I put him in there to sleep for an hour and a half after I give him his last bottle for the day, before I put him in his bed. Your daughter is much younger than Ryan was when I got his sling. I bet that if you start her with it now she would be totally fine with it. One less thing she has to get use to later. I believe it was Cadence's mom who received one from the hospital.
May 07, 2009
lindy wyatt
Tucker's Wedge
Have used the Tucker's wedge since birth. The hospital gave us the website. Used the danny's sling too and then Adeline outgrew it. We put the wedge in the crib, sheet on it, (i don't use their little velcro harness). I turn the boppy upside down and place her legs over it. Roll a big towel up the long way (u shape) and place it around the end of the bobby. She is 11 months and has slept this way since we brought her home from the hospital. She is almost sitting us by herself, don't know what we will do next, but this has worked like a charm. I am still getting up several times a night and give her the binky, some times have to reposition her, but she stays still for the most part. I have her in a pack and play in our bedroom for nighttime and she sleeps her crib during the day. Hope this helps! Have tried Axid, which worked for awhile, then zantac, which didn't. Then moved onto prevacid and that was wonderful for awhile and it stopped working over night. Have been on Compounded Prilosec for about 4 months. 3.5ml in am and 3.5 ml in pm. We have a great compounding pharmacy here in Richmond, VA and they compounded it plain. Keep refrigerated. Has helped. Struggling whether to keep her on it. Just saw a new pediatric gastro doctor at UVA last week and he kinda hintied about taking her off. He put her on miralax last week and REALLY helping with constipation.
May 08, 2009
fiddle1
Fiddle1
DD 10 mos.
15 mg prevacid solutab/day
dx GERD at 4 weeks
had relatively peaceful 5 months-9.5 months
now regressing, waking 10+ times/night,
not sleeping longer than 1-2 hours,
waiting for bronchitis to go away
docs say secondary reflux b/c of chest infection
I can't rave about this forum enough. Thanks again to all for the super advice. A quick update: Lizzy's upper gi was normal (thankfully). I was concerned about the barium constipating her, but I just put her to the breast more often afterwards, and 12 hours later she expelled all of it! I have ordered a tucker wedge/sling and am looking forward to trying it. Also, I talked to the pediatric GI specialist and told her I thought the prevacid worked better. She told me she thought it was probably just a placebo effect and that the prilosec was a bit easier to give than the solutab. As a scientist, I told her I understood that may very well be, but I still wanted to switch back to the prevacid and use an increased dose (too bad for my pocketbook, the prilosec is half the cost!). I found several research articles that indicated two doses a day eased symptoms quicker than one dose per day..but that in the long run the outcomes were the same. She agreed and let me give 7.5 mg in the morning and 7.5 mg in the evening. At least with the solutab I am mixing the meds and giving them to her immediately. With the prilosec, there is just no reassurance that it is stable. The other night i left it on the changing table after giving it and didn't see it until the next morning! I would always wonder what not refrigerating it did to its effectiveness. I hope the switch back won't lead to any surge in symptoms. I know it was probably a coincidence, but yesterday she had her morning prilosec dose (b/f my conversation with the doc), and then I switched to the prevacid. Last night she slept for 5.5 hours, awoke to nurse, and slept for another 3.5 hours. There were some happy mo-fo's dancing around my house this morning! This was the first night of uninterrupted sleep in almost two months. I will update on this thread once we get the wedge. Thanks again everyone for the advice!
May 08, 2009
fiddle1
Fiddle1
DD 10 mos.
15 mg prevacid solutab/day
dx GERD at 4 weeks
had relatively peaceful 5 months-9.5 months
now regressing, waking 10+ times/night,
not sleeping longer than 1-2 hours,
waiting for bronchitis to go away
docs say secondary reflux b/c of chest infection
Oh! I also forgot to mention that a light bulb went off yesterday and I decided to try dissolving the prevacid solutab in a little bit of expressed breastmilk and giving it that way. She slurped it down like a champ. I was able to do it twice to make sure all the little granules got in her mouth and then let her latch on for a few swallows to wash it all down. Now she doesn't mind taking her medicine!
May 08, 2009
mommato3
That's great!! Just make sure you give the Prevacid on an empty stomach and wait 30 minutes before she eats or it won't be effective. I squirt about 2-3ml in a syringe with a 15 mg tablet and then add about 1 more ml of water twice and shake it around to make sure I get all of the granules out. I then wait 30 min. b/f feeding him his bottle. The directions say to give it with only 4 ml of water.
Check with your
doctor first!