Posted By Posting
May 01, 2009
Is it reflux or behavior?
Hi all, My baby was premature at 25 weeks, now 8 months old (5 months adjusted). She has reflux and is on Prilosec and thickened milk. No solids yet. She's now 14 lbs. We have increased her Prilosec dosage already but she's not eating well still. We're feeding her 5 oz every 5 hours. She doesn't seem to be hungry at all. Today I overslept and she didn't eat for 8 hours and yet she still fight the bottle. When I put her in the position to eat, she struggle to get out of it and cry when I try to feed her. But when I managed to get the nipple into her mouth, she would suck and take half an ounce. When I let her off and just hold her upright to stand on her legs, she was immediately very happy and smiling at me. She's always looking around and very excited. It's like she wants to play instead of eating. I tried to feed her in a darkened room with no stimulation and that didn't work either. I don't know if it's a behavior problem or reflux. I heard that reflux medications makes them not hungry and if that's the case, it's a vicious cycle where she's not hungry and I'm trying to feed her and creating oral aversion and then she won't eat even more. She seems to eat better when half asleep. Why is that? If it's reflux pain, shouldn't she be in pain during sleep too?
May 01, 2009
Oh, I forgot to mention that I think she's teething right now. But her lack of enthusiasm for food has always been there. Bottle is 50% breast milk and 50% Enfacare. She's pooping at least once a day but always green and pasty (maybe from the Simply Thick). She doesn't fuss at all except during feeding time, which takes 1 hour to 1.5 hours to finish that 5 oz. I'm hoping that when she starts solids, she'll eat better. What's everyone's experience with that?
May 01, 2009
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
My oldest one with reflux got so bad with his eating we had to actually put him on an appetite stimulant. He was almost to the point of no calories each day. It was getting dire and we were days away from a feeding tube with him. He's still not eating great, but he's eating now. He's actually gained a bit of weight. I do know that our GI said kids can just basically get too scared to eat because of how bad the reflux makes them feel. If you put something in your tummy and then started having horrible reflux, you wouldn't want anything in there either. Either way, I would talk to your GI about it. There might be an answer out there for her. Poor baby. Praying for you.
May 01, 2009
Shawna: First time Mom to Mallory (10/07/08). Silent reflux diagnosed at 2 months. Alimentum formula fed. Trial of Losec (minimal effect). Now Prevacid 1x/day plus Zantac 2x/day.
I'm afraid I don't have any solutions for you but I wanted to let you know you're not alone. My almost 7 month old does the exact same thing. It has been a constant battle since she was two months old and we can't get the dr to take it seriously because she continues to gain weight. She can go many, many hours without eating (more than 12) and then we might be able to get 2oz into her. During the day we wait until she is ready for a nap and then we cross our fingers and hope that she'll take the bottle. There are times when she outright refuses. If we try and feed her when awake she plays with the nipple or chews on it, latches and unlatches, scratches and claws at the bottle or bats it away. It's so incredibly frustrating to only be able to really feed your baby when they are nearly asleep. I believe at this point that it is behavioural because she sleeps well at night and is generally happy. I don't know how to fix this (and our dr is useless) so if any mommies have a solution, I would be happy to read it too. My baby takes solids relatively well but of course they fill her up and then it is even harder to get her to drink her formula. Anyway, good luck. It is a daily struggle but know that you are not alone.
May 01, 2009
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Have you considered getting assistance from a Occupational or feeding specialist? I am meeting with one next week. I wish I had engaged one sooner when I first started seeing signs of an adversion. 3blues is right. After awhile they associate the bottle with pain and then they dont want it any more. Ryan does great with food, but fluids have become a real battle. I have resorted to sneaking fluids in while he sleeps. I know that is not going to fix the problem but it is getting fluids in him getting some weight back on him buying me time till I meet with the OT. This service that i will be receiving is free. It is called Heartland Early Access. They work with children 0 to 3 on feeding, speach and other early developmental issues. A gal I work this told me about them. She used them with her daughter and spoke very highly of them.
May 02, 2009
jan gambino burns
Jan Gambino, M.Ed
The Reflux Mom
P.O. Box 171
Arnold, Maryland
21012 USA
Mom to Rebecca: reflux and asthma, post nissen fundo, post g tube, post FTT and Jenna: reflux, asthma and POTS.
Author of Reflux 101: A Parent's Guide to Gastroesophageal Reflux.
Hello! An hour to feed a few ounces is way too long. You need some assistance with this. While your baby may be on the growth chart, she is showing signs that eating is stressful and unpleasant. The first step is to make sure the reflux treatment plan is managing pain as much as possible through diet, positioning and medication. Next, a feeding specialist such as an occupational therapist, speech language pathologist or feeding team can sort out the pain/memory of pain, behavioral reaction and also look at: delayed feeding milestones, oral motor problems (suck, swallow) and sensory issues. I have written a great deal about feeding issues and sleep feeding on my blog and in my book. I also wrote a series of feeding articles for PAGER. My daughter had severe feeding aversion, failure to thrive and it was very stressful and frustrating to deal with even though I was trained in early intervention and worked with these little ones all of the time!! Let me know if you need further assistance. Jan Gambino The Reflux Mom
May 11, 2009
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
Did the doctor say to only feed every 5 hours? I think with reflux, it is better to keep something in their stomach more often. If the stomach gets too empty, it will create more acid, then the child doesn't want to eat because they feel bad, which then of course makes it even worse. 5 hours is way too long without eating!
May 13, 2009
The pedi said she can go 6-8 hours without feeding. I decided to feed her every 5 hours because she takes at least one hour to eat, her twin sister also takes one hour, and I still express milk with slow letdown. So, I needed some time in between feeds to wash bottles, mix milk, do laundry, and rest a little. These past few days, I manage to feed her 3 oz while she's sleeping. She usually refuses with me. She's able to finish 5 oz with my husband, but after much trying and coaxing. Many times he tries to burp her and she wouldn't burp. Then he continues to feed her and then she struggles and make herself throw up. It's so frustrating. My pedi is referring her to a feeding specialist. In the meantime, I got the GI's okay to take probiotics to have it cross through the breast milk for her, to stimulate her appetite. Hopefully, it works.
Check with your
doctor first!