Posted By Posting
Apr 30, 2009
more questions
Sorry but I can't get straight answers from the medical community- so i'm going to the real experts. OK- we tried Zantac, didnt do much of anything. Tried prilosec capsules broken up and mixed with food- but baby wouldn't take it (projectile vomit). Then compounded prevacid but had aevere screaming, scratching and hair pulling fits, so I split dose in 1/2 and fits were so much better but after 4 or 5 days he had severe allergic reaction with hives. So dr said just use zantac- but baby is miserable and has developed a rash on his stomach. So I have been asking for different med- but cant get anyone to get me something new. Does prilosec come in a solutab or anything other than a capsule? Does nexium come in a form that a baby can take? Their suggestion was to take Axid instead of the zantac. From my limited knowledge isn't Axid just like Zantac? I am on a waiting list for the only specialists we have in our area but it's over 3 months away. My baby has severe aspiration and is less than 4% weight on the grid. He is on nutramigen and doing all the reflux precautions. I'm just really confused about medicine options.
Apr 30, 2009
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
i am unsure of anything med wise but i think prilosec comes compounded. axid is an H2 blocker like zantac but is not the same medicine as zantac.

my advice to you would be to call the GI everyday to see if there are cancellations and see if you can get an earlier apt. with severe aspiration and FTT you should get priority if you make it known how desperate situation is. I was not beneath begging when it came to emily's appointment, i'll tell you that much lol

if things become bad, always know you can do 3 things, call the GI office to talk to the nurse (sometimes they have sway with the Dr), call the on-call GI, or go to the hospital in which your GI office makes rounds. if you get admitted the GI will see you there.

imo- rashes and medicines not working should be taken more seriously, but that's just me. good luck!
May 01, 2009
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I am concerned that he has now developed the rash on his stomach. Is this the initial breakout in hives that has now spread to his stomach? Is your ped. watching the rash? Did they diagnose what the rash is from? Do they think it is from the prevacid and it is just running it's course?

I could be wrong but I think that if your baby is aspirating and is FTT the ped can call the GI specialist and get you in sooner. What is your ped. doing for you? I would call your ped and BEG and PLEAD to get your baby in to the specialist sooner!

Nexium comes in packets but you may have the same problem you had with the prilosec.

You said you gave him baby food. I assumed he was only on nutramigen. Could the hives be an allergic reaction to some food?

I agree with above - this should be taken more seriously. If your ped. isn't on top of it I would find another. Worst case do as above and go to Chilren's hospital and be admitted.

sorry you are dealing with this. You need a doctor to help you now, being in limbo for three months is not going to work.

((HUGS))keep us posted.

Check with your
doctor first!