Posted By Posting
Apr 30, 2009
angela39
anyone here of mastocytoma??
Hi ladies, anyone hear of mastocytoma?? My dd has this and I wonder if it could be related to her GI problems...
May 01, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Hi,

Of what I know, it is a collection of Mast cells, which play a big role in certain disorders such as Eosinophillic disorders, aathma and allergies. I don't know that it is related to anything GI, but that's not a bad theory considering what little we know about food allergies, intolerances and eos. disorders. Did they give you any antihistamine cream to relieve the itching?

Has your DD been diagnosed with any Eso. disorders?

May 01, 2009
jessicalynn
mom to 4 kids with probable
Mitochondrial Disease
http://ourbeautifulchaoticlife
.blogspot.com/
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
FTT,CVS,Dysautonomia,Resp.Distress
Connective Tissue Disorder,
GERD,EGID,
Visceral Hyperalgesia, and more
Many meds
The only way it could be related to her GI issues is if it is systemic mastocytosis, not just a mastocytoma on the skin.Some children have both. HTH
May 01, 2009
angela39
mastocytoma
How woudl you know if it was systemic?
May 01, 2009
angela39
mastocytoma
How would you know if it was systemic?
May 01, 2009
angela39
mastocytoma
How would you know if it was systemic?
May 01, 2009
jessicalynn
mom to 4 kids with probable
Mitochondrial Disease
http://ourbeautifulchaoticlife
.blogspot.com/
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
FTT,CVS,Dysautonomia,Resp.Distress
Connective Tissue Disorder,
GERD,EGID,
Visceral Hyperalgesia, and more
Many meds
bloodwork,urinalysis,organ and bone marrow biopsy
Check with your
doctor first!