Posted By Posting
Apr 29, 2009
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
Quinn Update
Hey guys! Quinn has made a complete turn around. the antibiotics obviously did her well. when we went in on Monday, the doctor was very concerned about her and said that she was really really sick and when she saw her today, Quinn looked much better and was satting at 98% on room air, so that's perfect! we are to finish out the antibiotics and go back to see her if she starts up with a fever again, but as far as that heart thing goes, i'm gonna take her to the er or call 911 next time she does that again, because that just seems unrelated to an infection and something that probably needs to be looked into further if it continues.
Apr 30, 2009
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Really happy to hear Quinn is much better. It's really scary when they get sick & have so many other medical issues to contend with. El
Apr 30, 2009
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Sarah, that is great news! I hope she continues to get better. There are so many bag things going around right now it is terrible that we are still fighting winter germs when it is almost May.
Apr 30, 2009
Strong, Beautiful, daughter who is thriving beyond imagination and a healthy, happy 3 year old.
Huge hugs Sarah. Glad she is doing better. Thanks for update.
Check with your
doctor first!