Posted By Posting
Apr 27, 2009
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Chest Pain
A couple days ago, Quinn came down with a fever. it hasn't been bad at all. never getting above 102. Yesterday, some nasal secretions and a cough accompanied it. She has not been feeling well. Last night her sats were in the 80s while on 1 liter so i bumped her up to 2. This morning at about 7am, she woke me up from sleep crying. not screaming, but crying in obvious pain. She was grabbing at her chest. She kept saying over and over again, "I need water I need water". She was crying for a long time. Everytime i asked her where she hurt, she put her hand over her chest. i gave her 3 glasses of around 4 ounces of water. she drank them all down very quickly. she was shaking and her pulse ox read 93% on room air with a heart rate around 220. It would go down to 180 when she calmed down enough to drink. She cried for about 30 minutes. I put some o2 on her and gave her a sugar free popsicle (she cried most of the time while eating that) iwas able to get her calmed down and she immediately passed out for about an hour. She woke up and now she says she is all better "mommy, you make me feel better." I know she has a paraesophogeal hernia. was this a complication of that? or could it have been something more serious that has to do with her heart? This is a brand new symptom, so very abnormal for her. Her vagina stinks too, really bad. I'm going to take her in to see the doctor this morning but was curious about what all you moms thought of this. -Sarah
Apr 27, 2009
beth anderson
PAGER Director and original GERD Nerd
Mother of Chris (1988) and Katie (1990)
Author of The Reflux Book
Member of PAGER since 1992
Donor since 1992
Sarah, I hope you get to the bottom of this quickly. It sounds like Quinn is miserable. As far as the smell goes, my kids had very smelly diapers when they had fevers. The urine smelled sort of "cooked" or like a really awful nursing home. Occasionally, the diapers would smell like a dog kennel. It just seemed to be the fever because there was never any urinary tract infection. Let us know what you learn!
Apr 27, 2009
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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UPDATE!!!! Quinn is pretty sick...
Took her in to see the doctor this afternoon and she was on 1 LPM of o2 with her sats still low in the office, so the doctor increased her to 2 liters, quinn was complaining of her nose hurting then it started to bleed so she is at 1.5 Liters now. She felt that the increased heart rate was due to the fever and that the chest pain was due to the excessive heart rate. And she also felt that after drinking the fluids, the chest pain was also due to the hernia. She felt that the thirst was the fever as well. She took a urinalysis (Quinn peed in a cup!!!) and it indicated some high leukocytes, some high ketones and something else i can't remember. so she said that Quinn is obviously fighting off an infection and that she is dehydrated. So I am to keep her on o2 24/7 for the next two days, she was prescribed some antibiotics and she also got a shot of antibiotics in her thigh. The doc was a little concerned about her o2 sats being low without indication of anything respiratory going on. Her lungs were clear. she wasn't too stuffy or junky. (but that happens every so often anyway) so We are to take her to the er if an symptoms get worse or if she gets that chest pain again. Bad news: i have to work a 24 hour shift tomorrow. ugh! and even worse! it's in the ER i will freak if my mom has to take her there while i am on shift! -Sarah
Apr 27, 2009
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Yuck Sarah! I hope she doesn't have to go in. Hopefully those antibiotics knocked whatever it is out. Keep us posted.
Apr 28, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Hopefully the o2 and antibiotics will let her get some rest today.
Apr 28, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Keep us posted. Poor Quinn & Mommy. Hope she turns around soon. El
Apr 29, 2009
noor117
Strong, Beautiful, daughter who is thriving beyond imagination and a healthy, happy 3 year old.
Sarah,

Hope that Quinn feels better soon without having to visit the ER. I am sorry for what she is going through. Wishing u the very best and sending hugs your way.

Check with your
doctor first!