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Apr 25, 2009
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
Dairy and Soy Allergy - Which Milk
I have a 14 1/2 month old that has milk and soy allergies. He can't tolerate either one, even in small amounts. I know most kiddos with soy allergies can handle some vegetable oil and soy lecithin. My son can't. The almond milk we were getting has soy lecithin in it and we need to stop using it. What milk options do we have. Hemp is silly expensive, so we would rather stay away from that route. Rice doesn't have all the fats and nutrients that he needs. So we would either have to skip that route too or do some serious doctoring of his bottles. What do you all use once they are off of formula? We had to wean at 11 months old because he couldn't even tolerate the small amount of soy that's in Nutramigen. That was even too much soy for him.
Apr 25, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I think I remember that one of the moms on here had luck with Goat's milk. I could be wrong.
Apr 25, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
My dd is allergic to milk and had been on soy but our new GI (head of ped gi at Miami Children's Hospital) thinks her current symptoms are a result of a soy allergy. He told us to use the loffler-wright formula recipe. Now, my dd is three months older than your LO and you should, of course, consult your ped. I know how frustrating it is to think you're feeding your LO the very thing that is hurting them and not get any support in finding an answer!! Good luck mamma!

BTW, goat's milk has an almost identical protein profile as cow's milk.

Apr 25, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Sorry read that as 4 1/2 months. There is a toddler formula google soy free milk free corn free formula and it should come up. I'll search for it later today for you.
Apr 25, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
We used to use Rice milk, and I had to supplement her diet with fat (ie. olive oil and avacados). Now I use a non dairy, soy and Rice beverage made from potato. I guess I'm not much help here am I? Sorry!
Apr 25, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Toddler Health by Baby Organic. Dairy, Soy and Corn Free
Apr 25, 2009
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
We still use Elecare as my son has a milk/soy allergy. He drinks the one plus version they make. My GI says we shouldn't even mess with other milks until 2 as this is giving him the best nutrition possible for the time being. That being said if my insurance weren't covering it we would be using goat's milk. They make a powdered form that you can mix on the go like formula.
Apr 27, 2009
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Toddler Health mentions Lecithin in their ingredient list which could mean soy or egg. They state no soy protein which leads me to believe that the lecithin is from soy but you could call to ask. It doesn't have a lot of calories so I think you would still need to add rice milk to bulk it up. Shipping is also outrageously expensive if it isn't found in your local Whole Foods.
Apr 27, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
At the manufacturer's site the maximum shipping charge is 5.95 throughout the continental US for Baby Organic products

I don't know how many calories the loffler-wright formula mix has and for us it seems to be a mute point for us as my girl won't take it. I'm now using rice milk and adding a multivitamin, olive oil, dha, molasses and aloe vera gel thickened with rice cereal (which we've been using forever) Sounds crazy but her reflux is MINIMAL now and no more congested raspy breathing. It looks like you're doing the same sort of supplementation for your DS#2. I just mix it up at night and use what I mix within 24hours.

I have searched like crazy for a soy free, milk free, (and for us) corn free formula or even milk other than rice that we could use. I ruled out goat because it's too close to cow's milk. The only other thing I can think of it oat milk, but then you're still left with doctoring up bottles.

Here's a list of recipes for homemade 'milks' including almond and oat. http://members.tripod.com/~iskra/nomilk/altmilk.htm

Apr 27, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Neocate or Elecare are the best (in my opinion) for those with a milk/soy allergy. My son is also allergic to both. Our allergist said NO goat's milk - protein is too similar to cow. El
Apr 27, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
By the way, Neocate/Elecare really helps them to grow & get the nutrition they need these precious years. If you go on Neocate's web page they have a link to financial assistance in your state. Of course, it usually depends on the household income. Then again, your insurance may kick in and pay for some of it, when you can prove (letter from Dr.) that the child has these allergies. El
Apr 27, 2009
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.

I don't know why I read Nutramigen as Neocate but I did. I agree with Ellen about Neocate and EleCare. Katie cannot do corn or soy in anything other than EleCare (immediate screaming) and even my husband who is VERY allergic to both corn and soy has drank it without having any reaction.

Sara, I have tried to order Toddler Health and didn't want to pay the $15 for one can; where did you find shipping for $5? I just clicked on the order here to the right on their page and $14.95 is the cheapest shipping there. Did you go to another page? Looking to supplement EleCare since she will only take it in a bottle so hoping she will like this enough to drink it out of a cup.

Apr 27, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Go to www.babyorganic.com and it says on the front page that maximum shipping is 5.95 in continental US
Apr 28, 2009
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
I don't know why I typed Nutramigen. Sigh. I didn't realize I did until you typed it. Neocate has vegetable oil in it (which means soy). He can't tolerate Neocate because of it. Sigh again. It's been a long week. Elecare has soy oil in it. I just don't get how these hyperallergenic/non-allergenic formulas have any soy in them at all. Seems they should be totally soy free. I will look at the other milk suggestions and see what my husband and I can figure out for him. Why does this have to be so hard?
Apr 28, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
I don't know, but it is hella hard, isn't it? Maybe making your own almond milk is the way to go, but I don't know as that would be any cheaper than the hemp milk. I know what you mean about the elemental formulas- why isn't there a truly soy, dairy and (for us) corn free formula out there? And barring that, why is it so hard to find infant nutritional information so we can make our own? Grrrrr. Somethin' oughta be done.
Apr 28, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
My son is allergic to dairy, soy, corn, etc. but can still tolerate Neocate. Maybe the proteins are so broken down they cannot be recognized as allergens? Our Children's Hospital is well aware of his allergies and this is what they want him on. El
Apr 28, 2009
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Thank you Sara!
Check with your
doctor first!