|Apr 24, 2009|
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Jazz was on 1ml 3 times a day at 24 lbs, so sounds right to me. We didn't use it long because it wasn't working for her. Motilium was the only thing that worked for her DGE.
As for spacing it with other meds, my pharmacist told us 10-15 min. apart I also refridgerated it just in case. Because it is a suspension, it will go bad after a certain amount of time, but my general rule is 4-6 weeks. Too bad your Pharmac. can't give you more info. How about calling the company that makes it? Or checking the website? My bottle is made by Novopharm......if that helps any...Good luck!
|Apr 25, 2009|
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
|Jedd was on it he took 2cc's 5x's a day. He was at around 18 months old and weighed maybe.......25lbs. So, you might be able to go up a bit, there's room. When he was an infant he was on it 4x's a day at 1CC a time. So, he was tiny and weighed about 8lbs at the time. You have room to go up. |
We used the "old stuff" now the pharmacy has to mix if differently. but, I'd still keep it in the fridge as it is a compound. It should stay pretty stable for a month as long as it stays cold.
If we were gonna be out we used a lunch box and an ice pack.
We gave it 30 mins prior to a meal so it never interfered with our GERD meds. and our schedule.
You can start a probiotic to help the GI tract to flourish since the ABX can kill off the good ones in the process. We never had an issue with this though. I didn't start Jedd on a probiotic until later.
The thing is some kids become more susceptible to C-Diff (GI tract infection). Giveing a probiotic will help fight that as C-Diff is really nasty and will pretty much land the child in the hospital for an admission.