Posted By Posting
Apr 23, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Ellen
Hi,

You made a reference about kids with EGID being allergic to all foods in a post to Maggiesmom. Just wondering what you meant by "all foods", because we are struggling with so many foods with Jazz, none of which ever show up on any scratch test and I've never heard a reference like that before? I was intrigued to hear that.......

Brenda

Apr 24, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Hi Brenda, Not sure if that was the best way to phrase it or not. Kids with eos. disorders can have IgE food allergies......or not. The best "test" they have for eos. triggers appears to be the patch test. Scratch test/blood test (RAST) only pick up immediate type (IgE) allergies. What you are looking (for with kids with eos. disorders) are foods that trigger the eos. to flock inappropiately to certain areas in high numbers (esophagus, intestine, etc.). So, to say it more simply - Eos. triggers are not necessarily the same as regular food allergies, & may not be picked up on ANY test. Here's how they sort it out at Children's Hospital: 1. Remove ALL foods for at least 6 weeks (Neocate, Elecare ONLY). 2. Rescope w/biopsy. 3. Hopefully child is at baseline (normal amt. of eos.). 4. Reintroduce some fruits/vegtables (1 to 5 foods at a time). 5. Look for signs of food pass/fail (eczema, bad behavior, poop problems, etc.). This is called "trialing" foods. 6. Rescope with biopsy to make sure eos. levels are not climbing. So, I'm sure you get the picture of how foods are eventually gained or lost. Some kids may not get foods back (fail everything), some may only get 7 or 8, some work their way back to 50 "safe" foods or more. This is what I'm praying will happen with Eric. But, with our luck........... I hope that wasn't too long. Just wanted you to know that no matter what the Dr.s tell you - there are no simple tests to determine what sets the eos. off. Ellen
Apr 24, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Thank you. It sounds like a much better system that what my dr is doing. I wish we could do Elemental formulas, that would make it so much easier. I am waiting for an appoint. with a new G.I who knows a bit more about Eos. dis.

Anyways, good luck with Eric's trials!

Check with your
doctor first!