|Apr 13, 2009|
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
Quinn's Endoscopy... sigh...Quinn had to have an endoscopy today for special biopsies. We were also going to try and convince the doctor to remove her g-tube. But, Quinn is only 29 pounds... so yet another one pound weight loss. in the past few months, she has lost 2 pounds since being weighed in at the GI office. Upon weaning, her doctor said that he wants her to gain at least 1/2 a pound in one month so figuratively speaking, he said she has really lost 3 pounds, which is a significant weight loss for a child that we are trying to wean. That being said, the g-tube is not going to be removed and he wants her to start supplements again regularly. Damn! she is almost 3 1/2 years old.
As for the endoscopy itself, Quinn did very well during and after the procedure. She has a small paraesophogeal hernia where her fundoplication is, which is why we have been seeing gagging and wretching episodes. So far, they do not happen all the time and so he said that leaving it where it is at will do her no further harm, however if it becomes a persistent problem, for instance, if she is gagging and wretching after every single meal and feeding becomes miserable, he wants us to discuss another surgery to redo the fundo and fix the hernia. Hopefully though it won't get to that. She did have some redness and inflammation around the fundo site and the fundo is tight, but not too tight. He took biopsies in her intestine and also collected some intestinal fluids to send off for additional enzyme diagnostics. all in all, things went very well and we are hoping to get some results soon.
love you all! Sarah
|Apr 13, 2009|
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
|I am so sorry Quinn is losing weight without the extra feedings but hopefully it is just a temporary setback. I am glad the rest of the scope went well. I know it is hard to hear and you were hoping to remove the g-tube but better to leave it in then remove it and need it again in another year or so. I hope the special biopsies yield some good results and provide some more answers in being able to help Quinn. You are so tough! Hang in there and keep us posted when you get the results.|
|Apr 14, 2009|
Tracey, mom to Katie diagnosed with GERD at 3 week.
|I was hoping that the news was good. =( (apparently the *sigh* didn't clue me in.)|
|Apr 14, 2009|
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
|aww i thought Q was doing so well on the tube wean! it's disappointing but i hope you aren't taking it to hard! I'm glad you finally got the endo though and those samples; let us know when you get the results! <3 and hugs! ||Check with your