Posted By Posting
Apr 12, 2009
Mom to 26 month old baby girl. Born at 33+weeks. Severe GERD, dysphagia (even to saliva), central hypotonia. Unable to do MRI due to requirement for G.A. and intubation risks. Docs mentioned chin is on small side which does not help with swallow. Currently 10.6Kg and 83cm long. Able to sit independently, pull to sit and sit up on her own. Able to stand with support and pull/push to stand. Can cruise. Started to crawl on April 1st 09. Babbles a lot but not saying real words yet. On early intervention programme. Communicates with a lot of gestures and finger pointing. Very intelligent. Swallow study done on 11/9/08 shows no initiation of swallow but is allowed to continue with food tasting which she thoroughly enjoys. Second swallow study done in Jul 09 shows she can swallow 2 teaspoons out of 4 tea spoons of yoghurt given. But it shows some muscle coordination issues between oro motor, throat and sphincter which causes food to queue up prior to entering stomach. Feeds through nasal gastric tube. On 3 times a week private speech therapy with vital stim since June 09 and once a week Physio with local hospital. We practice with her everyday on our own which saw more progress. Couldn't get into our preferred special school for EIP due to lack of teachers and long queue for spaces. Am looking for alternatives now.
probiotics and prebiotics supplements
HI , anyone knows if the above do help with minimising reflux? You know, build a stronger tummy/gut system in a way helping to minimise reflux? What form does the supplement come in and any brand to recommend for a 20month old baby? Cheers, Baby's tubefed, by the way.
Apr 13, 2009
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
We've had great luck with prebiotics and probiotics. You can get liquid of pordwer formulations (we've used powder before and now opening capsules and mix it in with purees or formula - they dissolve.) My ped recommended Prothera's Klaire Labs line which I can give you an authorization code to order. I believe jedds mommy uses a liquid form that she found at a health food or vitamin shop. HTH. If you want to try Prothera's, email me at


Apr 14, 2009
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
We buy some for Jedd at a local health food store as well. We keep it in the fridge after opening it. Just look for one that has multiple stains in it, you get more bang for your buck...LOL Our is a liquid and it would totally fit down a tube for sure. I've gotten thicker stuff in the past down Jedd's when needed.
Check with your
doctor first!