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Apr 10, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Anyone use omeprazole
I was doing some research on MARCI-Kids.com to prepare for our GI appointment on Monday. They talk a lot about the use of Omeprazole, specifically Zegerid. Anyone here using that. What are your thoughts it its effectiveness vs prevacid?
Apr 10, 2009
mommato3
I've wondered the same thing about Zegerid. I think omeprazole is basically just Prilosec and Zegerid has a buffer in it along with the same stuff that Prilosec has in it. I would just about swear by the Marci kids PPI dosing calculator. The MARCI kids dose of Prevacid has helped my little guy. Also does anyone use Nexium? Our insurance pays more for Nexium.
Apr 11, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
As a former Prilosec compounded suspension user, I'd go with Prevaciad if you can. It's hard to keep stable for a month and you have to get it made by a really good pharmacy. We did all those things and had GREAT success though. So it can be done. The co-pays will be much higher though.

We had NO choice we needed something (a PPI) in a liquid form as Jedd was completely tube fed all his nutrition and meds. We our hand was forced.

We did try all the other meds first but he was NOT take them orally AND they would NOT fit down his NG tube at the time. Once w e got a G tube we stayed with it since it seemed to be working. We didn't want to rock the boat at that time.

We are now on Axid full time...that took some doing..LOL

Apr 11, 2009
mommato3
OK-I now remember the thing about zegerid. The prilosec can be unstable. I think that is what Zegerid is. It is stable because of the buffer that is in it. I can't imagine it being any better than Prevacid, but I guess some kiddos (very few) can't tolerate the solutabs (lactose). There is more about Zegerid on Infant Reflux .org Some of those moms have used it. Also the difference between Zegerid and Prevacid is with the Zegerid you don't have to wait 30 min. before eating. It is easier to time. Some people that work and stuff have a hard time getting their caregiver to time all the meds, bottles, etc. out so this would prob. work better for them.
Apr 11, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Omeprazole is just the generic name of Prilosec. Zegerid is omeprazole with a sodium bicarb buffer antacid. Zegerid is more stable than Prilosec due to the fact it comes in a powder that you mix at home instead of a pharmacy compounded suspension.

Prilosec only needs 15 min on an empty stomach to work, whereas Zegerid needs one hour before you can eat so the buffer has time to adhere.

I usually say Prevacid is the way to go unless you've tried it and it doesn't work. We used the Prilosec suspension with NO success at all but big changes with Prevacid.

The big reason they're pushing Omeprazole is insurance reasons - not many insurances will cover Prevacid any more (it loses its patent in November this year)

Apr 11, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Thanks for the info! Much appreciated. Ryan is on Prevacid but trying to time the morning dose correctly is really hard to do due to my job. I saw that the Zegerid didnt have a timing issue so I was hoping that was my answers. Sounds like I should stick with what I got. I did see on MARCI website that my son is way way under dosed. Likely the reason why every two weeks we battle with drinking. We are there again today. Sees the bottle, gets all excited, takes two swallows, winces, and turns away. He will take yogurt and slippery food, so that is what I am doing. I went a head and doubled his dosage today for Prevacid. I will ask for forgiveness on Monday. Just as well get a jump on getting him the right dosage. I am going to ask for Carafate too. Found out about that on MARCI too. Would have been nice if I had been givin that a long time ago. These poor babies of ours. They have to suffer so much, they cant tell us, and it is left to us to research this stuff to the ends of the earth not to mention stalk the health care system to find relief for them. Not fair.
Apr 11, 2009
jarenemum
Mom to 26 month old baby girl. Born at 33+weeks. Severe GERD, dysphagia (even to saliva), central hypotonia. Unable to do MRI due to requirement for G.A. and intubation risks. Docs mentioned chin is on small side which does not help with swallow. Currently 10.6Kg and 83cm long. Able to sit independently, pull to sit and sit up on her own. Able to stand with support and pull/push to stand. Can cruise. Started to crawl on April 1st 09. Babbles a lot but not saying real words yet. On early intervention programme. Communicates with a lot of gestures and finger pointing. Very intelligent. Swallow study done on 11/9/08 shows no initiation of swallow but is allowed to continue with food tasting which she thoroughly enjoys. Second swallow study done in Jul 09 shows she can swallow 2 teaspoons out of 4 tea spoons of yoghurt given. But it shows some muscle coordination issues between oro motor, throat and sphincter which causes food to queue up prior to entering stomach. Feeds through nasal gastric tube. On 3 times a week private speech therapy with vital stim since June 09 and once a week Physio with local hospital. We practice with her everyday on our own which saw more progress. Couldn't get into our preferred special school for EIP due to lack of teachers and long queue for spaces. Am looking for alternatives now.
Omeprazole
Hi, we've been using Omeprazole (strongest available drug for protecting the stomach from acid I was told) since birth. We dissolve half a tab of 10mg tab into 5 ml water and syringe the full 5ml solution up for consumption twice a day. It has worked pretty well. Expensive drug though. I believe they use this to help stomach cancer victims too. So it must be quite a strong acid neutraliser of sorts. I believe it works through absorption into the body and not just locally (at the stomach) so for those on NJ tube that's suitable too.
Apr 12, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
We could not get any type of solutab or anything down Jedd's 6F NG tube. So, yes it would be safe to take by tube but the logistics of getting it there just won't work. Unless, the French size was larger than ours.
Apr 12, 2009
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
If we went with the marci kids website Katie would be on WAY too much medication!! Too much and too little have the same outcome, not every kid reacts the same.
Apr 13, 2009
mommato3
I agree with Katie's mom. Not every child needs a high of a dose as Marci kids suggests. It is best to work up until you find the right amount b/c you might find relief with a dose not that high. It is very nice though when you find a doctor who understands this research and understand that in most kids a PPI should work if dosed correctly. Let us know what happens at the GI
Apr 13, 2009
shan
Omeprazole
My son is on Omeprazole. We live in NZ & this is the drug of choice for Reflux here. It comes in a capsule form which we open & sprinkle the granules on his food (or in milk when younger) He takes 10mg 2-3 x per day.

The 1st Dr who prescribed it gave us the suspension which is no longer really prescribed here as apparently is becomes unstable quickly when exposed to air. The liq form didn't work for us (although dose was too low).

The Omeprazole works great for my son. :)

Check with your
doctor first!