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Apr 08, 2009
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
Back, Again, Different Child
I haven't been on here in a while. My youngest, now 14 1/2 months old, is no longer refluxing. We discovered his milk and soy allergies and life has been so much better. However, our 3 1/2 year old (with a myriad of issues) was our first refluxer. He wasn't bad, though. Enfamil AR, raised head, life was good for him. But in the last 8 months he has slowly stopped eating. It is to the point of considering a feeding tube. We had his EGD on Monday and his results are in. He has reflux and has esophagial damage due to it. We aren't sure if this is why he isn't eating, part of why he's not eating, or just something we were blessed to discover due to his not eating. (he does have Autism which can play into all this not eating) So, today we start on Prevacid. We will see. Any tips for older kids that have reflux? Anything I can do to help him be more comfortable?
Apr 08, 2009
maiam
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
My older kids avoid foods that bother them -- too much fruit/juice, all citrus, tomato products, spicy foods, etc. Don't know if any of that figures into his diet.

We still elevate the head of our childrens' beds - we put bricks under the legs of the bed.

Make sure to time the dose of the med right -- Prevacid (per our doc) was best 1/2 hr to 1 hour before evening meal.

I had one who comfort ate/drank, and one who stopped eating and didn't grow for 1 1/2 years. :( Good luck with the med! And make sure the doc follows up -- if the dose isn't correct or if the med isn't working, keep trying. Mine went from Zantac to Prevacid to Prevacid 2x/day toNexium to twice daily doses of Nexium before they found the right doses. Both kids are doing better, asthma is under better control, no tummy aches, eating and drinking and FINALLY GROWING! (Well, my peanut little girl keeps getting taller and tthinner, but I'll hold out hope!)

Apr 08, 2009
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
Funny, everything you mentioned is what he eats. He is a super, super picky eater. I mean, super! He doesn't eat any meat, fish, or peanuts (basically no protein). He loves spicy food, the spicier the better. In fact, if there's a hot sauce that makes the strongest man run to the bathroom for gallons of water, he will eat it with a spoon and never once bat an eye. The problem is, he's stopped growing due to his new refusal to eat. He went from the 95th %ile in weight to the 25th (and is still losing) and from the 95th %ile in height to the 5th. All his doctors are concerned. Sigh. He loves tomato products. He loves juice. My thought is, if he loves those due to his limited diet, but they are what are hurting him, maybe that's why he's not eating!
Apr 08, 2009
mommato3
My brother who is 13 has reflux. He is on Pri;osec and zantac and was told the exact same diet. No spicy food, tomatoes, juice fried foods citrus. Maybe his diet has aggravated his reflux so that he now refuses to eat. I'm sorry your having to go through this again. My baby is 4 months old and is falling on his growth chart-refusal of food. We've tried a lot of things and are now going for a bunch of tests in Cincinnati this month.
Apr 08, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
I'm not sure what to tell you about getting him to eat. Especially if he is refusing because of the fact that what he likes to eat is hurting him. What about cheese? Pasta with a white sauce or cheese instead of red sauce? I know it isn't much better but it is something. My dd is 6 and has reflux. She is a tiny thing and not because she is picky. She is picky now because she knows what hurts. She never drank fruit juice as a baby but loved V8 tomato juice. You can still probably give some juice but dilute it alot. What about shakes with protien in them. Our doc recommended some boost for kids. They taste kind of like a milkshake and Morgan loves it. The main thing is not to let them eat right before bed. As the pp stated give meds prior to eating and elevate the head of the bed. My dd likes some spicy food and loves spaghetti sauce and pizza so on those nights we know to give her a little maalox before bed. She seems to do alot better then. HTH!
Apr 09, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
My Katie had reflux as a baby, we thought we were done, and then at 3 1/2 holy cow it was back!!! Katie's scope also showed esophagial damage and gastritis. SHe now takes 15mg solutab first thing in the morning and 30mg solutab 1 hour before dinner. She also takes Mylanta before bed and also for any tummy aches.

The BIGGEST answer is the diet. It is unfortunate because Katie's favorite foods are spaghetti with sauce, ketchup, chocolate etc. etc. But we have found that meds are not enough.

THe biggest things we eliminated are Strawberries, Pickles, Tomatoes (of any sort) Ketchup, Gatorade, Chocolate, Ranch, All Fried Foods, D milk (switch to skim) and Regular Cream Cheese.

I hope his medicine is high enough dose to start healing the damage.

ALso Katie can't run around too much or it upsets her reflux - so soccer is out :)

I always have to be on her to give her little snacks so that her stomach is never empty. It hurts a lot when it is empty.

I also started her on probiotics which seem to have helped.

Check with your
doctor first!