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Apr 06, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Solids
Isobel is sitting in my lap refluxing and half choking on half a jar of squash. I feel totally betrayed- for six months everyone has told me how much better it will be when she starts solids and it's just not turning out that way. So I'm sitting here crying and thinking Whiskey Tango Foxtrot. Just needed to vent to folks who understand.
Apr 06, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
It all depends on the kid - some do very well with solids, others do worse. I found thickening the solids helped a lot, but not everyone has the same reaction. Maybe try just a bite or two to start for the first couple weeks? Have you tried cereal first? HUGS mom - we're there for you!!!! This too shall pass
Apr 06, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
my son is 18 months and I consider ita good day when he wats a half pack of something...he takes in virtually no solids at all. I just know how you feel. :(
Apr 06, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
We thicken Isobel's formula with a Tbsp rice cereal per two ounces formula. I did try a few times to give her cereal on it's own a few times, but she didn't dig the texture. We have tried to thicken with Simply Thick and she had more respiratory issues when it coated her throat. We can't do thick it as she's sensitive to corn.

We have tried a week of peas - no good, mucousy poop. We have had good success with sweet potatoes and carrots and on previous days, squash. We've done apples and I'm not sure - I have to try them out again and see the results.

I'm just so bummed that she could actually reflux squash. She's a silent refluxer and I heard it happen and then, YUCK-O, squash in her mouth ten minutes after we finished feeding. I just didn't expect it with solids - I wasn't prepared for it.

We have been really struggling with feeding issues. I consider it a good day when she takes 24 ounces of thickened formula. She's really getting too many calories and not enough fluid. I have tried giving her a sippy cup with watered down apple juice because I figure she can't possibly reflux the small amounts she'd get from the cup. I offer it several times a day and she totals maybe an ounce all day long. I just don't know what to do and my docs aren't concerned unless we get seriously dehydrated. She's just shy of 18lbs (gained 3 last month due to all the rice but she won't take thin formula) and should be having 36-54oz a day.

Any suggestions? I'm just logic-ed out right now. Nothing makes any sense.

Apr 06, 2009
momma of 2 refluxers
They do better on solids but not until they have solids that are thicker (baby food made for 9 mth olds). So no my daughter refluxed everything until she started eating finger foods at 9 mths. Try thickening the first foods with rice cereal so it's thick enough to stay in her tummy. My daughter is 2 now and eats and gains like a champ. You two will make it through this, not very easy but it will pass. Hang in there.
Apr 06, 2009
mommato3
My son was born 11/13/08. He takes anywhere from 18-23 oz of formula a day. He should be taking at least 32 oz according to his nutritionist who sees him every other week. She comes and calculates all of the fluids, grams of proteins, calories, etc. he took in those two weeks and she weighs him and measures him and according to how much he gained she recalculates everything and tells me how much he needs. He needs at least 32 ounces to get enough calories. When he eats 22 oz he gets just enough grams of protein and as long as he gets at least 20 oz he is getting all the fluid he needs. His formula is only 22 calorie per oz formula because he can't tolerate it any higher. He doesn't get any more calories from cereal in his bottle because he doesn't tolerate that either. But she thinks he's fine on his fluids just way off on calories and barely enough protein. My son is 15 pounds. He was 9 pounds when he was born and he's fallen a lot on his growth chart. I don't know if I have been of any help but I would think that 24 ounces of fluid is enough fluid based on the info the nutritionist gave me. It sounds like she is definetely getting enough calories which imp. for the brain development. I absolutely love my nutritionist. I tell her she is the best thing that ever happened to me. It is so nice to have her figure up all that stuff. It is depressing however as we are always so off from the calories that he needs. We have used simply thick with great success but unfortunately it doesn't add any more calories. Also do you think the cereal is filling her up so much that she won't drink anymore than 24 oz?
Apr 06, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
That's good info about the fluid requirements for your little one. Makes me feel a little better. Thickening Isobel's bottle actually improved her intake - she flat out refuses plain formula. I think it comes up too fast and too often. It doesn't seem to hurt her but she does make the "ewww gross" face.

We tried thickening with part Simply Thick and part rice but it didn't fly, the ST is too sticky. Maybe part rice and part ST would trick your LO into more calories.

Reflux Sucks.

That is all.

Apr 07, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
I completely understand where you are coming from. We are all told that when they can sit up it, eat solids, walk, when they turn 1 it will be easier. It is like there is something magic about the age of one. Well we are almost two and none of these has made it better and some actually made it worse. I remember feeling the exact same way you are when we met all those mile stones and it was either worse or not any better. I am now being told that two is the magic age. I'm not holding out much hope for that.

Every child is different and not one of them are going to hit that magic day of no reflux at the same point in their life. I know how hard it can be. Just know that we have all been there and know how you are feeling. Hugs to you!

Apr 07, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Just an FYI - rice can actually make the reflux worse. Some do fine on it, but others not so hot. We did oatmeal or barley cereal instead and my dd did very well on it.

18lbs isn't so bad - she's gaining, which is important. The cereal will add calories and will not take away fluid - just makes that fluid thicker. And as for the fluid intake, unless you're at risk for dehydration (fever, illness, diarrhea) I wouldn't worry too much. We were lucky to get 20 oz/day total in my kid, and that was BEFORE she would puke some up. Never did get her past 28 oz....ever. Now she drinks fluids like a fish.

For thickening up the solids, I only did a tsp per 3.5 oz of solids, just to take some of the juiciness out and make it a little easier to hold down. Another thought for the solids - I think it was mentioned before, but you can start with Stage 2 jars/containers. They're thicker anyway. Prunes are the thickest I've found and they don't need anything else to make them heavy.

Apr 07, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
I started out thickening with oatmeal but her GI freaked out. I mean freaked. Told me not to use oatmeal because it's more allergenic than rice. I might try going back to oatmeal though. We've been using rice to thicken for three months now. Four weeks ago we hit the sweet spot - the magic combination that was life changing. This last two days have been hellish. It's like it was at five weeks! She won't sleep more than thirty minutes at a time, refuses to nap, cries FOR the bottle then AT the bottle. The acid IS under control but she's refluxing like mad!!! I hear it up-down, up-down... Then she chokes and gasps for breath. Her breathing is horrible and rattle-y in the lungs. No fever, nothing I can think of to cause this. I'm just worn out- I thought we were past all this.
Apr 08, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
*sigh* There is a reason that we all call this the rollercoaster. It'll get better, then slide backward so fast that you can't pinpoint what happened. Thus, the nature of this fun time.

Yes, oatmeal can be more allergenic, but unless there is a risk through genetics (say you, your dh, or other immediate family has an oat allergy) then it should be fine. My GE INSISTED we use oatmeal due to the constipation and my dd was on a LOT in her formula (3 tsp/oz of formula - had to cut all the nipples with a lot of trial and error since it was like concrete) This was started at 5 weeks old.

HUGS to you mama and just remember that not every doc was an "A" student ;-)

Check with your
doctor first!