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Apr 05, 2009
mommy2k
swallowing and reflux flare up questions
Well 2 nights in a row has been a little rough for us. I don't always want to blame it on reflux so I try other things first or think it could be something else. So tonight I thought that tonight he was really hungry because he kept acting hungry. So I fed him but then he woke up from his nap crying so I went to get him. He was fussy so I thought that he was sleepy but he wouldn't stop fussing. I decided to feed him which helped at first. He kept wanting to eat so I gave him some cereal (oatmeal) and he acted excited. when he was eating it though he was swallowing hard. He also does that sometimes when he's bfing. I used to think it was gulping but it's almost like he's having trouble swallowing. He does it mostly when we realize his reflux is acting up. He has silent reflux so most of the time we don't know what's going on. Does anyone have these swallowing issues with reflux or am I just imagining things? I don't want to jump to conclusions that it's because of his reflux. He was not a happy camper tonight. We tried to give him a bottle (with alimentum in it) because he just kept crying on me and I thought maybe it was because he wasn't getting anything. He drank about an ounce and just cried. I decided to give him maalox. He finally calmed down and went to sleep. My husband and I aren't always on the same page because he thinks I can blame it on the reflux to quick but he doesn't have any answers either. Could the oatmeal pushed his reflux over the edge? He's on prevacid 7.5 mg once a day. I thought that maybe it was starting to work because he's been on it since March25. But now the last two nights he's had a really bad time with it. I'm just confused on how to know that its reflux. We're still waiting for his gi appt in little over a week and trying to help him feel better with these flare ups. Any help with all of this would help. Sorry about how long this is too.
Apr 05, 2009
mommy2k
sorry
My computer totally went crazy so I'm sorry about all the posts. OOOOPS
Apr 06, 2009
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
I know just what you mean about the uncertainty over whether a problem is reflux related or not. It's crazy making. To be honest, the first thing I thought of when you described what was going on was Ear Infection...any chance that he could have one? It may be worth a quick trip in to the Dr. -- my son (also a silent refluxer and bf'er) often gets them and sometimes the only signs are a change in his swallowing, difficulty sleeping and much increased crying when waking up...
Apr 06, 2009
mommy2k
I would think that he had an ear infection but he does this quite frequently and never has a throat infection or ear infection. I wish sometimes it was because then it would be an easy solution. I told my doctor that I have trouble knowing if he would have a cold or be sick because he's always congested in the chest and hoarse so I'm clueless. I hope that I would definitely know when he's sick because I tend to ignore the congestion, hoarseness, and swallowing as well as crying during some feeds because he does it so frequently. Oh well my motherly instincts need to kick and I need to trust myself but it's hard. Did your son have a fever with the ear infection? Are ear infections typical for silent refluxers?
Apr 06, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Alot of refluxers have ear infections. It comes along with the congestion sometimes. My oldest didn't have fevers everytime. She had such a high tolerance for pain then that we sometimes didn't know she had an infection except for the irritability. We have a strong family history and seriously thought that she was going to be an early teether because she was cranky, hardly eating, and chewing on everything. This was when she was 2.5 months old. She had her first ear infection. Looking back we realize that she had silent reflux but it wasn't that bad and we always thought all of her problems stemmed from multiple ear infections and respiratory infections. HTH!
Apr 06, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Reflux, teething, ear pain, and throat pain all come together in one unhappy maelstrom of excitement. My dd has actually never had an ear infection, but gets pretty nasty ear pain with teething, along with a reflux flare up, so latching on hurts her. And fever is not always an indication of infection. Could be his ears just hurt from reflux and teeth, even without infection.

Maybe try some teething relief and maybe some type of earache remedy - there are homeopathic ones and OTC. HUGS!

Apr 06, 2009
mommy2k
what a day
Well this is the third day except this time it's been all day fussing and screaming. His reflux is really bad today too. I'm so exhausted. If he acts like this tomorrow I'll have to bring him in to see if he does have something else going on. I'm so exhausted. My hubby came home and I just started crying. I'm at my wits end because he never sleeps. His nighttime sleep is really awful and always is. I hope that the gi will be able to help us get him and us some rest. Does anyone have experience seeing a nurse practitioner instead of the actual doctor? We hope that she will help us give him some more meds to help him. If they don't, I'm going to sit in that office and just start crying right there. The docs don't have to go home with our reflux kids. I'm ready to video tape him on a bad day which seem to outweigh the good ones and show it to the doctor and say help! Thanks for letting me vent. I'm glad that I can get on here and unload to people that understand.
Apr 06, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Ryan chokes and gags when his throat is raw. He gets so hungry so he fusses to eat but it hurts too bad to swallow. I have ended up in the ER twice with him because it got so bad. Please take him in and insist that they get a really good look at his throat. the tonge depressor doesnt cut it. Put him in his carseat have the doc stand over him and do something to tick him off. I know that sounds really mean but if you can get him to really cry the doc can see all the way down his throat. I learned that trick from the ER doc. They can give him something for the pain and the swelling if that is the cause of the chokeing and gagging. Once they get that taken care of he might just eat and eat because he is so hungry.
Apr 07, 2009
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
In light of the severity of the situation, and your description of him always being a terrible sleeper, I want to also encourage you do some research about sleep apnea. I had no idea that reflux and sleep apnea sometimes go hand in hand, but they do -- and in my son's case, they did for over a year while we struggled to figure out what was going on. Lifelong frequent night wakings are a common occurrence with apnea, and misery in the daytime due to extreme sleep deprivation, as well as frequent illness are also common associates.

Here are some links you might be interested in:

http://www.sleepapnea.org/ http://www.bcm.edu/oto/grand/121996.html http://www.stanford.edu/~dement/childapnea.html It can be pretty hard to get a pediatrician to take sleep apnea concerns seriously unless the child is displaying the most common symptom of Obstructive SLeep Apnea, which is snoring. The truth is, that most frequently, reflux is associated with Central Sleep Apnea, apparently, so snoring wouldn't come into play. Anyway, sorry if this sees a bit scattered -- we went through hell with this, and still are, so I hate for anyone else to enter blindly into any of the mysteries of reflux and its associated challenges....

And finally, ((HUGS)) to you -- I have been in tears so many times from the exhaustion and frustration....You are not alone....

Check with your
doctor first!