Posted By Posting
Apr 04, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Get me off this rollercoaster ride
Uhg.. someone tell me when the rollercoaster ride is over. I need to see a light at the end of this tunnel. Once again I thought we had this reflux beat. Since the 25th he has been drinking like a champ. 7 oz at a time some times. I almost canceled my GI appt. because he is insisting on a scope and I though "no need, we are good now". Guess not. He lost his voice on Wed. Not a single other symptom though. No fever, no runny nose, nothing. Drinking and eating not even dented. Today. thowing the bottle or any other fluid. No problem with solids. I dont get it. His voice has come back a little. Still not other symptoms. I just dont understand. Of course I am totally edgy now wondering if I we are in for another 9 day drinking strike. I know, I know.. it is only one day. Dont jump to conclusions. I cant help it. I think is is reflux induced PTSD. Is there meds for mommys so we can stop worrying. I would really really like to string more than 2 1/2 good weeks together at a time. Speaking of, why in the world would the child not refuse solids, including cherrios, but refuse liquids.? That is one mystery I have never solved. You would think he would take fluids over solids, soothe the throat plus you would think solids would hurt. I dont get it. Anyone have the answer to the fluid issue and when I can expect this ride to be over. I am tired of being a crappy butt.
Apr 04, 2009
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I'm so sorry :( It's just so hard to say...our ride was over at 11months with reflux. (then started the ride with ear infs. and now allergies) It's so hard to get a good couple weeks in and then be thrown back into it. You just get started feeling normal then WHAMMO!

It's great that you're seeing a GI soon. Hopefully they will see some reason for his continued discomfort and feeding issues. Sometimes there's damage and there really is no rhyme or reason for the back & forth. Sometimes it's normal fluctuations in eating patterns and of course we all assume it has to be due to reflux.

Other than the feeding issues, does he seem to be in pain? What solids is he eating?

Apr 04, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Just a thought - teething? My dd refuses liquid when the teething hits the peak (something to do with ear pain with suction), but loves the chew to relieve the pain. Teething flares reflux, as well as increases diarrhea.

Our ride is just about at an end at 19 months, so there is some hope, but I would really consent to the scope, if nothing else to rule out reflux.

Hang in there, mom - we're all cheering you on. We've been there: frustrated, angry, confused, and just want a straight answer,

Apr 04, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Stupid reflux. Why does it strip us of our brains?... mine anyway? Teething is the first thing I would have thought of for my daughter, but it didnt cross my mind for him. After reading your note I put some ambesol on his gums, gave him a couple of teeting tablets, waited 10 minutes, and va la... 7 oz bottle gone. I am shaking my head at myself. Thank goodness I found you guys. Good to know you are there to keep me straight. THANK YOU!!! My kids thank you too. : ) Funny how a little 10 month old can take you from being the "rock" and voice of reason for all your friends and family to being the one that needs to be talked off the cliff. As far as food goes, he will eat anything. Mostly babyfoods but I will also throw in avacados, sweet potatos, pasta, yogurt, etc. When we bottomed out a couple of weeks ago I resorted to giving him stage 1 baby food just because it is so watery. I figured at least he was getting some fluids that way. I should do a better job of watching what I feed him. That might be causng the constipation issues with him. If it werent for the 1 oz of pear necture that I put in his bottle in the morning we would be in a world of hurt with him.
Apr 06, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
There are meds for mommies to help with the worrying. If you feel like your anxiety or obsessive worry gets out of control I would see a psychiatrist for some help in getting through this.

You will probably feel better in no time but I thought I would throw it out there. I had a near breakdown and it really helped. IMHO Never take anything prescribed by anyone but a psychiatrist.

just my two cents

Check with your
doctor first!