Posted By Posting
Apr 04, 2009
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
*sigh* why does she do this to me?
Quinn is almost 3 1/2 years old is still not potty training and is playing with her poop a lot more often lately. ugh! it's smely and disgusting becauese she has diarrhea often. she smears it on the walls and everything. today, i had her watching tv so i could take a shower (single mommy) and i came out of my shower to see the front door wide open, poop all down the hallway and her running around outside butt naked. I just don't know what to do anymore! she doesn't respond to discipline. She is a really good kid, but my God! my mom says that her behaviors are abnormal for a child and my sister feels like she is displaying autistic behaviors. She is cognitively there, at least i think so. and everyone who sees her says that she is on track with her peers other than a slight motor delay. Her speech and atriculation has improved so much. She is eating a lot by mouth but still requiring tube feedings every once in a while. i just wish someone, anyone, could witness this stuff and tell me if it's nrmal for a toddler or if theres' something we can do to help her out some. or maybe i'm a nutcase mom and don't know how to control my child. *sigh* i'm so out of it right now and wish i can just hand over the riens of parenthood without feeling like i'm giving up my whole meaning of life. but of course, that's out of the question. i couldn't live with that at all. so... *sigh*.... tomorrow is another day. -Sarah
Apr 04, 2009
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Sarah, I wish I could watch her and tell you how she compares to all the kids I deal with. I will tell ya that I've had perfectly normal 4 yr olds that have a love of poop. I was blessed enough to have to clean a bathroom after he smeared the whole stall one day. I know you know how much fun that is! Do you think her potty issues are due to motor delay? I don't want to stick my foot in my mouth, but Jen R.'s lil girl was a late pottier and I believe Jen decided the motor control had something to do with it.

Here's one more idea which I'm probably gonna do myself...put one of those hook/eye latch things at the top of your door so she can't open it when you're busy. We were lucky when Morgan was little, we had an alarm and it would beep if she opened the door. And don't blame yourself...we all get caught off guard. Toddlers are fast lil boogers.

Apr 05, 2009
Hang in there Sarah. I have taught 4 year old preschool for a number of years and have 3 kids under 5 myself. I had a liitle boy a couple of years ago that was 4 1/2 and not fully potty trained. He would poop in his pants. One time he smeared it all over another little girl's back in front of him in line. On numerous occasions he would smear it on the bathroom stall doors, walls and I would have to clean it up. Well this little boy was very bright. No delays. No autistic behaviors. He went on to kindergarten the next year and did great. My little girl at 2 years old would smear her poo everywhere and get into it any chance she could. All the discipline in the world didn't stop her. Well she finally outgrew that phase. My oldest boy never did that. I think that is very normal. Now I know Quinn is 3 but with her other GI problems she has had she is prob. just a late potty trainer and just now going through her fascination with poo. I also had a boy this past year in 4 year olds that wasn't potty trained until the very end of the year. He was definately not delayed. He was smart as a tack. Just a late pottier. If you are still worried, is their a teacher, doctor, friend that deals with children that you could have observe her or video tape some of these things to show them? Best of luck.
Apr 05, 2009
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
Sarah, I don't have any experience with the poop smearing but my oldest was a late pter. She was 4 when we finally got her trained. Hang in there!
Apr 05, 2009
PAGER Volunteer Services Coordinator
Melina 7/24/02 now reflux free!!
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
We had huge problems with potty training too Sarah. I do think it had to do with motor control and pain (for Ella from chronic constipation) and partially Ella's personality. She just flat did not care about it.

It was really hard. I had the blessing of having two other girls who were easy to potty train so I knew it wasn't that I was crazy... it really was that Ella was a bit more, shall we say... "challenging". We had some poop writing as well, ewww!!

We finally had to resort to a combo of rewarding and removing the option of diapers or pullups. She went to panties and it still took days of cleaning up messes but I told myself I would give her a week and if she couldn't get with it then I would take her to the pedi and see what he thought. She was good after about four days and has rarely had an accident since.

But, let me tell ya, if we ever gave her the option of using a pullup she would poop in it every time. UGH. She is still not potty trained at night (she will be 4 in May). So, I guess I said all of that to say that some kids take longer and Quinn has been through a lot more than Ella so maybe she just needs some extra time on this. (??) Ella was a few months older than Quinn is now when we took everything away and it worked (we had tried it before and it didn't work so we just waited a few more months).

You are a great mama!! We all have those overwhelming days!! Just know we are all here when you need to vent!! ((HUGS)) to you and praying for Quinn.
Apr 06, 2009
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Hey Sarah, if it makes you feel any better, an extremely well known religious leader of old, who is responsible for beginning one of the more popular religions practiced in the US did the same thing... I'm sure it drove his mother crazy, too. :)
Apr 06, 2009
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
My neighbor's daughter did the same thing. Smeared her poop everywhere. Now she is a perfectly normal, rebellious college student. :) Hang in there.
Apr 06, 2009
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Honestly, poop parties sound pretty normal to me. *sigh* One of my nephew did this until he was about 4-5. Sounds like she's doing well otherwise, so I'd chalk it up to her being a kid and liking nasty stuff. And as for autism, my other nephew is autistic and Q just doesn't sound like she has the communication problems, LD issues, or major cognitive delays. It may be worth getting tested, but if she's improving, it could be that all the health issues you've gone through caused the delays. Usually autism is cognitive and speech, not motor. HUGS mama - you're such an inspiration to the rest of us, and you do it all yourself!
Check with your
doctor first!