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Apr 03, 2009
dmayjo2
Cadence diagnosed with reflux at 6 weeks, was taking Zantac, then Prevacid, then back to Zantac and now Carafate, also on probiotics, Sandifers syndrome, silent refluxer, never sleeps, flat head syndrome from being elevated all the time.
Sorry more questions from me about Prevacid
Okay so Cadence is now taking 5ml of Prevacid suspension once daily and today is his 3rd day on it, well today he threw up twice, large amounts and he seemed more fussy and didn't want to eat as much. Do you think that is a side effect of the prevacid? I hope it is not an allergic reaction to it! Has anyone else had their child vomit after taking prevacid? I will be watching him closely, because I don't want him getting dehydrated again and ending up back at the hospital
Apr 03, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Could be that the Prevacid hasn't started working yet and the reflux is still not under control. It takes a while to start working. It is so hard to tell what is what when they are so little. Doesn't sound like allergic reaction but I would put a call in to the doc to make sure.
Apr 03, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Yep what Julie said. If you are in the process of switching meds than it could be the acid is not covered and he has too much right now. Can you up the carafate during this time to compensate?? Or you can do a mix of the H2 he was on and the PPI to get him covered.
Apr 03, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
No PPI will stop the vomit. All they do is reduce the acid in it so there's no damage and it doesn't hurt them. Most PPI's need 2 weeks or more to start to really work, as they need to build up in the body. If the vomit causes problems (ie-aspiration or FTT) then the MD's wil usually recommend adding a motility drug to move the contents of the stomach out faster. Those are not without risks though - they're neurological drugs, and though there are many that do well on them, many do not.

Vomit tends to be just more of a laundry problem, even when the reflux is under control. If it seems like he's no better or worse after a full week on prevacid, I'd call the MD.

Apr 03, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
You could ask your doc for a few doses of Zophran. It is an anti nausea medication. Takes very little and shuts down the vomiting immediately. It was a life saver for us when we were trying to get our meds right. Each dose last 8 to 12 hours.
Apr 03, 2009
dmayjo2
Cadence diagnosed with reflux at 6 weeks, was taking Zantac, then Prevacid, then back to Zantac and now Carafate, also on probiotics, Sandifers syndrome, silent refluxer, never sleeps, flat head syndrome from being elevated all the time.
Cadence is a silent refluxer and never throws up or barely ever spits up, until now, that is why I was thinking it was from the prevacid. He also has a case of really runny diarhrea, which I have read is a side effect of prevacid. He hasn't vomited yet today, hopefully it stays that way.
Apr 03, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
When we were trying to figure out what was wrong with my dd, the most often asked question was if she vomited or spit up a lot. She never did until 3 months old, which was 2 months after her diagnosis of GER. Once she started to vomit, it didn't stop for months. And she was already on meds and had been for those 2 months prior. So sometimes these kids just don't make sense. I wouldn't think it's the meds though.

Could also be that he did just get out of the hospital and just trying to readjust. Who knows, right? :-)

Apr 03, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
HHHMMMMM, that's just toooo much of a coincidence KWIM.....We switched Jedd to Zantac from Axid and noticed a HUGE difference. Which really shouldn't have happend because they are just about exactly the same. He was on the Zantac for a month and we saw increases in vomiting and GERD issues. He has been back on the Axid now for 3 days and we already see a difference. The GI and I really CAN'T explain it. There really shouldn't be that much of a difference between those two drugs but there is for Jedd, go figure...LOL

I *think* that prevacaid has milk traces in it, do you know if there is a milk intolerance present or not??? Maybe that is causing the isses???

Apr 03, 2009
dmayjo2
Cadence diagnosed with reflux at 6 weeks, was taking Zantac, then Prevacid, then back to Zantac and now Carafate, also on probiotics, Sandifers syndrome, silent refluxer, never sleeps, flat head syndrome from being elevated all the time.
We never confirmed for sure if he has allergies or is sensitive to the proteins, but he could not tolerate milk or soy based formulas, that is why we started alimentum. He never threw up though, and I spoke too soon when I said he hasn't vomited yet today, he just drank a couple of ounces of formula and then 10 minutes passed and then he projectiled all over the two of us!
Apr 03, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
I was going to say something about the trace of milk causing problems for Adriane but I wasn't sure if it was just the solutabs or if it was in the liquid or not. The solutabs caused Adriane to have diarrhea and vomitting. I dont' know if that is what you are experiencing or not. She is now on Nexium and doing much better. One doc said that it was probably the Prevacid and another dismissed it. So, I'm not really sure what in the prevacid was the problem but there was something.
Apr 03, 2009
mommato3
I may be wrong but I think it is just the solutabs that has a trace amount of lactose in it. That is the reason some can't do solutabs. My son is allergic to soy and milk (blood in stools) but we take solutabs with no prob. I would say the suspension form could be a culprit. It may just not set right with his tummy. I would try the solutabs that way you don't have to worry about the way it was compounded and then you would know if it was the suspension or not. I also agree with the other post that maybe his reflux has become not so silent anymore. If its not the suspension then I would say this is it. My child went from a silent refluxer to an out right projectile vomit anything and everything. I hope its just the meds though b/c that's an easy fix. Call the doc though. Let us know what happens. Also, remind us what formula he's on. Sometimes, although this isn't a recent change, kids can be allergic to that and it just takes time for that to show up sometimes. It took about five weeks of soy formula before we saw blood in my son's stool.
Apr 03, 2009
dmayjo2
Cadence diagnosed with reflux at 6 weeks, was taking Zantac, then Prevacid, then back to Zantac and now Carafate, also on probiotics, Sandifers syndrome, silent refluxer, never sleeps, flat head syndrome from being elevated all the time.
I never thought about his reflux changing from silent to not so silent, hmmmm. Cadence is on Alimentum formula, it seems to work well for him. Yes he does have diarrhea as well that started yesterday. I called his pedi to inform her of his new symptoms, she wants to take him off the prevacid and put him on reglan. I don't agree with this, he just started taking the prevacid 3 days ago, I don't want to give up on it before it gets a chance to start working, it may be that his stomach will be upset for a couple of days till he gets used to it, or his reflux is changing, or he caught a bug from the hospital, but I think it is too soon to switch meds. I have heard that reglan has some scary side effects. She prescribed the reglan, but I am going to stick with the prevacid for a while, unless his system cannot handle it. She also mentioned surgery, I am not ready to even think about that. What do you all think?
Apr 03, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
One thing that I have learned about myself since I started this reflux started with my son is that I automatically jump to the "reflux is at fault" no matter what it issue is. I have a tendency to forget that little ones get the flu, colds, ear infections ect with or with out reflux. Is it possible that your son picked up the stomache flu while he was in the hospital? I know that it was rampid in my state just a few weeks ago. The hospitals were full of it. Vomiting and diarhea both. We had it at our house as well. Before you call it quits on the Prevacid ask you doctor if they have been seeing the stomache flu in their office. If so, that might be your answer. It was running a 10 day course here. If you are worried about dehydration, and we all do, ask them about the Zophran and maybe even a little Tylenol with codine which shuts down diarhea fast. I dont know how old your son is, but it is worth asking. My ped would never have prescribed it, but the ER doc at the childrens hospital did. Likely you wont need more than one or two doses of it. Worth asking about before you switch meds. Hang in there. We are all thinking about you. Please call your mom or a trusted friend to come hang out with you. It can be a daunting a lonely process.
Apr 03, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I would sooo NOT be contemplating surgery yet. At all. You have to do alot more testing before you get there. IMHO you need to have life threatening issues due to the GERD prior to having surgery.

BTW just FYI but Alimentum can cause runny green poos. Jedd's were always soft almost runny but not really and they were always a green color..LOL

I'd def. push them to do that scope to check things out. You can get such a better picture of what is going on that way.

Apr 04, 2009
dmayjo2
Cadence diagnosed with reflux at 6 weeks, was taking Zantac, then Prevacid, then back to Zantac and now Carafate, also on probiotics, Sandifers syndrome, silent refluxer, never sleeps, flat head syndrome from being elevated all the time.
Thanks again for the help, no I definitely do not want to go the surgery route, I mentioned it because I was surprised that my pedi even brought up. I am going to stick with the prevacid for now, he hasn't thrown up his last two bottles so that is good, and yes his poo has been very green since we started alimentum 8 weeks ago, but this is his first case of diarrhea. I will keep in mind the zophran you mentioned. I was also surprised that our pedi was quick to stop the prevacid so soon, she does know that he just got out of the hospital and it might very well be a bug, I hope. I don't think I want him on reglan either. Do you think it okay to give him a small amount of pedialyte, he is 3 and a half months old? It can be very lonely sometimes, my hubby doesn't quite understand reflux, I have tried to explain why the baby does what he does, and other information about the disease, but his eyes seem to glazed over if I talk about it too much! :) But I have my twin daughters who are a big help! Everyone have a good night and thanks again for the support!
Apr 04, 2009
mommato3
Are there any other pedi's you can go too?? She doesn't know what she's talking about. i know you won't contemplate surgery this soon but the fact that she mentioned it is CRAZY. Bless your heart. If this continues and you think it's not the stomach bug but the med or reflux I would call the GI office that you have an appointment to see and that saw you in the hospital. Tell them what's going on. I promise with your son's history in the hospital he will be happy to try you on the solutabs or give you some advice about adding Reglan into the routine. Now my son is on Reglan with no side effects and it keeps him from puking but when he isn't on Reglan he aspirates which can be life threatening. For moms that have to have it it can be great, but my son also has to be on prevacid. It stops the not so silent reflux but not all the silent reflux so Reglan by itself prob. wouldn't work anyway so i would push for solutabs. I have seen several pedi's and my son is going through extensive testing in April (scopes, probes, emptying scan, the list goes on) However we are going into this knowing that this will not change how we are treating him other than maybe changing his meds. Every pedi I've talked to about my son says that they would not even consider surgery unless this was causing him serious delays because of development even then we may try a feeding tube without surgery until he gets older and then reevaluate things. I would try to find another pedi. Start interviewing. That's what we're doing right now. You are an awesome mom!! Keep following your gut like you did last week. But if this isn't the bug, before you stop Prevacid call your GI. I'm sure he would be happy to have a nurse call you back. You are considered his patient even though you may have just had that encountered him in the ER. Best of luck. Finding the right meds and dosages is tough.
Apr 05, 2009
dmayjo2
Cadence diagnosed with reflux at 6 weeks, was taking Zantac, then Prevacid, then back to Zantac and now Carafate, also on probiotics, Sandifers syndrome, silent refluxer, never sleeps, flat head syndrome from being elevated all the time.
Thanks mommato3, I now believe that he was throwing up due to a flu bug going around because I have it now too, so the both of us have been miserable today but I am relieved it his not Prevacid causing it, he really hasn't thrown up today, just a couple of big spitups, but still has crazy diarrhea. On Monday the GIs office is going to call to schedule another appointment in the next two weeks. It is a quarter after midnight and Cadence is still fighting going to sleep. every night it's a battle!! Do you all know of any good books on pediatric reflux?
Apr 05, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
YES!
This is one of the best books out there! This was written by the site's founder Beth Anderson. Here is a link: http://www.amazon.com/Reflux-Book-Parents-Guide-Gastroesophageal/dp/0615182690/ref=pd_bbs_sr_1?ie=UTF8&s=books&qid=1238985318&sr=8-1
Apr 05, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
OK, I might be reaching here, but my son sleeps awesome in his glider. It is a Fisher Price Soothing Motion Glider. Glides side to side or forward and backwards. Ryan likes it side to side Would not have survived with out it. Technically he is too big for it now but I wont part with it. It is at a perfect angle to keep the tummy contents were they belong and it has a nice flat gliding motion. Cozy too. He hated the swing, it think it was too much for his belly. But in this thing he would take 2 hour naps. I still put him in this after his last bottle of the day because he usually falls asleep. I leave him in it for an hour before I put him to bed. I actually bought this for my sister a few years ago and she passed it on to me. http://www.toysrus.com/product/index.jsp?productId=2265136. I know the idea of buying one more thing is not a good one, but maybe you can find on on craigs list???? Ryan has been sleeping through the night since he was 5 weeks old. Coinsidence.. maybe but I was not willing to part with it when my nephew had a baby. Mean aunt.. I know. Sorry, my sanity comes first. ha ha.
Apr 07, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
How are you and Cadence doing?
Check with your
doctor first!