Posted By Posting
Mar 31, 2009
olivia's mommy
8 week old finally diagnosed
Since my daughter was three months old, I've suspected that she suffered from severe reflux. She would spit up/projectile vomit at every feeding and inbetween every feeding. When I expressed this to my pediatrician, he simply gave us a prescription for Axid and didn't seem to concerned. Well, while Olivia started as a mellow baby, she became more and more irritable to the point where the ONLY thing that would calm her down was constantly pacing. Interestingly enough, however, she would sleep really well at night! However...she started screaming/crying at every feeding and finally at 8 weeks I knew that my intuition was right and something was horribly wrong..It ended up that my pediatrician was out of town and now I'm glad. I saw the other ped in the office and she tested Olivia's stool..Sure enough, there was blood in she ordered an Upper GI. My husband and I were both shocked when she told us "normal" spitting up is 2-3 times a day. We were at least five times as frequent as that..YIKES. She suspected it's a dairy allergy...and since I was breastfeeding, I'd have to cut out all dairy. The problem was..I am already gluten intolerant. Taking away dairy AND gluten nearly left me with nothing..So, we put Olivia on Nutramigen right away and saw an improvement. She's an extremely happy baby during the day's been amazing. She's still having issues at night, however. We received the results from our upper GI yesterday...Olivia has grade 4 reflux..the worst..My ped said we would start new medication, and begin positional therapy. They said to elevate her 30 degrees when, after researching everything on the market, we went with the nap nanny. Everything else looked sooo uncomfortable and Olivia is extremely picky and likes to be swaddled...and it seemed like this accommodated everything.. I joined this forum because I'm extremely stressed out about my daughter's condition and I've found comfort in reading everyone's posts. This past week, she's stopped sleeping well at night and is now awake every two hours. And since starting the Nutramigen, she will only eat 2.5 ounces at a time ( she is 9 weeks and weighs 11 pounds and a few ounces so this definitely is not enough.) She now sleeps in her swing to keep herself elevated until the nap nanny arrives..but has anyone else experienced sudden sleep changes? She was sleeping up to 6 hours during her first stretch of sleep, and now were lucky if she makes it to 2.5 hours. Anyone else have a child with grade four reflux? My doctor seemed very concerned and even surprised..if only he had taken me more seriously early on..maybe my daughter wouldn't have had to suffer so much for so long.
Mar 31, 2009
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
You will find an abundance of support here. Reflux is an absolute roller-caoster, so my best advice is to expect the unexpected. One of the really challenging things is trying to determine what is "normal" and what is "reflux" when it comes to things like sleep changes, feeding changes, etc. Because babies are going through so much developmentally, it can be really hard to know for sure. I think most here will agree that the key is to FOLLOW YOUR INSTINCTS! If you think changes in your little one are caused by a medical issue, push the envelope to get answers. If you have a doctor who is not responsive, change doctors. My son suffered from GERD for many months, as well as undiagnosed sleep apnea for over a year, because we had an unresponsive dr. and I didn't have the confidence to be a good advocate. Trust yourself, you know your little one better than anyone, and if it feels like there's something wrong, or if you need help with something, it is your child's doctors JOB to help.
Apr 01, 2009
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
The only thing I can add, as a mom with a kid who had both a dairy & soy allergy (as well as many other allergies), is that Nutramagin definately improved my son's health, but Neocate (an elemental/very expensive formula) improved it much much more. Good Luck, Ellen
Check with your
doctor first!