Posted By Posting
Mar 31, 2009
dmayjo2
Cadence diagnosed with reflux at 6 weeks, was taking Zantac, then Prevacid, then back to Zantac and now Carafate, also on probiotics, Sandifers syndrome, silent refluxer, never sleeps, flat head syndrome from being elevated all the time.
We did end up going to the ER
I wasn't sure if my update would be seen in the old post (Emergency room) so I am posting it here as well. Thanks again for all the advice, the bad news is I did take Cadence to the childrens hospital emergency room and he has been admitted, the good news is we will get to meet the ped GI tomorrow when he does his rounds, instead of waiting 6 months to find out what is wrong with our son. It has been a very trying day with IVs, catheters, x-rays and the heartbreak of hearing my son scream bloody murder! They did find bacteria in his urine so they have already started antibiotics to treat the UTI, but as far as the gastro stuff we won't know until we see the GI doc tomorrow. His father is staying the night with him at the hospital right now because I have to take care of my daughters at home, but I will be going in first thing in the morning. It is really hard on all of us to see him go through the tests at the hospital, and having my baby away from me is tearing at my heart, but then I am relieved to know that we finally might be getting some answers. I appreciate everyones advice and I will keep you all posted about Cadences outcome.
Mar 31, 2009
jan gambino burns
Jan Gambino, M.Ed
The Reflux Mom
P.O. Box 171
Arnold, Maryland
21012 USA
Mom to Rebecca: reflux and asthma, post nissen fundo, post g tube, post FTT and Jenna: reflux, asthma and POTS.
Author of Reflux 101: A Parent's Guide to Gastroesophageal Reflux.
http://www.lulu.com/content/4999931
Blog: www.healthcentral.com/acid-reflux/c/96
Sending Virtual Hugs
I am sending virtual hugs to you and Cadence. Please update us when you have a moment. My daughter was hospitalized for tests when she was a newborn and there weren't enough tissues in the world for both of us! The poking and tests are awful but I am so glad you will find out why Cadence is in so much pain. Jan Gambino The Reflux Mom
Mar 31, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Thinking of you today. I hope the GI will help you get to the bottom of Cadence's problems. Please update when you can. ((HUGS))
Mar 31, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Good mama - follow those instincts. I was one of the ones saying stay away from the ER unless necessary, and you saw the signs it was necessary. Prayers for you all - it's going to get better!
Mar 31, 2009
mommato3
I will be praying for you today! Good going mom! You knew something was bad wrong. I hope you get some answers. Let us know what the GI says, tests he wants to run. By the way, what does your pedi say? Did you end up taking him there first or going straight to ER? Had he lost any weight? Prayers and hugs.
Mar 31, 2009
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
((HUGS)) I know first hand how painful it is to be separated from your little one by hospitalization, and how heart wrenching it is to watch them undergo invasive procedures. I'll be thinking of you both, and looking forward to hearing what happens with the GI. more ((HUGS)).
Apr 01, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
*hugs* i hope this solidifies that instinct everybody was telling you about- a true mother knows! i am so sad your heart is breaking but i am happy he is on the road to recovery! I am glad you got to see your GI and got into the children's hospital i hope he feels better soon!
Apr 01, 2009
dmayjo2
Cadence diagnosed with reflux at 6 weeks, was taking Zantac, then Prevacid, then back to Zantac and now Carafate, also on probiotics, Sandifers syndrome, silent refluxer, never sleeps, flat head syndrome from being elevated all the time.
Update on Cadence
Wow, you all are great, I am so glad I found this site, thanks for all the support and hugs! I will try my best to make this message understandable but I am slightly delirious from lack of sleep! Cadence had an upper GI test done today, boy did he hate being strapped down, they confirmed yes, he does have severe reflux, which we already believed that was the case, evidently he refluxed 8 times in just a few minutes, also they said all the organs look good, no abnormalities they can see, but they still have to look at everything a bit closer. Cadence is feeling better today probably just from getting rehydrated from the IV, his color is back and he was crying less today. We were not released today because they are still not happy with the amount of his feeds, I was only able to get him to take around 8-10 ounces total today. not good :( We are still waiting to hear about the results of a culture they took and further about the upper GI, but they have decided to go above his pedi head and restart the prevacid again, this time at a dose of 15 ml daily, he was only on 7.5 daily before and I believe that is why it didn't work for him. We also met with a dietician that gave us some helpful tips on feedings. I'ts been a rough week but I am actually so thrilled that an aggresive approach is being taken to fight this reflux, I feel more informed about the disease and I have hope now that Cadence will start feeling somewhat like a normal happy baby should! Oh Mommato3, to answer your questions, I did not take Cadence to our pedi first, I did call the office again completely stressed out, and that is when they told me I should head to the ER, since they probably were not able to get us in that day. Turns out our pedi is friends with the doctor doing rounds today at the hospital, and she is happy for their extra knowledge of reflux. So yes, now I am glad we made the choice to take him to the ER. Oh and thankfully Cadence did not lose any weight. One last thing.. we found out had we waited to meet with the GI outside of the hospital at his normal office that our appointment would have been September 10th. Okay, I hope all that made sense, I am going to take a hot bath, try to sleep a little and go back to the hospital at 6 am, and I will post his updates, thanks for the support!
Apr 01, 2009
mommato3
Woohooo!! Way to go!! Hope you get a little rest and he begins eating better for you. I thought I may have to take my little guy to the ER yersterday. He totally stopped eating and we are on a high dose of Prevacid. I took him to the pedi who is going to watch him closely for dehydration. She said his throat looked raw but she did nothing for me other than told me to feed him by syringe if I have too. I will be taking him elsewhere today if this continues. I'm so glad you got some answers and some better doses of meds and that you got to see the GI!! I also hope your pedi learned a lesson in reflux from this! Ha! Once again this new picture is adorable too! Blessings!
Apr 01, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
To mommato3: I had my son in the ER 2 weeks ago. He went 9 days with out drinking. I had to do it all with a medicine syringe. Ped kept saying wait it out wait it out, keep doing what you are doing. I finally cracked and took him to the ER. By then I was throwing up in their sink because I was so tired and stressed out from forcing fluids down this throat and watching him scream when he saw the medicine syringe. The ER doc put an end to it. His throat was fire engine red and swollen. He wouldnt even swallow his own spit. She gave him Tylenol with codine (you have to be very careful with that due to the fact that it is very constipating) and the real trick was 1 mil of malox mixed with 1 mil of benadryl. 15 minutes later he drank from his bottle. I did the benadryl and malox for 2 days. The swelling and redness went away and he could drink with out it. That doc warned me about forcing fluids via a syringe. OK for short term but can cause major adversions. Better to find a way to soothe the throat so they are willing to drink on their own. It took me almost a week to undo the "issues" i created by forcing the fluids with the syringe.
Check with your
doctor first!