Posted By Posting
Mar 28, 2009
dmayjo2
Cadence diagnosed with reflux at 6 weeks, was taking Zantac, then Prevacid, then back to Zantac and now Carafate, also on probiotics, Sandifers syndrome, silent refluxer, never sleeps, flat head syndrome from being elevated all the time.
emergency room???
Hi- MY 3 month old son has reflux and Sandifers, he is on Zantac, but now it doesn't seem to be helping him, for the last two nights his reflux has been unbearable, he is writhing around in pain and hasn't been drinking much formula, also he can't sleep, he keeps waking up from the pain. I have been keeping an eye on his wet diapers and he has only had a few wet diapers and they were very light compared to how they usually are. I made the doctor aware of his situation yesterday and they want to see him on Monday, it's also going to be a long time till he can see the GI. My question is should I take him to the emergency room, can they help him or will they just send us home, I am worried he is not eating enough and he is getting dehydrated. I have tried everything to comfort him but nothing works, we are so stressed out. Can anyone give me their opinion on if I should take him to the ER, thank you
Mar 29, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
I'd page your doctor and ask what to do. Ultimately you have to follow your gut.
Mar 29, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
unless you can go to a children's hospital or a children's overnight urgent care- your on-call pedi is the best bet. Now I am not deturing you from the ER if you feel this is a true medical emergency like he needs x rays or medicine or fluids. but i can tell you 3 out of the 3 trips i made to our local ER for reflux related issues- turned in to "see your pedi on monday"

IF you know what hospital your GI is doing rounds at that is a plus you can go there and hope he sees you. you can also call the on call GI from your office even if you have never met to get advice too.

if it makes you feel any better I just took my daughter audrey to the ER 3 weeks ago b/c she wouldn't stop crying and wasn't eating- it just seemed like it was the necessary thing to do. when we got there she was calm lol but we still did x-rays jic. like i said FOLLOW YOUR GUT
Mar 29, 2009
dmayjo2
Cadence diagnosed with reflux at 6 weeks, was taking Zantac, then Prevacid, then back to Zantac and now Carafate, also on probiotics, Sandifers syndrome, silent refluxer, never sleeps, flat head syndrome from being elevated all the time.
Thanks for the advice, I have managed to get him to drink about 7 ounces since I last posted so I feel a little better about it, I am still watching him very closely for dehydration or anything else out of the ordinary. If I did take him to the hospital while the GI was doing rounds there, that might be the only way for us to see him as it is a 6 month wait for the GI, and I am hoping he has grown out of the reflux by then!
Mar 29, 2009
jan gambino burns
Jan Gambino, M.Ed
The Reflux Mom
P.O. Box 171
Arnold, Maryland
21012 USA
Mom to Rebecca: reflux and asthma, post nissen fundo, post g tube, post FTT and Jenna: reflux, asthma and POTS.
Author of Reflux 101: A Parent's Guide to Gastroesophageal Reflux.
http://www.lulu.com/content/4999931
Blog: www.healthcentral.com/acid-reflux/c/96
ER or urgent care
Hello! Sending hugs to you and Cadence! Do not hesitate to take him to the ER or urgent care center today if needed. "Infant Crying" is a very common reason to take a baby to the ER. He is communicating to you as best he can that something is terribly wrong. A cold, ear infection or some other non reflux illness may be causing the symptoms. If reflux is the cause, the doctor needs to figure out why he is suddenly in more pain and unable to eat. Take Care, Jan Gambino The Reflux Mom
Mar 29, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Hi there. Regarding the ER - Unless there is very good reason to do so (high fever, dehydration, foul smeling urine, etc), I'd skip the ER and keep calling the MD. If needed, the doc can always make an exception and see him in non-office hours.

I'm curious, why is he only on Zantac? I read he was on Prevacid, is there a reason that he's off it now? If Prevacid didn't work at all, there are at least 2 other PPI's to try - Nexium and Prilosec.

I agree with everyone else - follow your instinct. I'd definitely say the Zantac isn't enough though.

Mar 29, 2009
mallory'smom
Shawna: First time Mom to Mallory (10/07/08). Silent reflux diagnosed at 2 months. Alimentum formula fed. Trial of Losec (minimal effect). Now Prevacid 1x/day plus Zantac 2x/day.
I find with these little guys it's always best to err on the side of caution. Dehydration in babies is not good and it can happen very quickly. Keep close track of how much he has eaten and how many wet diapers (light/med/heavy) he has in a 24 hour period. Signs of dehydration are a sunken fontanel, less urine/dark urine, lethargy, eyes/mouth not moist, rapid weight loss (10% in a few days = serious dehydration). I CRIED when I had to take my baby back to the ER because the first time resulted in a week's hospitalization and I did NOT want to go through that again but you must do what's best. Trust your instinct (as the other mommies have said) and no one will turn you away for being overly cautious, especially with a new baby. By the way, has he gained weight prior to this sudden change? Zantac is really weight sensitive (we found this out the hard way) and if he has then the zantac may become ineffective. We found that a combo of zantac and prevacid helped our baby (silent reflux and sandifer's).
Mar 30, 2009
dmayjo2
Cadence diagnosed with reflux at 6 weeks, was taking Zantac, then Prevacid, then back to Zantac and now Carafate, also on probiotics, Sandifers syndrome, silent refluxer, never sleeps, flat head syndrome from being elevated all the time.
Thank you all very much, I have been battling all weekend if he should go to the ER or not, as soon as I think we should go, he decides to drink a few more ounces and is happy for a while. As far as the prevacid goes, I don't believe that we gave it enough of a chance to start working. I love our pedi but I know that she does not know enough about reflux as we keep getting our meds low dosed and not staying on some of them long enough, we have been on multiple meds and she still does not want to increase dosage on any of them, He has been on the same dose of Zantac since he was 6 weeks old. She has finally decided we should see the GI, but there is a 6 month wait to see him, in the meantime, we are doing everything we can to make him more comfortable, I am so stressed out, I can tell he is in alot of pain, and I feel so helpless. I will be calling the pedi tomorrow to get in right away to make sure there is nothing else going on, and also to check his weight and make sure he is not dehydrated, this weekend has been so horrible, it is the worst I have ever seen his reflux!! Also how do I deal with a doctor that is unwilling to prescribe the right doses or keeps telling me he should grow out of it soon? The pedi had seen the Sandifers on tape because I recorded him during one of his "seizure-like episodes" and I call just about every other day telling them things are not working!! I feel helpless watching my son go downhill, I am at my wits end!!
Mar 30, 2009
mallory'smom
Shawna: First time Mom to Mallory (10/07/08). Silent reflux diagnosed at 2 months. Alimentum formula fed. Trial of Losec (minimal effect). Now Prevacid 1x/day plus Zantac 2x/day.
It's easy for your dr. to say 'he will grow out of it' but you are the one living with a baby in pain. When we went through what you are going through we found a new doctor. Also, make sure you are well educated on medication dosing - I spent a day calling around to many different pharmacies in our area to find out what standard pediatric doses were.
Mar 30, 2009
mommato3
OK-Do you have any more refills on your Prevacid?? If so, I would refill it. Give him the Prevacid in the AM and Zantac as well (check for proper spacing) or just give Zantac in PM and other in AM. It will not hurt him. I would do this for the time being. If it works I would call the pedi and TELL them that you need more refills. I would research (on line and call pharmacies) and find proper dosing of the meds and present this to your pedi. I would also look into changing pediatricians. Remember Prevacid takes two weeks to kick in. For those two weeks it is like he isn't on any meds so that's why Zantac is important. Even though she gave such low doses I'm hoping the two together will bring relief although it will take time for it to kick in. Also I would call the GI docs office everyday and check for cancellations. That is how I got my son in. I drove them crazy but they knew I had a son that wouldn't eat. They will tell you they will put you on a list but You are better off calling them everyday and checking. If nothing else they may work you in. I called crying everyday to my GI docs scheduler. By the way, he's ADORABLE. I'm sure you get that a lot!
Mar 31, 2009
dmayjo2
Cadence diagnosed with reflux at 6 weeks, was taking Zantac, then Prevacid, then back to Zantac and now Carafate, also on probiotics, Sandifers syndrome, silent refluxer, never sleeps, flat head syndrome from being elevated all the time.
We went to Childrens Hospital\
Thanks again for all the advice, the bad news is I did take Cadence to the childrens hospital emergency room and he has been admitted, the good news is we will get to meet the ped GI tomorrow when he does his rounds, instead of waiting 6 months to find out what is wrong with our son. It has been a very trying day with IVs, catheters, x-rays and the heartbreak of hearing my son scream bloody murder! They did find bacteria in his urine so they have already started antibiotics to treat the UTI, but as far as the gastro stuff we won't know until we see the GI doc tomorrow. His father is staying the night with him at the hospital right now because I have to take care of my daughters at home, but I will be going in first thing in the morning. It is really hard on all of us to see him go through the tests at the hospital, and having my baby away from me is tearing at my heart, but then I am relieved to know that we finally might be getting some answers. I appreciate everyones advice and I will keep you all posted about Cadences outcome.
Mar 31, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I am so glad you went to the ER. I had my son there in Jan and a week and a half ago for drinking strikes.... 9 days of drinking strikes... not that I was counting. I had been to the ped and called them a million times. I kept being told, its the flu, its the cold, its teething. I finally cracked and took him to the ER. A magic mix of malox and benadryl plus some zophran and he was eatting like champ. I think the ER ped docs are more in tune with our reflux babies and they go straight to the source rather than assuming it is something else. Best of luck to you with you GI and all the test. I hope you find the magic cure for him this week and you all can get on the road to recovery. I am on my 2nd week back from the dark place you are right now and all is well. Hang in there!!
Check with your
doctor first!