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Mar 27, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Anyone in the Des Moines Iowa area that can recommend a pediatrician who understands reflux
Hello! My son has been battling reflux since he was 3 weeks old. He is 10 months old now. I have been to the ER with him twice since January. Both times I was at my pediatricians office countless times because he stopped drinking, completly for days, 7 days then 9 days. Both times the ped told me that it was ear infection, flu, cold, teething etc but would never give him anything. That left me forcing fluids down him with a medicine syringe which was very tramatic for both of us and finally we would end up in the ER because I could not keep him hydrated. Both times the ER doc was able to turn the corner with my son and get him to drink in a matter of hours. Both times it has been issues of a severe sore throat most likely caused by a flare up with his reflux. We are working with a fabulous GI doc now, but I really need a pediatrician that can recognise early on that we are dealing with a flare up and be willing to intervene with medications so he will start drinking sooner and not end up in the ER.
Mar 27, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Is there a reason that your GI will not do this for you?
Mar 27, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I am sure he would but how will I know if I am dealing with a common cold, teething, ear infection ect? I would end up at the ped first. I am looking for a ped that can identify the difference and intervene at that point or send me to my GI for help. I would hate to go to the GI if it is not reflux related.
Mar 27, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
the ear infections, sore throat and such CAN be reflux related.

I do agree that I'd want to see a ped first though. You'd get in faster KWIM. A GI can take a long long time to get into. Does the GI have any suggestions??? I know our Ped has her favorites so maybe it would work the other way around??

What meds are you currently using???

Mar 27, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
I think what was meant is, can't your GI offer you some suggestions of peds that he enjoys working with?
Mar 27, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I have a note into him for a recommendation. I will see him in person on the 15th. He has a very good friend that is a ped but she is pretty far out of the way for me. Hoping he has another recommendation for me. Ryan just got tubes put in 2 weeks ago. I pushed and pushed for a referral. It was a doc at a walk in clinic that got that done for me. He heard my story and said "I will call my friend today." I got in to see him 5 days later and the tubes were put in 3 days later. That should take care of the ear issues and the need for constant antibiotics (he has been on them since the middle of Nov). I am sure antibiotics probably make the reflux issue worse so I am glad I am done with that. Ryan is on 15 mg of Prevacid in the morning and last week we added 7 mg at night. I have elevated one side of his bed, (now if I could just keep him up there) cut out the 10 pm bottle, and added probiotics. Knock on wood, we have had a great week. Starting on Tuesday he started taking a full 6 oz bottle in the morning with out choking or gaging once. I have not seen that since October. I dont know if it is the probiotics, the bed angle or the extra prevacid that did the trick, but something did. He is drinking, eating and spit is not running out of his mouth. Speaking of, is there a book that you would commend that can teach me about the life style changes I should be making with him. What to do, not do, feed him, not feed etc. I want to do anything I can to ward off further drinking strikes. I am a very action oriented person and this is killing me to just sit on my hands and do nothing.
Check with your
doctor first!